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I Battle Depression and Anxiety

Catatonia - The "c" Word Of Psychiatry

By: perseverer
Written on August 6th, 2011
Age: 51-55 , Female
1,833 people have read this story

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20 responses
  • Gledwood

    I had 2 psychotic manic episodes last year. I am supposed to be schizoaffective, bipolar type. Anyway the 2nd time, I went from depressed and hearing voices on a Sunday to manic on Monday to extremely manic on Wednesday. Every day after that, for several days, I got into a state for hours where the words in my head broke up and just one syllable was left over. Especially -ING. That syllable would whirl round and round my head with extreme velocity and I would yell it probably very loudly. INGINGINGINGING... I felt I was going out of body, out of mind, sucked into a cosmic vortex. When I tried looking up this phenomenon the only sense I got back online was "delirious mania" and "catatonic excitement". I'm not at all sure I really was "catatonic" though I have been depressed into a near-stuporose state where I would get up and try to cross the room only to seize up and find myself standing like a statue, having lost the volition to go on. I don't really think this was serious enough to be true "catatonia". But maybe I had a touch of it. And it would seriously **** me off, if I let it, that there seem to be NO firsthand experiences online that match mine. Or firsthand experiences of catatonia. Which is probably, in truth, a different thing entirely...

    (Why is this?)

    I hope your son is OK now.

    btw if you want to see my blog its at htttp://gledwood4.blogspot.com ~~ I'm there far more frequently than I am here...

    Sep 19, 2012
    2 likes
    • perseverer

      Thank you for reading this and sharing your story. I am sorry you have this condition. it is not easy, I know. I tried to look up your blog but my computer would not let me onto that site. You sound like you had a catatonic stupor; catalepsy (muscular rigidity) can be a feature of these stupors. In fact, your experience sounds much like my son's in that it seems to pass from a psychotic episode into a catatonic phase. I am no expert, so don't quote me; I am just observing an apparent similarity. I had the same problem as you ie no first hand experiences online that matched.

      My son is improved a little, but still has these stupors from time to time. I hired a full time carer for him and this made a big difference. Progress is slow, but his depression is definitely improving.

      All the best; if you ever want to talk about it, just message me, ok?

      Sep 20, 2012
      1 like
  • perseverer

    You poor dear! I understand completely what you have been through and am sincerely pleased to be told that you have taken charge of your treatment and are doing much better now.



    These stupors have to be experienced or witnessed first hand to really know what they are like and how intensive the therapy needs to be to help the patient recover.



    Everything effective I learned about the treatment of catatonic stupors I learned on the internet. In spite of being in the mental health system for thirteen years not a word about this condition has ever been spoken.



    Nowadays I know full well that most doctors and nurses haven't got a clue.



    Benzodiazepines are most effective for treatment. But not so easy to obtain repeat prescriptions for unless used to treat epilepsy. That is purely and simply because catatonia is not widely understood.



    I also employed a carer for my son and she got him active and moving. That was the most beneficial thing of all that helped him.



    Thank you for reading this and I hope your condition continues to improve.

    May 29, 2012
    1 like
  • weepingwillow8

    I know that this post is old by now, but I just had to write, I am so stunned and moved.



    What you have described sounds almost exactly like me. I was admitted to a mental hospital almost 5 years ago for severe depression. I was admitted because I was suicidal, but the health practicioners seemed stunned by how quickly I responded to treatment, and how different I seemed from their other depressed patients. They just shrugged and wiped their hands of it after I was gone. I now have no doubt that I had catatonic depression.



    I did not have any hyperactive phases, but I did fall into stupors that lasted for days. My memory was affected by my severe depression, so I am actually missing about 6 months, but most of that year was spent in pretty much one catatonic episode after another. I will forever be thankful that I went to the hospital andgot help for myself, I am doing so much better now, but it was so difficult b/c unlike other depressed patients, I was often physically incapable of getting to my counseling appointments. There needs to be some change to help those who suffer from catatonia receive medical treatment more easily, especially those who live alone.

    May 29, 2012
    2 likes
  • perseverer

    julianbrook, thank you for reading this and offering your obviously well informed comment. I sense that much of what you say is based on your own acquaintance with the psychiatric industry. I do not judge the reasons or the motives for the lack of appropriate entry into the experience of the patient. I only know it exists. I have often thought, if I was the psychiatrist, I would want to know about all these sorts of things happening in the life of my patient. If i knew my patient was likely (in my son's case because of sudden withdrawal from medication) to be experiencing catatonia, I would at least inform him and his parents about it and what to do. If a patient had been admitted to hospital because of the sudden loss of his ability to walk, as also happened in my son's case, I would at least offer the appropriate explanation and explain how treatment and recovery would likely proceed. But no; everything I have learnt about catatonia I have learnt from the internet.



    As you say, people have to be informed. Because of what I read online I was able to pick up ideas. I hired a full time carer for my son and she has been making him much more active. This has made all the difference, and the catatonic stupors seem to be a thing of the past, at least I hope so.

    Sep 21, 2011
    1 like
  • julianbrook

    I'm sorry to hear about your son's condition. My life has been negatively impacted by negligent psychiatric practice, and I've formed certain opinions based on my experience with this institution. The following information may be considered as opinion:

    Psychiatrists readily diagnose and medicate patients based on very limited knowledge, with very little understanding of their patients or the drugs they are administering to them. However, the support infrastructure for patients whose lives have been negatively impacted by wrongful or inappropriate treatment is close to nil. Modern psychiatry is a heavily controlled industry. One part of this control is concerned only with the protection of the industry itself. This protection has been built into the system from the ground up, so when patients (and their families) come to psychiatrists with facts that have serious negative implications for the psychiatric/pharmaceutical industry, that is usually where the support ends. In these situations, the doctor essentially (and unwittingly) becomes a simple legal barrier, preventing the patient from holding the industry itself accountable for any possible negligence that may have occurred on its part. At this point most psychiatrists will express limited knowledge and capabilities, and those affected will have to go elsewhere to find support.

    I believe the best thing a parent can do is educate themselves, and explore all the possibilities concerning treatment and therapy. Sometimes this means travelling or even moving to where there is proper support/treatment available.

    Perhaps further medication is the answer (perhaps not). This may not be relevant for your son, but in cases involving schizophrenia and bipolar there are usually underlying emotional issues that should be identified and treated (IE emotional attachment issues stemming from negative childhood experiences), or the healing process may never be complete. This is help that only a skilled psychologist can provide.

    Again, these are just my opinions. Good luck, and I hope you find the answers you are looking for, and the support your family needs (and deserves).

    Sep 21, 2011
    2 likes
  • perseverer

    JB4J thank you for reading it. I think it is something we should all be aware of, especially those involved in the health care industry. Yes, it is a very misunderstood affliction.

    Aug 13, 2011
    1 like
  • perseverer

    amberdextrous, catatonia is an acute symptom of various conditions, mainly mental health ones. The point is, it is never mentioned. We have been in the mental health system for many years and have read whatever has been on offer. Catatonia does not appear ever as one of the things that can happen. There is no warning like, "This can also result in symptoms known as catatonia which can include frenetic hyperactive behaviour as well as loss of motor control and immobility. If these behaviours appear consult your nearest medical practitioner immediately." No, there is nothing. And worse - even when a patient has it, he will not be told what it is, at least not in our experience.

    Aug 13, 2011
    1 like
  • JB4J

    This post was very interesting to read perseverer. I must admit, Iv'e never heard of Catatonia before now. Thanks for writing about this unrecognized and misunderstood affiction.

    Aug 13, 2011
    1 like
  • amberdextrous

    Another powerfully-argued piece, perseverer, from a deeply personal perspective. Thank You for sharing your story, and for informing readers further about this little-known condition. I was not aware that Catatonia was a disorder in itself, rather than an acute symptom of some other brain disease or injury.



    It seems the western medical canon is very much in denial over this, and I commend your effort to raise awareness. Is there a support group for families in your situation, either local or online? I am sure they could benefit from your ability to express your own experience, and you could benefit from their fellowship and understanding.



    I hope You find some way to get your son the effective treatment he needs.

    Aug 6, 2011
    2 likes
  • perseverer

    jcue1976, you are a dear friend. I appreciate you reading this and praying for us. And yes, I hate it when doctors don't tell you what is going on. In this case, I hate the fact that we have been in the mental health system for twelve years, Joe has been under the care of psychiatrists since he was 9 years old, and yet not once has catatonia been mentioned.



    I know, for a fact, that his current psychiatrist was thinking, "catatonia" because after a more recent episode I phoned him for advice; at that stage, Joe had been mute for four days and could barely move. I told him I was worried that he might stop breathing, or his heart might stop beating, and the psychiatrist agreed. So he knew what we were dealing with, alright. His advice, to take him to the local hospital and get the hospital to phone him was a disaster. The hospital would not call him and we were treated like moronic idiots, and left without being treated some 10 hours later.

    Aug 6, 2011
    2 likes
  • perseverer

    1Gia, you obviously know what it has been like trying to make head and tail of a baffling condition with scant help if any from the medical profession. I would love to know the story of your son's condition, the heartache you went through researching it and working out therapies. And thank you for sharing about his healing. Yes, praise the Lord!



    I am only just beginning to realize that what I was thinking of as "the extreme anxiety attack" phase of my son's episodes is actually part of the catatonia, the extreme hyperactive part. Imagine a fish thrashing on the end of a line, and that is what Joe's full body tremors are like, and they can last for up to four hours. But presenting at hospitals and clinics for help, they don't think, "catatonia", in spite of Joe's long psychiatric history; no, they think, "epilepsy" or "seizure", only they are completely stumped by the fact that he zones out but remains conscious.



    No wonder the hyperactive component can cause death by exhaustion. That a condition such as this, even when the hyperactivity has stopped but the mutism remains, can be easily dismissed and ignored by the medical profession is incomprehensible to me.

    Aug 6, 2011
    1 like
  • perseverer

    Angela, thank you for your kind comment and for mentioning the attitude in society in general, including the medical profession and even, in places, the mental health system, that mental illnesses are not genuine medical problems. This prejudice angers and frustrates me in the extreme. If available medical aid is denied to a patient, it can mean the difference between being an active and productive member of the community and being an invalid. But you are up against notions such as, "Parents think medication solves everything and they are often the ones responsible for the patient remaining ill." So medications are only prescribed reluctantly, if at all, and the notion that there is a genuine illness that requires treatment is always undermined.

    Aug 6, 2011
    1 like
  • jcue1976

    I hate when the doctors don't explain thing to you and leave you in the dark...I'm glad that you have the information you need to understand and be patient when this is going on. I hope it continues to get better for your son and family. I"ll be praying.

    Aug 6, 2011
    2 likes
  • awarren98

    You're right about the mental health system, it is broken. I'm sorry your son didn't receive the appropiate care he so much deserved. We as a sociaty have to look at mental health as a true medical problem, not just look at them as if they are insane, we need to realize that they suffer just as much as anyone with a health problem. We should be more sensitive with those who suffer from mental health disorders. Living with a mental health condition is a battle everyday, and it is unfair for them to have to live this way. But, with your help and support you can make your son's life a healthy and productive one. He's very lucky to have you, as you are to have him.



    My thoughts and prayers are with you, and I hope your son is able to overcome this and even heal.



    Have faith, hope and love,



    Angela

    Aug 6, 2011
    2 likes
  • perseverer

    Thank you for reading, commenting and praying, my friend.

    Aug 6, 2011
    2 likes
  • gr8jesus

    Children are a gift from the Lord; they are a reward from him. God Bless YOU and Your son my friend .:)

    Aug 6, 2011
    2 likes
  • perseverer

    Unshakable and Smile you are such sweet friends. Your prayers and love are very much appreciated. At time of writing, my son is doing much better. But the last two years have been hell, and even now, he can have an episode and stupor come out of "nowhere". I just wish I had been informed about catatonia before we started experiencing it, and that my son could have been given hospital care as he would be terrified out of his wits going through it. As it is, I employ a full time carer for him and this has made a big difference.

    Aug 6, 2011
    2 likes
  • smile2147

    Wow did not know anything or heard of catatonia. Good luck with your son and may things get better .

    Aug 6, 2011
    2 likes
  • unshakable

    I am so sorry for your son's condition.Praying to God for His healing on your son.God Bless.

    Aug 6, 2011
    2 likes