8 Week Old With Campomelic Dysplasia

Hi my daughter was born on November 5, 2012 with CD. I found out when I was 12 weeks pregnant that something was wrong, but I already knew I loved her and there was no way I was going to terminate. When she was born she was breathing on her own and they thought she could go home, but then her first night she started to have trouble. They trached her at 2 weeks old and she is now 9 weeks old and home with no vent. She is doing great and I am just looking for more information on what to expect in the years to come. She does have the bowed long bones in her legs. Her doctors want to operate when she is around 1yr to 18 months. Has anyone else had expirience with this surgery? Were you or your child able to walk before it? How was the recovery? Any information you can offer would be greatly approciated. Thank you!
apeachthing apeachthing
22-25, F
Jan 7, 2013