I Have An Invisible Disability

I was diagnosed with CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy) in 2009 after feeling ill with headaches, nausea, dizziness, depression, fatigue, and other symptoms for quite some time. (Sounds like MS or other conditions, and I was first told I had MS, but that was wrong. CADASIL is often misdiagnosed as MS.) I still have these symptoms and more, although medication and the fact I am no longer working help.

I am constantly being told how "well" I look. While that is nice, I don't always think it is a compliment. My brain is NOT well. Some people take for granted that a person is fine because they look fine. Appearances can be deceiving, as anyone in this group knows.
EnjoyLifeNow EnjoyLifeNow
51-55, F
Sep 9, 2012