1 In 100,000

My story starts seven years ago when my left foot dropped and I ripped a good pair of pants by stumbling and tripping on the sidewalk. I had two EMG's after that and was told to keep an eye on it. In 2007 my left arm dropped, and as a guitar player this was not acceptable. I've had EEG's MRI's and more EMG's since that time and was finally diagnosed with CIDP three months ago. Since then I've tried to find all the imformation I can about this disease. What I'd really like to know is what took so long!g
springmang springmang
3 Responses May 25, 2012

hi - new positively charged, deep knowledge online communities being built at www.onevoice.world - sign up at the top of the screen to be alerted when we launch in your rare disease..!

To Possum1216, Sorry I can't help you with insurance since I live in Canada our government health plan covers anything I will need, but Good Luck with your search, Gary

My GP never heard of CIDP but sent me to a neurologist. After the diagnosis, he has read up on it and I will be taking him some literature on my next visit. What I want to know is where I can find an insurance carrier who will cover my infusion presc<x>ription for Gamunex-C? Any info would be greatly appreciated. After almost a year of diagnosis, I finally got some financial help but I'm sure I'll have to be on the hunt every year for it.