Cathed Once,now Cath All The Time
I had my gallbladder removed in 2008 and after the op experience urinary retention,I woke up at 1AM bursting to go and when I tried no matter how hard I could not,the pain became excruciating so I rang for the nurse,after they had a natter they informed they would have to catheterize me.All went well and what a relief! They drained 3 LITRES of urine when they inserted it,I had the cath for three days after.After the op my bladder was never quite the same I would get sudden violent urges to pee,cramps,pain etc.A few months later I had another op booked for a circumcision as I had been suffering from phimosis (Tight foreskin) for a year or two,when I had the gall stones I was urinating very dark acidic urine due to bile in the blood,this didn't help.I had the circumcision and had loads of problems after,the person who did it must have been drunk as it was loose one side tight the other.Where they had used a hemostat (clamp) on a vein they clamped the flesh around it and it died,I ended up with a hole the size of a penny and about 8mm deep on top of my penis behind the head and where they cut the frenulum,they cut it too short and stitched it back together,the stitches tore through and created a big wound underneath.
After all this I'm left with a badly scarred penis and poor circumcision,the wounds caused strictures to form in my urethra in the last 2" of my penis,these making peeing difficult and painful,on top of that I have an overactive angry bladder from the episode of urinary retention that stretched my bladder to bursting point.A year later i found out that I am suffering from hypogonadism,that's where the testicles stop or don't produce enough testosterone anymore.My testosterone was nearly ZERO.I had all the tests done and it appears the fault is with the testicles not the pituitary gland in my brain,I now have injections of Testosterone (Nebido) every three months,its still low.As for the bladder I have began urinating repeatedly at night to the point where I could not sleep,sometimes I was so tired I wouldn't wake up and end up wetting the bed.
I now have to dilate my urethra to keep the strictures open and have been taking oxybutinin to calm my bladder,at night I use diapers to ensure the bed doesn't get wet.About three or four times a month I use a Foley catheter and bag at night to get at least one complete uninterrupted nights sleep,I fill a 2 litre bed bag in less than 6 hours at night,so I have to wake only once to empty it.I have recently tried Desmopresin a synthetic version of the hormone your body makes to reduce urine output at night and it has work wonders,I try to keep its use down though as I heard its effectiveness can wear off in time,this also indicates that my pituitary is not producing this hormone causing the nocturnal poly uria/enuresis.
So there you go,my bladder hell.This problem is only symptoms of my main illness which is chronic pancreatitis,the chronic pain it causes has upset practically every system in my body,my bowels,bladder,brain,nervous system.This problem unfortunately cannot be fixed without either making me worse or killing me.