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Scared, Unsure, In Lots of Pain...

I just found out four days ago what this horrible, painful swollen thing on my butt is. I've been warring with this problem, not knowing what it was, but now I finally know that it is a pilonidal cyst, and I know how to beat it and pretty soon I'm going to have it removed surgically and hopefully it will never come back.

It all started four and a half years ago in high school when I fell on my butt and a few days later it began swelling up and it hurt to walk, sit, lay down, lay down sideways, lay on my stomach... there was no position that didn't hurt. Finally one morning, as I was throwing up in the toilet, my Mom decided we needed to go to the ER. A lot of good that did. They took x-rays, told me it wasn't broken, gave me some anti-biotics and told me I must have had the flu. I know.. the flu??? Anyway, my Mom and I came up with our own diagnosis: I must have busted some blood vessels around my tailbone when I fell. And when the swollen thing on my butt finally began to drain blood and puss, we just assumed that to be the blood from the broken blood vessels. After it drained it scabbed over and eventually shrank and healed, but the pain would come back from time to time over the next four and a half years.

Last week was the first time since then that it really, really began to hurt again. This time was much worse than last time, though. And this time I had a fiance who wanted answers and wouldn't settle for a guess as to what was wrong. I tried to tough it out for a week, but finally he took drove me to the ER one morning and before the doctor even examined me he knew what it was. Neither of us had ever heard of a pilonidal cyst before. The doctor made it sound like it was no big deal, maybe because as I found out over the next few days, they get much bigger than mine was that morning. What I thought was big on Wednesday morning I considered tiny by Friday afternoon. I had it lanced by the university nurses (which saved me tons and tons of money), and they, as well as all the research I've done, told me to get it surgically removed as soon as it healed up again. When she was lancing the cyst, she found that my "capsule" had already tunnelled down next to my spine. I don't know if that's common, but it sure hurt when she was digging around in the cyst looking for it. But once she hit that thing, oh my goodness! it felt a MILLION times better. It was like fireworks went off inside my butt and a HUGE weight was lifted out from between my butt-cheeks. It was so gross and so digusting, but I didn't care who was watching when it happened, because I had been in sooooooooo much pain, and now I wasn't!!!

So, I'm meeting with a surgeon sometime soon, and I'm scheduling my surgery for sometime in early May, after finals. I'm really nervous and scared about the surgery and the recovery, but I know God has a plan for my life, and I know He's watching over me. It really, really helps knowing that God loves me and that I'm in His hands always. But any prayers and thoughts are always appreciated, because I've never had surgery and I'm kinda nervous...

kami6887 kami6887 18-21, F 10 Responses Mar 30, 2008

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im 16 years old + a female and i recently had mine drained and packed with gause and it hurt so much. ive got a drip in my arm for antibiotics twce a day and the doctor changes my gauze once a day. any idea how long this is gonna take to heal? i dont know how much more pain i can take :'(

hi! im 17 and need the same thing done daily... can you tell me how bad changing the dressing is? like how bad does it hurt? ive heard that the worst is over but i dont know if i believe that.

I'm not sure if I have one or not. It is extremely painful to do anything. My mother thinks that I am overreacting but this is the worst pain that I have ever felt in my life. Which type of doctor would I go see for this?

I also recently had mine drained for the first time...And it was horridly painful.
This is an awful disease and I'm sorry that you have it.
You have my best wishes, and I hope it gets better for you <3

I just went got my drained two nights ago and i feel so much relief,but still gotta do surgery,kinda scared but i know with God,i got this,hope y'all feel better

So, u just had mine drained for the first time, even though this is my 2nd time having the cyst a few yrs apart. Are you saying that even though they drained it, I still need to have it surgically removed? Don't ever want this thing coming back!!

I'm so glad things went well for you. I had my pilonidal cyst lanced and drained four times now since I was 15. I'm 19 now and it has come back. I absolutely refuse to have it lanced again because 1) I cant afford it and 2) the pilonidal cyst keeps coming back. So I started this homeopathic remedy from a guy named Michael Lynch called pilonidal cyst relief or pilonidal cyst cure or something like that. He seems to know his stuff and his remedy has been working awesome. He shows you some helpful things you can do to your pilonidal cyst to ease the pain and this stuff really works. <br />
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I hope your surgery remains a succcess and that you never have to go through this pain in the butt ever again. I cant wait to get healed so I can start living like I used to.<br />
<br />
Tata

hello, I am having this procedure done next week and was wondering if they "put you under" during the operation or if they just give you a "local"

i was put under all four times ive been through it.

Yeah, I'm still here. Wow, I remember being five days out of surgery. That's probably about the worst day, lol. But don't worry, give it about a week and you will finally start seeing the light at the end of the tunnel. For me, the first three days were pretty good, and I was really optimistic, but then I read on pilonidal.org that you feel good for a few days after the surgery because of the local anesthetic. The article said that it would wear off and for a few days you would be in complete agony and you would think that your pain killers suddenly stopped working. That was exactly how I felt. It was horrible. But then, right around day 10, I realized that I was hurting quite so much. And by my two week check up a few days later, I was feeling pretty good and walking around much easier. From there on out, it's clear sailing. Yeah, it's still sore and you still have to clean out and repack the wound twice daily, but instead of dreading it because of the pain, it just becomes a part of your routine and you go through it so fast it hardly bothers you.<br />
<br />
The best advice I can give you right now would be for you to not give up. The next few days will be rough, but they will end. I'd say just make the best of it. Lay in bed or on the couch and watch your favorite shows or movies and eat your favorite food. Live it up, take in all the attention. And then as soon as you get past the painful first two or three weeks, you need to primarily focus on doing as best a job as possible cleaning out the wound both times each day and you want to make sure that you, or whoever is packing your wound for you, stuffs as much gauze in there as possible. It's really, really important that the gauze is in there good and snug, so that it absorbs all of that puss and gunk that the wound is giving off. If you do it right, your wound will quickly heal from the inside out and you might even heal ahead of schedule. I actually healed about two weeks sooner that I was supposed to.<br />
<br />
My cleaning routine was pretty easy, and I was even able to go back to work after about three weeks. What I did was I took a shower and took out the gauze in the shower, so that it slipped out a little easier, and the hot water helped dull the pain. Then, once the gauze was out, I used the spray from the shower to sort of wash out the wound as best I could. From there I dried off and then repacked the wound with gauze. Sometimes I would wet the clean gauze with saline solution that the hospital gave me, but later on my surgeon said you don't really have to do that. You can if you want to, sometimes it helps it slip in there easier.<br />
<br />
I hope that helps you. If you have any other questions or need any advice or cheering up, feel free to ask. The absolute best advice I could ever give is to put your trust and your faith Christ. He is always there for you, and sometimes situations like this actually bring you closer to Him, because you learn that you can't get through hard times alone--you need Him. If you have any questions about how exactly to do that, I would be more than happy to try and answer them. To me, putting your faith in Christ and believing in Him is the most important thing in a person's life.<br />
<br />
Hope that helped! Good luck! Don't give up hope!

Yeah, I'm still here. Wow, I remember being five days out of surgery. That's probably about the worst day, lol. But don't worry, give it about a week and you will finally start seeing the light at the end of the tunnel. For me, the first three days were pretty good, and I was really optimistic, but then I read on pilonidal.org that you feel good for a few days after the surgery because of the local anesthetic. The article said that it would wear off and for a few days you would be in complete agony and you would think that your pain killers suddenly stopped working. That was exactly how I felt. It was horrible. But then, right around day 10, I realized that I wasn't hurting quite so much. And by my two week check up a few days later, I was feeling pretty good and walking around much easier. From there on out, it's clear sailing. Yeah, it's still sore and you still have to clean out and repack the wound twice daily, but instead of dreading it because of the pain, it just becomes a part of your routine and you go through it so fast it hardly bothers you.<br />
<br />
The best advice I can give you right now would be for you to not give up. The next few days will be rough, but they will end. I'd say just make the best of it. Lay in bed or on the couch and watch your favorite shows or movies and eat your favorite food. Live it up, take in all the attention. And then as soon as you get past the painful first two or three weeks, you need to primarily focus on doing as best a job as possible cleaning out the wound both times each day and you want to make sure that you, or whoever is packing your wound for you, stuffs as much gauze in there as possible. It's really, really important that the gauze is in there good and snug, so that it absorbs all of that puss and gunk that the wound is giving off. If you do it right, your wound will quickly heal from the inside out and you might even heal ahead of schedule. I actually healed about two weeks sooner than I was supposed to.<br />
<br />
My cleaning routine was pretty easy, and I was even able to go back to work after about three weeks. What I did was I took a shower and took out the gauze in the shower, so that it slipped out a little easier, and the hot water helped dull the pain. Then, once the gauze was out, I used the spray from the shower to sort of wash out the wound as best I could. From there I dried off and then repacked the wound with gauze. Sometimes I would wet the clean gauze with saline solution that the hospital gave me, but later on my surgeon said you don't really have to do that. You can if you want to, sometimes it helps it slip in there easier.<br />
<br />
I hope that helps you. If you have any other questions or need any advice or cheering up, feel free to ask. The absolute best advice I could ever give is to put your trust and your faith Christ. He is always there for you, and sometimes situations like this actually bring you closer to Him, because you learn that you can't get through hard times alone--you need Him. If you have any questions about how exactly to do that, I would be more than happy to try and answer them. To me, putting your faith in Christ and believing in Him is the most important thing in a person's life.<br />
<br />
Hope that helped! Good luck! Don't give up hope!

hello brand new to this site. not sure if you r still on this site. I am 5 days out from surgery. I wanted to know how things turned out for you?