The Pain In My A** That Will Not Go Away
This story is long.
I had a Pilonidal and I am STILL dealing with the aftermath. I noticed the cyst around November, 2007. I thought it was an infected hair from the tanning bed. Man, oh, man was I wrong. I had surgery to remove it on June 2nd, 2008. It was a "Z Plasty" which for lack of a scientific understanding is when the cyst is removed then the skin is closed. I was told the cyst was like an iceberg, small above the skin, but very large underneath. It went to the spine. I have a nasty Z scar, Zorro left his mark on my backside. I was told that it was an out patient procedure and that I would not be spending one day in the hospital. When I woke up in recovery I was informed that I would be staying. It required me to stay in the hospital only for one day. A drain was stitched in me to help with the drainage. The drain had a clot in it at one point but the doctor was able to remove it in his office. It was painful but it seemed to be healing nicely after the clot was removed. I thought all was well until about the end of August, 2008. I started having massive drainage. The drainage was creating open wounds along the previous incision sight and releasing foul odor and liquid. It was so bad that it would soak through a maxi pad and my jeans. I am in college and let me tell you that this is NOT the way to make friends. It was very embarrassing, down right annoying, and costly because it ruined so many of my pants. I was living by myself on the other side of the country, attending college when this was happening. I was told that I needed surgery number two to correct this. I was again told that it would be an out patient procedure and that I would not be spending one day in the hospital. When I woke up in recovery I was again informed that I would be staying. I ended up spending six hellish days in the hospital. The surgeon had opened me up like I was a pumpkin. My incision was 11cm wide and 12cm deep, down to the spine again. The first time I saw the wound in the mirror I nearly fainted it was so large. I am not weak hearted either, I myself am studying to become a MD. The first time the packing that was placed in my wound by the surgeon was removed was the MOST painful thing I have ever experienced in my 20 years of living. I have never given birth but I like to think that I can handle child birth after experiencing the pain brought on by the packing removal. I tell everyone I gave birth through my back. I was then placed on a Wound Vac. Since I was 2,500 miles away from my family, I had to have home health care come every other day and changed my wound dressing. The dressing changes in the beginning were like an awful visit to the dentist, but after a few weeks the pain subsided. While all of this was going on, I had to medically withdraw from school and return home. I continued to have the Wound Vac until the middle of December, 2008. All seemed well until around June, 2009. I was having the same kind of drainage happen along with some tenderness of the area. I went to my surgeon who had done the first surgery and he said I needed a scan of the area. The scan confirmed my worst fear and on July 17, 2009, I had my third surgery. This time I knew I was going to be staying in the hospital. I ended up spending six more days in the hospital. This time the incision was 12cm wide and 14cm deep, down to the spine again. The removal of the packing was also my worst enemy again. I was put on another Wound Vac again. I was just taken off the Wound Vac around the end of September, 2009. Around two weeks after being taken off the Wound Vac, I started getting the drainage and tenderness of the area again. I have to get another scan tomorrow to confirm if my worst nightmare will again come true for the fourth time.
I know that other people suffer through worse things than Pilonidal Cysts, such as cancer and etc, and I applaud their strength. I wish I had their strength. Most people I know do not understand why this cyst is such a big problem for me. They do not see it as a serious medical condition. In fact before I had my first surgery I did not see it as a big issue either. I wish medically they knew more about Pilonidal Cysts. I do not want even my worst enemy to go through what I myself have gone through because of this cyst. This cyst and recurring drainage has affected my whole life. My life has been turned 180 degrees by this problem. Nothing is the same for me as it once was a little of a year ago. I want my old life back, I do not want to deal with this anymore. I feel that I can not deal with this anymore. It not only takes so much out of me physically, it takes so much out of me mentally. If you read all of this, I thank you for listening to my story. I hope your story is better than mine.