Macular Degeneration Problem


I had a problem with my left eye, I started to see things a little blurred and soon I visited a doctor in Boston. Unfortunately, he did not pay the attention required. Probably he wasn't an expert in Macular Degeneration. You know, ophthalmologists have their specialties, too! So, I asked, and asked, and asked and someone sent me to Dr Lena Forbes, a physician who changed my whole point of view! Her specialty was Macular Degeneration treatment and cooerated with Mass General.

Step by step she lead me to have the injections, she was persistent that I should have the right nutrition and now I must say that I saved my vision. She saved me. I admire her as a doctor, but even more as  a person! I wish all doctors were like her!

I want to say to all people who suffer fro the wet form of MD: Don't give up! There are ways to continue living!
KIRAMATHEWS KIRAMATHEWS
56-60
1 Response Jul 26, 2010

Research Into The Experience Of Living With Macular Degeneration

Hello,

My name is Ahsan and I am a masters student. I am studing Design practicle subject and in that we have to come up with a product for a Challenge and my challange is Macular degeneration.

The major asspect of our work is to understand what goes through the life of a person having AMD. What they feel, what are their needs and what they think is missing in their life after having this challenge. What are the things they want in there daily routine which can decrease there hurdels and problems that they face. As our motif is to put person first and not look at him / her as a patient and then to come up with some thing which they really need to cope up with this problem in particular with a view to improving persons experience..

We are hoping to conduct some research in collaboration with patients to improve communication between health care professionals and patients as well as family memebers & friends.

We would like to know if you have any innovative ideas for improving the way that health care professionals or family memebers / friend communicate with you (i.e. explain your diagnosis, give you information about treatments for your condition, or give you information to look at in your own time).


Kind regards,

Ahsan Mansoor Pirzada.