8 Years After Surgery
After severe headaches, nosebleeds and feeling the back of my head at the neck swell I went to the doctor and was diagnosed with Arnold chiari Malformation. When I first noticed pain I was about 16 but never paid much attention. I did not have insurance either so I saw a series of doctors who misdiagnosed it from migrains all the way to an anuerism. When I was finally able to have an MRI not only did the radiologist find the arnold chiari but a pituitary tumor. I was diagnosed in February of 2000. I went through a series of tests and once all other posibilities had been reviewed I had surgery in June of 2000. I went through so much pain and the tumor only made it worse. My immediate recovery afterwards was frustrating because I was limited to activities such as driving, and even lifting heavy things. I was severly overweight at that time 303 lbs and after the surgery I had such a hard time recovering that I made a promise that I would lose the weight and I did It is 8 years later and even though the surgery was so long ago I still feel some pain. I was not suppose to be able to have children due to the tumor but as GOD saw fit I became pregnant in 2005 and had a beautiful daughter in 2006. I was not able to to have a natural childbirth. I was not even allowed to carry her to term. The OBGYN performed a C-section at 37 weeks but she was healthy and I am not sure I would have wanted to go through labor anyways. Even now I am limited to activities. I cannot run long distances, I cannot pick up anything more than a few pounds because my nose still bleeds and any strain causes headaches and even now some swelling. I am so scared that my daughter could inherit this illness. Even though it has not been proven to be hereditery, I would feel horrible if she were to have to endure the same pain and and symptoms that are come with such a defect. Life has resumed pretty much the same with some restrictions but I wonder if anyone else still has problems.