Asd.

I was very young when I was told there was a whole in my heart, but my parents were told it could fix it self because it was such a small defect and I was so young. Years past now im about 13 years old and I was noticing that I couldn't run around like all my friends and was always so tired. I went to get a physical to do school sports and they recommended I see a heart specialist in Madison, Wi. Not far from my home town. After about a day of ekgs and echos he told my mom and I that I'd need surgery because the whole had grown to be over an inch. Surgery was scheduled for July 27, just 3 months away. I was so mad at my mom for making me have to do something so scary. I was mad she didn't make me have the surgery when I was young. I was mad that she didn't even ask what I thought about having surgery. I was so scared and mad. All of friends were there for me, but I just felt like it wasn't real. Now I'm grateful for everything. Although I absolutely hate my scar and feel awkward wearing low cut shirts I live with it. And I'm proud to say I'm a survivor of Atrial Septical Defect and have now realized that if I had gone untreated death was a possibility.
An Ep User An EP User
5 Responses Jan 19, 2013

Thank you for writing this. Our son has transitional av canal defect. He is two. Didn't know if we should wait till he is older to fix but reading this makes me realize it is better to fix now.

Thanks for sharing your story. I'm 40 and just found out about my 1 inch ASD. It's pretty shocking to me that I have been active my entire life, high school football ect. I have surgery in 2 weeks.

Thanks for sharing your story. I'm 40 and just found out about my 1 inch ASD. It's pretty shocking to me that I have been active my entire life, high school football ect. I have surgery in 2 weeks.

I know how you feel I had open heart surgery for ASD at 21 years old. I felt so sad that they didn't discover it when I was younger because it would of been a smaller scar and I wouldn't of even know it happened till I was older. It was scary for me as well It really hit the last 5 minutes before they wheeled me out to the operation room. But i am thankful they found it because my hole was 3.2cm in diameter! I would of not lived as long had I not had it done. I always tell my fiancé I am not self conscious of my scar, but deep down I know I am. But it's been 4 months and I'm defiantly more okay with it now, I even kind of like to show it off because it's a reminder that I am stronger than I thought. :))

Sweetie I enjoyed your writing.I know your fears.I am 6 moths post op from a second open heart surgery.God bless you for sharing all your feelings and having a great gratitude for the now.XO