I Hate Prednisone

I've been taking Prednisone for the last 26 years and it is killing me. I have Myasthenia Gravis and have to take Prednisone in order for me to not see double, and for the MG to go into remission.

Meanwhile, over the 26 years I have gained 50 lbs that I can't get rid of. It seems as though it is all in my belly, and considering myself an athlete, it is really bothering me. I know that there is not much I can do about it, but I don't want to be known as fat and lazy. It drives me nuts.

Also, because of the prednisone, I have been diagnosed with depression, am borderline diabetic, my skin is so thin that I get cuts all the time. I bruise so easily so always have black and blue marks all over. I've now broken three bones in my foot and probably have osteperosis. I am always getting my blood tested to see how my liver and kidneys are holding up.

This SUCKS!!!
emoenjr emoenjr
46-50, M
2 Responses Jan 5, 2013

I was on that for years for my MS I was tipping the scales at 267lbs from it, I don't take it anymore and kid you not lost half a person in weight. Its hard on a persons body

I'm kind of happy that after 26 years on the crap, I weigh 250. Thanks for sharing, it helps me try and stay strong.

I'm 21 and so unfit it's unbelievable, I also suffer depression too.

Are you on prednisone? If you'd like to chat about it and get my insight, please message me. I've been on prednisone since before you are born, so I know a little something about it.

I also gain a lot of weight on prednisone 50 lbs. in less than a month I don't know why it affected me so quickly. I am also an athlete and health is very important to me so I know how u feel about worrying people are judging you or thinking you are just lazy and don't take care of your self because I also worry about that. However I am now weaning of the prednisone and already lost 20 lbs. of water I am hoping that as I continue weening it will continue to come off. I hope that things are looking better for you now and that you will get off this nasty stuff soon. I just know that when you do at least half of the weight you are unhappy with will come off right away and if you are an athlete you should no have trouble losing the rest. Stay strong.

No, I won’t take pills, it’s the depression that is making me so unfit, I have no motivation you see, I can’t even get out of bed in the morning sometimes, it is so bad. Have you ever tried coming off the drugs?

I can't because I'll start seeing double and my muscles will start giving out. Hey, if you'd like to chat, then message me.
Ed

What a shame, I’ve heard that these drugs are very addictive :(.

Please read my story if you wanna know more about my predicament, it's pretty bad.

Prednisone is not addictive for the mind, but the body starts to rely on it and you have to come off of it slowly

Do you think you'd fall back into depression if you quit?

I'm depressed mainly because of the prednisone. If I was seeing double and it was not going to go away.... I don't know if I would be around too much longer after that.

I also hate those effects.. Plus the fat chin and grumpiness .. What is your daily dose?

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