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So Scared

I was diagnosed with a tumour 6 days ago.  I have seen the MRI and the neurosurgeon and he says he's "almost" 100% sure it's benign and he thinks it's been there for years.  He doesn't know what type of tumour it is but it's 2.7 cm x 1.9 cm in the fourth ventricle.  I don't have a surgery date yet.  He says he should remove it.  It is close to the brain stem so he says I could have deficits after such as lose my sight or mobility.

I am so dizzy right now that I just want the surgery over with.  I am scared of dying and really concerned about my family.  My bf thinks I'm going to die and everyone else is being so nice - weird how it almost bugs me because everyone acting 'different' almost makes it like I will die....

I have done up my will and also written farewell letters just in case.  Oh btw my surgeon says not to take Advil, Ativan (I need that for MRI claustrophobia) or sleeping pills. 

Somebody please give me some hope!

cubicledweller cubicledweller 46-50, F 8 Responses Feb 28, 2010

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the greatest hope is reading ur bible and beleive in god. and beleive that he will never leave u nor forsake u. friends and family will fail u but jesus will never, hes closer than a brother. just read his words they will indeed comfort ur soul. but u have to beleive in him, have faith.

hi , have you or your doctors considered gamma knife surgery. I leave for Seattle this month for treatment. I had surgery 6 yrs ago for a skull ba<x>sed tumor that was attached to my brain stem and for the last few years it has returned. this treatment only takes a few hours and you are free to go home the next day. check it out and best wishes.

Don't give up. I have fought a brain tumor for eight years, ages 15 to 23. It was difficult, and had some close calls, but I'm still here and am more grateful than ever to be alive and capable.<br />
<br />
I find that whenever I start to stress over lab results and doctors' prognoses, it's helpful to ask them to quantify risks. Even if they give a broad bracket, it still helps me. Because what does "a good chance" really mean? Could be a 30% chance, could be 90...<br />
<br />
Even if the doctors are uncertain, try to understand the risk involved and the possible outcomes in as unbiased way of a way you can. Especially when it comes to stuff as scary as this, the mind can create the worst scenario and spend all sorts of time and emotional energy reacting to it. Having a brain tumor is hard enough already without that additional burden.<br />
<br />
It's a rough road you're going down, and I'm really sorry you have to go down it at all. But you're going to be okay. Just keep moving.

Hello,<br />
now 30 yrs old, I was diagnosed with hydrocephalus in 1993, and have had a "pea-size" tumour ever since, monitored by regular mri's. Although the attempted biopsy (1993) lead to a hemmorage, the doctors assumed it was benign since there was no change after all these years. Any questions, feel free to ask! Best wishes! <br />
teasep@hotmail.com

Hello,<br />
now 30 yrs old, I was diagnosed with hydrocephalus in 1993, and have had a "pea-size" tumour ever since, monitored by regular mri's. Although the attempted biopsy (1993) lead to a hemmorage, the doctors assumed it was benign since there was no change after all these years. Any questions, feel free to ask! Best wishes! <br />
teasep@hotmail.com

I just turned 18 years old and ive been fighting my battle with a brain tumor for just over four years. Its definetly a rough battle, but stay positive, and have hope. It takes you such a long ways. All the best to you!

hi,<br />
<br />
I've been living with my 'uninvited guest' for about 9 years now. An Astrocytoma grade II. located where my frontal/temporal lobes are/were. <br />
I won't lie. It's not an easy road that you're going to travel. I wish you luck and strength. If possible try for as complete a removal as possible. The tumor in head has been 'debulked' now at least 3 times and it keeps coming back. sorta like dandelions on the lawn. In a week I'm done 6 weeks of radiation so I'm hoping that will shrink the tumor down from it's current size of 5 by 8 cm.<br />
<br />
good luck

Oy, i am feeling for you. I have several lesions in my brain, for close to 18 yrs, but they are benign, and caused by my Neurosarcoidosis. Ask them for an ACE level, maybe they are caused by the same thing.. do you experience many difficulties now? <br />
Yes, there is always hope!<br />
<br />
Good luck, Chipperchick