Between A Rock And A Hard PlaceMy son is already 6 yrs. old. He was diagnosed with autism and moderate mental retardation at age 2 1/2 yrs.
Even before he was born he was diagnosed with so many problems: fluid around his heart, atypical umbilical cord, and once he was born he was classified as having "dysmorphic features". He was also born blind and deaf. The latter have been resolved: he now sees and hears pretty well, but he is not visually interesed in cartoons or reading. He is non-verbal and does not seem to learn anything.
I guess what hurts me the most is the lack of communication. He doesn't care for any human interaction with either his parents or his loving sister. I have tried many things: early intervention, therapies and modified diets with supplements, and none has made a difference. But I know only a miracle can help switch on the communication button he has inside his brain.
I say he is "between a rock and a hard place" because his autism does not let him interact and his mental retardation does not allow him to learn. What a combination!
I am tired of trying everything, of being patient, but most of all of hoping that someday he will call me "Mommy" . My husband, who is very supportive and a great human being has also lost hope.
I hear or read about other cases, and all seem less complicated than ours, for example: Kid "A" at least can speak or Kid "B" is already in school, or Kid "C" can do sign language, etc. It is so frustrating because I know I could teach my son so many things and make a "well-rounded" individual out of him, a civil person and a good human being.
But alas! my son has no skills, no motivation, no anything. He is just like a blank page with just some scattered letters on it.
I worry about his future, about all the cruelty in this world towards helpless people like him. I worry about who will take care of him if we are no longer here.
I just need to see some glimmer of hope to get me and my family going. I do not want to live with this perennial sadness that has invaded my soul.
honeysmile 41-45, F 1 Response 0 Mar 24, 2011