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I Have A Daughter With Agenesis Of The Corpus Collosum

I FOUND OUT THAT MY DAUGHTER HAD AGENESIS BACK IN 2005.SHE WAS COMPLAINING OF HEADACHES.SO I TOOK HER TO THE ER AND THEY PERFORMED A CT SCAN.THE CT SCAN CAME BACK THAT SHE HAD AGENESIS OF THE CORPUS COLLOSUM AND I HAD NEVER HEARD OF IT BEFORE.TOO BE HONEST I DID'NT THINK THAT THEY KNEW WHAT THEY WERE TALKING ABOUT UNTIL MY DAUGHTER WAS SEEN BY TWO MORE HOSPITALS WHOM TOLD ME THE SAME DIAGNOSIS.I THEN ASKED WHAT CAME ALONG WITH IT AND THEY EXPLAINED TO ME THAT SHE MAY START HAVING SEIZURES AND STROKES ALONG WITH THE INCONTIENCE,AND HEADACHES.AT THAT TIME SHE WAS 5YEARS OLD.SHE IS NOW 12 YEARS OLD AND HAS STRUGGLED SINCE SHE STARTED SCHOOL.IT IS NOW 2010 AND MY BABY STARTED HAVING SEIZURES IN AUGUST.AUGUST 4 SHE HAD HER FIRST ONE AND IT WAS BAD.SHE SEIZED FROM 6 :30PM TO 10:45PM.I WAS GOING CRAZY.I JUST KEPT PRAYING TO GOD PLEASE DON'T TAKE MY BABY.WELL SHE STARTED TO COME AROUND AND THAT BROUGHT SO MUCH JOY TO MY FAMILY AND I.WE WERE SO HAPPY TO SEE HER OPEN HER EYES AND START TALKING.THE NEXT DAY SHE WAS RELEASED FROM THE HOSPITAL.THE DOCTOR'S SAID THAT THEY DID NOT WANT TO PUT HER ON ANY MEDICINES BECAUSE IT WAS ONLY HER FIRST ONE.ON SEPTEMBER 7,2010 MY DAUGHTER STARTED SEIZING AGAIN,BUT THIS TIME IT STARTED AROUND 3:30PM.SHE HAD FOUR BACK TO BACK THAT DAY AND NO MATTER HOW MUCH MEDICINES THEY WERE GIVING HER TO CONTROL THEM THEY WERE NOT WORKING. HER BODY WAS RESISTING.MY DAUGHTER STOP BREATHING THAT DAY.I TOLD THEM DOCTORS TO DO WHATEVER IT TAKES,BUT YOU HAVE TO SAVE MY BABY.I THEN DROP TO MY KNEES AND STARTED TO PRAY.THEY STARTED THE INTUBATION AND MY BABY STARTED TO BREATH.SHE STARTED TO PROTECT THOSE AIRWAY'S.THAT MEANT THAT SHE WAS FIGHTING.IT WAS NOT HER TIME.SO I  THANK GOD EVERYDAY FOR BRINGING MY BABY BACK TO ME.SHE IS NOW ON MEDICATION AND THE MEDICINE'S ARE HELPING HER.BUT I PRAY EVERYDAY BECAUSE I KNOW THE OLDER SHE GET'S THE WORSER IT GET'S.SO I JUST PRAY...
nking1508 nking1508 31-35 1 Response Oct 6, 2010

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*hugs* I hope everything works out for you all...I know it can be really hard.