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Eds III And Pain Tolerance

Having Ehlers Danlos Syndrome Type III (Hypermobility type) makes you develop a high pain tolerance.

I've pretty much had high pain tolerance ever since I can remember. At least, I was told I had a high pain tolerance, but it didn't feel like it to me. When I had my first knee surgery in the spring of my sixth grade year, it didn't really hurt afterward. I thought the pain was similar to if I had fallen and scraped my knee. All the pain was in one spot, and I could pretty much just ignore it. The same thing happened with my other two knee surgeries, then my two ankle surgeries. The only time I was ever in a LOT of pain was when they rotated my femur and tibia two summers ago. They broke my tibia and femur (cut really), then shoved a rod down both, and rotated the bones. The pain after that, compared to my other surgeries, was excruciating. But, as time progressed, I got used to the pain. This last summer, I had my tibia rotated on my other leg. Compared to the other surgery, the one with both bones, it was nothing. It hurt, but it was very managable and I ignored it much of the time.

Also, I tend to fall and run into things a lot. None of this ever hurts, unless I dislocate a knee or something. Even then that can be managable, unless it's a major dislocation. In November, I dislocated my knee and it stuck on the outside of my leg. It was after school and I was in a teacher's class room. It hurt worse than I could ever remember, and they had to call an ambulance. Compared to my surgeries, this dislocation felt even worse. However, there were moments when I wondered "Why am I crying again? It doesn't hurt THAT bad." But then my knee would try to pull back into place, but the skin and bones of my leg wouldn't let it, and it started hurting even worse. Finally the ambulance arrived, but they aren't allowed to give you anything for pain, or use the siren when it's not life or death. Also, it was a whole hour to the hospital and the roads were extremely bumpy. Once in the hospital, my knee ended pulling back in on its own, and it didn't hurt that much. In fact, it felt better. Of course, this may have been related to the pain medicine they finally gave me, but that's ok too.

Now, I'm virtually pain free. Well, as pain free as you can be with EDS III and POTS and etc. Pain is kind of an every day reality for me, so I'm used to it. And because of that, I've developed a high pain tolerance.
NicoleLynne NicoleLynne 18-21, F 1 Response Mar 19, 2012

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Nicole I think that us EDSers have to gain pain tolerance some time down our path, because if we don't then we would go insane. But yeah, I understand the pain, it comes it goes. But it is constantly there and we build an immunity to it unless it is really bad. But even then for some reason people look at us and say, well you just went through that so suck it up baby. Lol, oh well gota love who we are and what we have to do to find a balance with the pain. Just don't give me a head ache behind my eyes, ugh, that pain I have no tolerance for.