Trying As Hard As I Can To Get Answers, A Diagnosis, Information, And Connect With Other People Who Have Similar Conditions

I believe this is the first time I have actually wrote on this website when it hasn't been 2:00-4:00 AM. Realizing that my time is running out and I haven't recovered, I feel as though I am litterally dying psychologically and physically. The amount of pain that has been done to this body and mind due to the fact that I haven't recovered or got my life back on track, is unexplainable. After going to bed at 5:00 AM and getting up at 11:00 AM only to face this nightmare I call life, I seem to have found a way to just shake my natural instinct to over think and analizye the ways in which I use to reach out to people on the internet trying to get answers about my health issues and illnesses, which is an amazing thing that doesn't very often. So I'm going to take advantage of this time and share some info about my story so that hopefully I can reach out to someone who suffers from similar conditions or has gotten a diagnosis. Here is a list of some of my strange symptoms. Please understand that this is just one of the conditions or part of an illness that I am sufferring from.

-My skin bruises easily, has the texture of more of a woman's skin being very soft, smooth, and not very elastic, which has caused stretch marks(the stretch marks are not caused from weight gain or any of the usual things that cause stretch marks). I've been told I might have Ehlers Danlos Syndrome, which I guess is a rare connective tissue disorder, but I am having trouble finding a specialist who diagnosis or rules out this disorder. SO IF YOU OR SOMEONE YOU KNOW HAS THIS DISEASE AND KNOWS OF A SPECIALIST WHO CAN DIAGNOS THIS CONDITION PLEASE SEND ME AN EMAIL OR REPLY TO MY STORY

-Extreme lack of energy, I have a hard time getting out of bed and lots of times I don't have the strength or motivation to leave the house for 3-5 days at a time, which has resulted in depression. Some people and doctors I have talked to make the mistake of trying to tell me that my depression is the reason for my lack of energy, but these symtoms and issues started before the depression.

-Problems trying to exercise, I have tried to exercise to get more energy and possibly make myself feel better, but unlike usual people who exercise, I don't get the physical benefits from doing it. A lot of times I end up feeling worse after I have exercised. I have also started out slow like you are sometimes told to at first, but it seems to make no difference.

I'm doing absolutely everything I can to get my life back and  these symptoms as well as others most likely point toward another diseasesome under control because my parents are getting to the age where I am afraid that I don't have a lot of time left to recover before they pass on. The most important thing to me in this life now is recovering and having them able to see me get better and lead a normal life. I HAVE BEEN DEALING WITH AT LEAST ONE SET OF UNUSUAL SYMPTOMS SINCE I WAS 15 OR 16 YEARS OLD. IT'S VERY HARD AND PAINFUL FOR ME TO TELL PARTS OF MY STORY BECAUSE OF HOW LONG I HAVE BEEN SICK AND THE PHYSICAL AND MENTAL WEAR AND TEAR THAT HAVE COME FROM NOT BEING ABLE TO LEAD ANYTHING EVEN CLOSE TO A NORMAL LIFE FOR SO LONG.



searchingforanswers000 searchingforanswers000
31-35, M
1 Response May 18, 2012

Fibromyalgia, CFS, Cushing's, hypothyroidism, hormone inbalance... Hope this helps:)