You Know You Have a Special Needs Child When...

you reach into your pocket and think, "i forgot i had a nose in there" (my daughter has a trach. nose= thermovent)

you have your child's complicated condition boiled down to a 3 sentence explanation that any new doctor or nurse can understand

you can recite your childs medication regime on demand without even thinking about it

admitting and nursing staff know you on sight

you share that knowing smile when you see another parent out with their dear one.

sometimes, you feel angry at those ' normal' oarents who are freaking out about a broken arm or a 'minor' surgery..... then you remember what it was like your first time around

outsiders wonder how you're able to cope and do all this

you don't know any other way to live

death is not an abstraction to you

   

bluros bluros
31-35, F
5 Responses Feb 8, 2009

Oh but I bet you are a WONDERFUL mommy and you cherish each and every moment. <br />
<br />
Love to you both darlin'... always, MSP

don't be hard on yourself, parenting is hard any way you look at it. our culture overemphasizes quantity when it comes to the time we spend with our children. you are entitled to a life of more than just your child. nobody benefits when mom is worn down.

My daughter does not have serious medical issues, but I feel worn down mentally all the time. I shoudl be grateful that she is healthy, but I have no life!

miracles don't come in my daughter's size. her overlying condition is alobar holoprosencephaly.... fancy way to say that her brain didn't divide into two lobes in utero. from that stems her hydrocephalus (water on the brain) and diabetes insipidous (the salt version)

feel free to share yours too