I Have Acute Intermittent Porphyria
-Foggy thinking loss of attention
-Shaky hands
-Hot flashes, sweat like crazy
-Blurry vision
-Pain severe (body mostly lower limbs and back) also abdominal pain that puts me in the fetal position.
-Fatigue Severe
-Stiffness in feet and legs
-Trouble peeing varies from; hesitation, not peeing very much, peeing too much, bladder leaks. And dark orange/red and sometimes brown urine.
-Balance issues
-Weakness
-Constipation/ diarrhea
-Numbness/tingling in arms, hands, legs and feet
Chronic headaches/migraines
Nausea/Vomiting
Liver issues ( varying elevated enzymes up to over 700, horrible pain when in an attack
-Bouts of severe swelling in feet ankles and legs
-Urinary tract infections
-Short term memory loss
-White flashes with eyes closed. (Only happened a couple times)
-Shocking sensation if my head goes forward too fast.
-Sever spinal pain.
-Feels like I want to crawl out if my skin.
-Insomnia
-Stomach swells up
-Recently started having minor seizures
-Extreme mood swings and anxiety
-Itchy
-I have always had severe lower abdominal pain that doctors assume is endometriosis
-RLS
-Hypertension started at an early age (21)
-High pulse rate
- I have never been a sweets person and in the last couple years I have started craving candy and cake anything sweet. Only about 4 or 5 times a month but the cravings are so intense. I will wake up in the middle if the night and NEED to eat candy.
- light sensitivity in my eyes
This is all that I can think of. It has taken me about a month to even be able to think about these ones.
-Shaky hands
-Hot flashes, sweat like crazy
-Blurry vision
-Pain severe (body mostly lower limbs and back) also abdominal pain that puts me in the fetal position.
-Fatigue Severe
-Stiffness in feet and legs
-Trouble peeing varies from; hesitation, not peeing very much, peeing too much, bladder leaks. And dark orange/red and sometimes brown urine.
-Balance issues
-Weakness
-Constipation/ diarrhea
-Numbness/tingling in arms, hands, legs and feet
Chronic headaches/migraines
Nausea/Vomiting
Liver issues ( varying elevated enzymes up to over 700, horrible pain when in an attack
-Bouts of severe swelling in feet ankles and legs
-Urinary tract infections
-Short term memory loss
-White flashes with eyes closed. (Only happened a couple times)
-Shocking sensation if my head goes forward too fast.
-Sever spinal pain.
-Feels like I want to crawl out if my skin.
-Insomnia
-Stomach swells up
-Recently started having minor seizures
-Extreme mood swings and anxiety
-Itchy
-I have always had severe lower abdominal pain that doctors assume is endometriosis
-RLS
-Hypertension started at an early age (21)
-High pulse rate
- I have never been a sweets person and in the last couple years I have started craving candy and cake anything sweet. Only about 4 or 5 times a month but the cravings are so intense. I will wake up in the middle if the night and NEED to eat candy.
- light sensitivity in my eyes
This is all that I can think of. It has taken me about a month to even be able to think about these ones.