Alopecia Universalis - (Partial Salvation)

I was born with my disease Alopecia Universalis a hairloss disease that removes every hair from the body, causing complete permanent baldness, through the grace of God himself I somehow survived my declining spiral to oblivion. The main reason for it was due to the fact that I was three to four months premature, as I've said without God I wouldn't be here especially after my family prayed and prayed desperately for my survival, their prayers were answered and the doctors were amazed of my survival beyond the medical capabilities available in the late 90s, the doctors even admit that it was a miracle beyond their power after giving up on me, having tried everything from fluids, incubators, injections, medications, and blood transfusions. My survival rate being born so early is statistically and critically very poor so it would've taken a miracle for me to be among the living.

I needed something to fight death and my disease boosts my immune system to fight off hair follicles so that explains why I was able to survive on a medical note, also the disease isn't genetically built in my family so, it was gift from the Almighty himself though soon I knew true pain and suffering for my journey to survive through my life. My hair initially fell out at the age of two when my mother went to brush my hair, it frittered away until nothing was left soon after.

Later on in life, this caused much pain and misunderstanding of the world around me and those who interacted with me negatively. I was scared of what had become of me, confused of why I was cursed with this disease and broken when I endured intense bullying and name calls which shattered how I viewed people for a very very long time. I prayed to God that whoever has this life altering rare disease copes with it better than I have.

After a while people began to ask me questions pertaining to my appearance, some have asked the typical questions. "Why are you bald?" "Do you have cancer?" "Did you shave your hair?" I refrained from giving them the name of the condition because it wouldn't matter, they wouldn't know what it was so I dumbed it down to a simple. "A major hair loss disease that's permanent." I wished someone had asked questions like how does it make you feel to be different from everyone else? Or does being bald affect you in the public? Questions like those that would open up doors for me to release how I've dealt with this or what I've been feeling for so long.

This carried on until the end of High School. I had so much grief when trying to grow accustomed to being different physically and socially, times of the dark brought me miserable tears and absolutely terrifying levels of depression, at times I wanted to surrender and just give up. I would've never guessed being so physically different could result in SO much negativity, really surprising. As a result of the pain and misinterpretations I closed off from people in general, shunned myself away into the blackness. I bottle up my emotions and my feelings about how I feel about things, and it's difficult at the same time when I want to vent and tell others how I feel, but I just can't bring myself to do it.

I don't damn those who harmed me verbally or physically in fact I silently forgave them, for I completely had no idea why they would attempt to demoralize despair, humiliation, torment, abuse, apathy, intolerance and prejudice upon another human being. I withstood all of it and tried to gain a higher understanding, never retaliated because I knew they were taunting and mocking me for a reason, just wasn't completely keen on the exact cause of the discrimination upon me, it was as if I were being hated for no reason at all. The best thing they received was a cold icy stare from my eyes, they were emotionless years ago, people had a difficult time reading my emotions, called me hollow. But there were few who saw pain, sadness and even tears though I never desired the need to cry. I was numb to the majority mistreatment so it blocked away what I was truly feeling which in terms...resulted in my emotion cap.

As to how I manage it? I don't, I refused wigs, ridiculous products for hair growth and anything like that. I just accept my appearance as it is.

I have no clue how to really sum up everything but for the latter. When I last visited the doctor's in regard to my condition which was three years ago. He asked me whether I accepted the condition as it was or not considering there's no known cure for it. I overtime began to accept the results of the condition and see it was it was. Nothing can be done about it, I'm cursed to live with it forever so I told him. "Yes I accepted it." He applauded me, gave me a compliment saying the bald look suits me lol. I didn't really believe that but maybe he's right? Who knows.

Though I wonder to this day why I was spared when so many have died premature. I was born into this cruel and hateful world on death's bed, even with the transfusions I wouldnt've survived. It was the grace and mercy of God that I was able to survive today. I wonder what purpose he had set for me. Perhaps show people my disease doesn't make me any different from any other human being, race included. I can still care for people even after being shunned and ridiculed, that love of philanthropy will always exist within me, that I can accept myself and have belief in God because of my survival and that the entire time he was bestowing me the graces to survive the human conditioning. I wasn't alone in my suffering, because someone was there telling me to wise up, resist temptation of self-destruction, keep pushing on, never give up and paths will be made straight in adversity. To this day my mother calls me her miracle child, and the doctors within the hospital I was born in call me a fighter.

I had an idea that someone was watching over me over recent reflections of my dreary days, also learning that anything is possible if you so have a grain of faith in yourself, God, or whatever you choose to believe which I absolutely respect. But I personally know God put me through this experience to learn and foster wisdom, be strengthened in character like you would with upgrading the quality of a sword with a blacksmith and teach others humility, perseverance, understanding and more. I know, he will use my acquired strength to provide hope and empowerment for those who are too weak. My condition could be far worser than it is and I am grateful for my life. I think today, without my condition or my experiences because of it. I would not be the person I am today.

This is my story. Thank you for taking a leap into my past. I hope those who read this learned something. I sure have and it's brought me great strength and perspective about my life and the path of others who couldn't see where I came from.

Respects and blessings to the cyber/real world. From Lushiro~

I would also like to share a few scriptures that I believe correlate with my journey (skip past them if you like):

(John 9:1-5) As he went along, he saw a man blind from birth. His disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind? “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the works of God might be displayed in him. As long as it is day, we must do the works of him who sent me. Night is coming, when no one can work. While I am in the world, I am the light of the world.”

(1 Samuel 16:7) But the Lord said to Samuel, “Do not look on his appearance or on the height of his stature, because I have rejected him. For the Lord sees not as man sees: man looks on the outward appearance, but the Lord looks on the heart.”
Lushiro Lushiro
22-25, M
98 Responses May 4, 2012

Im so glad that you're a believer in God. It's REALLY important to remember that God Loves you. He/she will always receive you in his/her hands and hug you, because you are their child. (And you're a miracle) ... Dont let the world bring you down. Misunderstanding people are stupid and want to "fit in" into the dumb model of society. You are better than that. Remember that although you dont know me, I LOVE YOU TOO!

Amen! :) Love you too sister! :)

Written and expressed your experience with this so well. It gave me something to think about for sure. My faith is weak so my ideas do need yo be challenged a lot. I have become quite the skeptic; especially with my issues I have with feeling God is there and really cares for me etc. I always hang on to my relationship with God but the strength of what was there between Him and I has been tarnished. I can relate to some feelings you wrote of as well so thanks again for posting this at one time.

Thank you for reading! I want you to remember that our faith relies on Trust and Confidence in God/Christ no matter what happens in this short life :) Be strong, the journey is nearly over...if you want to talk about your faith-walk I am more than obliged to do so! I can give yourself a nice boost :)

Thanks, but I am a tough "egg to crack"?...IDK I just have a lot of hurdles. Ones others say I can get over, but some I know better. Feels like a tangled mess. The worst thing is others do have things just as bad if not worse and my scenario just seems the worst it could be for me. Little boosts then maybe...? Anything helps so thanks.

You're such an inspiration. Although life has been a struggle, I'm glad that you rely on your faith in Christ to see you through. You mentioned your parents praying for you. I've often thought my parents must have prayed for my well being quite earnestly before and after my birth. God has shown me so much grace during the most difficult times in my life. Later, it was my trusting His strength to see me through.

Our God is so amazing isn\'t He? :)) His love travels beyond sufering and pain because he suffers with us against the sorrows inflicted by this cold world, people shouldn\'t be asking \'Why does God allow pain and suffering\', they should be asking \'What kind of God allows himself to experience the same pain as mere mortals?\" Jesus wept didn\'t he? I am going with God weeps too...and feels all the pain that we do, he\'s omnipresent right? He is always with us...even under the greatest of tragedies and calamity...that gives us more comfort that he is present even then and now, holding us through the fury of the storm.

Well thank Christ you're alive... The world needs more good people. ^.^

Agreed we need more smiley faces too :)

This story gets a gigantic wow from me. WOW!!!

Haha what a shocking reaction.

Well, with 415 responses so far, I had to say something that was at least a bit different.

Haha fair enough. :) God certainly used this story for harvesting and bearing good fruit. :)

You're story and life is so inspiring. You are so strong. To be honest, I am so in awe of you that I am not sure what to write to convey my emotions to you. Thank you for sharing your story.

Thank you for reading! :)

Lushiro u r truly inspiring and i admire you. Your story touched my heart or many different reasons. My father had a serious heart condition which caused him to be physically different he was bullied and put down as were you. My dad suffered his whole life because of his condition. My dad wasnt suppose to live past his twenties but he did. He proves to everyone what he could do. My dad was a very religious man and incredibly talented. He was a famous fiddle player and he touched many peoples heart. As have you. My dad recently passed away on may 6th of this year. He died at age 56. And he died impacting everyone around him. I would love to get to know you. You seem wonderful:)

I am really sorry for your dad...I definitely understand his position. But he's a definite role model for you! And for me too...wish my father were more like yours. :) Live on in his image and make him proud :) He's up there watching, smiling, guiding and whispering dreams as you sleep. But...I am far from wonderful lol!

Thank u very much! I truly believe my dad is with me everyday... And yes you are too wonderful! I wouldnt have said it if i didnt believe it were true.

we are his firstfruits:)

Amen :) (John 15:1-27) - “I am the true vine, and my Father is the vinedresser. Every branch in me that does not bear fruit he takes away, and every branch that does bear fruit he prunes, that it may bear more fruit. Already you are clean because of the word that I have spoken to you. Abide in me, and I in you. As the branch cannot bear fruit by itself, unless it abides in the vine, neither can you, unless you abide in me. I am the vine; you are the branches. Whoever abides in me and I in him, he it is that bears much fruit, for apart from me you can do nothing. ...

see I'm not the only one who.admires you. :) and your so be a better person.

Lol seems that way :) We light up areas of people's lives that need shine and polish :P

Who is we? lol :P but yes ya do.

Yes you too silly! lol

Haha not me :) your the silly one

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look on the bright side, you will never have to wash your hair or wear hairnets!

lol you are so silly.

It is true, I HATE hairwashes or hairnets. and no more drag when riding a bike

Hairnets are usually resonated with cafeteria servers O.o

I was working at a Little League food shack.

Were there hairnets? :D

unfortunatlty yes. you do not know how bad a black hairnet looks in blond hair.


yeah, your special

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I will give you the truth: Your appearence is fine, I do not see anything wrong other than those people insulting you. That is just part of life, there will be good and bad, unfortunatly you have runt in to alot of bad. One time when I was in the military, I was shot in the arm, It left a spot on my arm that would not grow hair. And I have a natrally hairy arm, so it looked funny.
Sometimes we just have to laugh at ourselves I do it all the time because it is funny.

Yay, I am your 400th comment!

Thank you for sharing doolittle, sorry for your incident ._. comes with being involved in the war and turmoil I guess. And congrats :P

and one more thing, you baldness is way better from what I saw...

You have no idea...

... A hairless horse and German Sheperd

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I see why you often seem more mature than your age would suggest. You are one of the young people that I have come across on EP who has been through rather extreme things early on in life. If there is such a thing as good and bad karma then I am sending you some good Karma because that's all I can do. :-)

Thank you very much Wraith. I appreciate your comment and sentiments a lot. :) Karma to me is like a flip of a coin in life, you can land on the good or bad side, too much of both isn't a good thing, but too little of either is just as bad. Balance is the key. :)

Before even reading this I thought you are one heck of a young man. Now I know it for sure. Thanks for sharing your story and for uplifting the name of Almighty God and giving witness to His truly divine love.

Awww thank you sir. :) It was my pleasure, be blessed my friend! God is with us. (Immanuel)

There was a Green Bay Packer (american football) who had that same issue. Played for years and was well loved in our community.

Hang in there.

I surely am. And wow that's awesome!

Its awesome that you recognize God. You seem like a very mature soul. This is an inspiring story, thank u so much for sharing it. I'm tempted to share it w my son. God bless and keep you and yours. Great scripture too.

Thank you! Share it with whoever you can :) I hope it inspires your son somehow.

You must look wonderful in drag.

Keep dreaming lover boy :)

Ah you got me there, good game, sh!tface.

You hurt me feelings :( I'm telling mom.


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A powerful account,touching and well written throughout...
until the ending!
I've no problem with attributing your recovery to God
In my opinion: Blasphemy starts with quoting from the "Book of myths" John 15:18-19 :(

The scripture means something to me...but thank you for reading and understanding.

Wounded from the start
With every drop
Comes Strength Beyond The Usual

Those who have listened
Applaud You
Your Courage is Theirs

Shared, you have this moment
Nods to you
To what else may come.

This was wonderful to read...highly poetic. :) Thanks for sharing.

being hairless? that's legendary! lmao


God bless you Lushiro, your a strong believer. May your story affect others the way it has me.. <3


Thank you for sharing, and having courage in yourself and in God :)


Thank you for sharing this story! I hope everyone here reads this and learns from it :)
Think of the money we both save on shampoo! :D

Lmao too funny! You're welcome. :)

I wish i could give you a hug :). You're so strong and brave. Blessed you.

Aww thank you...(hugs)

May you only find the best from now on.

Thank you ^_^

I know how it feels to deal with people who are jerks,But I think it really is good that you accept yourself for who you are,somethings are just out of our control,You really are a strong person.

You are too! We all are :) Btw I linked you to the wrong story LOL!

I think your story and journey would inspire many who have been inflicted with this condition. May the light always shine on you.
"In a gentle way, you can shake the world" :)

Amen! :D



Thank you for sharing this with me and others. Maybe it will move others to open up about what they deal with. and maybe it will get people to see past the visual aspects of life that are not really important. God bless and good luck =)

Amen that's the way. :) Bless you too Steve!

Wow. What a beautiful and inspiring story. I have a real life friend who developed Alopecia in childhood. It's always been hard for her to cope with but I think she's a beautiful woman regardless.

Thanks for sharing. God bless you.

Amen that's the way. Thank you for reading! Bless you too :D

Admiring and respecting your strength and your example to us all. Thank you!

:) Don't thank me thank God! I wouldn't be here if it wasn't for him.

I do thank the Almighty for giving us the company of wonderful vessels, sometimes called humanity, to carry out good works. My late wife shared your condition as a side effect of chemotherapy, and like you chose not to hide her condition with wigs or hats. Some in the parish were offended when she took her turn as lector and complained to the pastor, asking why he was making this poor sick woman suffer in public? He replied that even if he agreed with them, nothing he could do would hold her back from giving witness ... and perhaps she was not the one bearing the shame.

I can remember when i was young, there was a kid at my school with that same problem. he lived on my hill, and everyone was very mean to him. I have always had a good heart and i tried to be his friend but he never excepted me. Now i think i may know why. He may have thought i was just trying to humiliate him at some point. I wish I could have got to know him, I really do. I have never judged someone by their looks because the real person is the Soul not the body. thank you for your story, your courage and mostly for you service to God. He most definitely has something profound for you to do hear. God blessed you. Hare Krishna

I believe the very same. It's a sad world we live in. People have forgotten to love, respect and cherish another, it's truly hard to believe humanity has fallen this low on another. I feel horrible for that kid. I hope he's doing better in life now. You tried your best to be there for him though the damage was probably too great for him to bear. You have a good heart indeed, everyone does, they don't realize how valuable it is. You're welcome. I am happy to share my tales with you all. :) Haha I'm sure...just waiting on the day it makes itself known. :) Be blessed and thank you for the comments! Namaste. Lushiro~

From someone who has to shave a lot, don't sweat it. Hair sucks, you're not missing anything. You're unique. Enjoy it.

Lmao I'll try my best. XD

For what it's worth, it takes longer to wipe with a hairy ***.

Too much information :P

Hey. That's real life. I shaved my butt once or twice, it was awful.

The growing back part, that is.


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i never really gave it much thought as to how this affected you earlier but i did imagine your pain and suffering and partly knew of it in you , and i feel for you because i care , and i know your a good guy also , why we have certain afflictions amongst us in mankind i have yet to understand , some to make us stronger , some to help us realize things , i don't know all the reasons but i'm glad your with us these days anyway , good to know you Lushiro

Thanks friend. :) Same to you!

Awesome. I've never heard of this before, but I can imagine how difficult it must be. I applaud your acceptance of it. Not many people can, and I respect that.

:D Thanks for reading!

I admire your story too. Congratulations for accepting your condition. I too, have found God and believe we are here for a purpose. Hugs and prayers to you!

We are all here for something big for sure :) Hugs and prayers to you too! ^_^

What a nice emotional story. You are so lucky to have been given a chance by God to live :)

Being bold for a guy in my opinion is not the end of the world it's ok many guys shaven their hair so just go with the flow and eat healthy cause what really matters is your health to look handsome not your hair. :) GOD WAS AND IS THERE FOR YOU AS WELL AS ALL HIS CREATURES.

You said it. :)

I admire your faith in God and the belief that you were saved and protected by him. It is not a faith I share as I would wonder why if God had the abilities you state, he did not have the ability to prevent you being born prematurely in the first place. It seems like a lot of suffering to endure for something that a different step in the beginning could have avoided.
I am not trying to criticise your belief or faith for there is a large part of me that wishes I could have the same belief in something. I am just explaining how I would view the situation. However you seem far more of an optimist than me and so your life events have yielded another positive.

I suffered for a reason MangoMonkey. It was a testament to my strength.

It is good you see it that way Lushiro.


Thank you for your story. You're an inspiration-

Wow thank you. o.o And you're welcome it was worth the share :)

Thank you for sharing. You are an inspiration.

You're welcome. Thanks for reading! And thank you...

Wow, dude...I had no idea you went through so much stuff...especially the "bullying" crap...I went through a lot of it, too [being half-japanese-american...], kinda like walking around w/a bullseye that you can't remove! A a kid, I was greeted with a shower of stones and chased w/bats...[prolly too close to the WW2, like it was my fault or somethin'?!!] and from grade school...[sticks and stones...], I had to constantly alter my routes, as I walked to and from school, or I was intentionally "late", ['cause everybody was "in" school by then], I feel for those of us, that had to go through such sick-stuff [rejection, from no fault of our own]...and what's worse, it still goes if generations of stupidity.. learned absolutely "nothing" from it...Well, at least these days, they are promoting "bullying" awareness and's a start, a small, but important step, [sorta]...better late than never...I'm just now getting around to reading this...I would've never guessed your past was so rough...your inner-energy is unbelievable...[lookin' good,Lushy!] cheers!.....

Your post...stands for itself...though there is much to be learned from bullying, it stems from past history and trauma of the attackers, we must learn to be pacifists and not feed into their pool of self-destruction or we'd wind up no better than they are...thanks for reading and sharing about yourself too! :)

Thank you, hugs, dude!....jb...

You're welcome. :) hugs. Lush!

This as a result made you become the person who you are today.I could feel the nastiness of those bullies because they see the world in a laser that anything that doesn't fit their defitinition of normal they attack. I feel sad for people who are so narrowminded. You and me have eyes. I feel that everything somehow has a purpose and for others to learn from.


want some of my hair, I have too much lol!

lol...ew no....keep it.

seriously, my hair is like John Stamos from Full House, that much

Too much information...

okay, just one thing, hair or without, you are still the good old Lushiro, that the world knows.

Thanks appreciated.

bald is hot anyway

If you say so....

besides, it is not how you look, it is your character that counts


and your good character is the greatest thing you share with the world, like heat from a radiator grille.




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Powder. Seen it. Not to disrespect your situation, but there are some that are in a much worse position than you appearance wise. I saw a boy couldn't be more than 14 or 15 with more than just an overbite. His upper palate was so overgrown it almost looked like a beak. It's very hard to go through life with a deformity. You get bullying of all sorts. I got it just for wearing glasses and having a "regular" overbite. I was the school punching bag for any juvinile delinquent that had a bad day. But I survived it nevertheless and went on to do great things like building houses, racing cars and surviving alcoholism and drug addiction. I definitely have Gaurdian Angels looking out after me as I could have been dead several times but for the Grace Of God. <br />
<br />
Thanks for your story; T.P.

You're welcome...and thank you for reading, hope your life is better off than it was.


Hey Lush, this post made me cry. Not with pity but just awe and admiration at your strength and character. I've got so much respect for you. xoxxo


Anyway...bald is sexy :D

LMAO the world would beg to difer &lt;.

&lt;---- This angel knows the truth ;p (Esp after one hot evening with a bald french guy in the South of France ;) hehheehe)


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really you have been a good person to me. I don't care what you look like and will never judge or make fun of you. You don't deserve hateful treatment. I wish I could take it all away. Thank you for trying to help me. You are most kind.

You have persevered through your pain and depression without cruel judgement on people, many people go to their grave bitter over things like this...and you have overcome it with grace and courage at an early age. I really admire you for sharing this story. You're a special person, I can tell.

Aww thank you...I appreciate the commentary... :))

As I read this, I was crying. You are a true inspiration. You have gone through so much, and unlike most people, don't care about what you look like. You are amazing, and God created you perfect. :) I swear, when I read this I was thinking "I could just hug this man." :) I hope that the ridicule of those ignorant people stops and they realize what an amazing person you are. :) *Huggles*
~Roxy, and my alters, Tim, Kira, Emily, Harriet, Olivia, Jacob, Kenneth, and Grace :)

Sorry for the tears. :( Thank you for the commentary...! ^_^

I admire your strengths. I was born with Cerebral Palsy in my legs and walk with a limp. Kids teased me, of course. I avoided them, and it hurt me a lot. So I'm happy you made it through school even though it was hard on you. You have become a.strong person. I applaud that.

Thank you. Sorry for your complications, hope you're better. ^_^

Hats off to you, bravo ^_^


Bald is cool. =) *hugs*

Idk about that...*hugs*

lmao not my thing but it seems to suit him oO

I hope that you know that there is something very special about you. You are so inspirational and so wise beyond your years. I have no doubt that there is something really wonderful in store for you in this life. You are a teacher of so many things like courage, and honesty and forgiveness and compassion and you have a clear understanding of what is really important. The list of the gifts and insight you have are endless.. You will really make a huge positive difference in this world. Don't ever change~

Wow....thank you so much...I really hope I can do something big for this world it's in so much pain I want to heal and change all of it back to how it should be, a utopia for people to live, love, laugh and be happy forever. That is the kind of world I want to see, not what I had to endure, your post inspires me and gives me strength, if not bolsters what I already mustered! Thank you again!!!! Lushiro won't change for anything.

Hello Lushiro, I came to look at your page because I notice how you ask some interesting questions and your name is beautiful. Reading this post shows me how the pain and abusive behaviour you suffered growing up has shaped you into the thought provoking adult you are.
I think we all have 'life lessons' to learn on our spiritual journey. Perhaps you are an old soul so it is your turn to learn one of the hardest 'life lessons in our cosmos. Seems to me you achieved understanding. Acceptance of your condition and appearance must be almost impossible when people today are so shallow and desirous of beauty and physical perfection. But you have acceptance. Your soul must be as beautiful as your name. That is all that really matters because our time here is fleeting but our spiritual journey is without end.

Thank you for the post. It's appreciated!

you were born for a reason like this way,
to tell people maybe it is not all about physical appearances,
and the material world of superficiality,
there is something deeper inside,
that looks more beautiful beneath the veil of physical illusion.

I like this a lot.

i salute you* You're so brave:)


You're so strong to have gone through that and come through the other side. I admire you. It's sad that some people couldn't understand you/your condition or feel empathy or sympathy. But the amazing part is that instead of reacting rudely or such, you stayed calm. You're brave. You're inspirational. This story is sad but you still come through with a happy and grateful attitude~something not many could do. Thank you for sharing your story with me.

You're welcome, thanks for reading!

Anytime :)

*fist bump* dude you rock! You are definately stronger for a reason, if it's only to inspire and reassure others on here that you CAN make it out of bad situations, you have done an excellent job with this story! Im proud for ya man! you are for real and I appreciate your story!

*fist bump* Wow...thank you for the post! I appreciate the kind words. :-)

I don't know what to say, but I'm proud of you.

Lol! Thanks :-)

chemo, for me but it has grown back differently but back


thanks, just pride not a option

Eitherway glad you stuck around! :)

All the respect in the world goes to you brother!Anyone who would bully anyone just because they are bald are not even worth a thought!They are infantile!Lushiro,for a young man your age,you are very wise and I enjoy your personality!We are alike in many ways!No,I do not suffer any diseases or conditions(as far as I know)though I have suffered bouts of insomnia and depression.I am glad to have virtually met you and am glad you are here now!HUGE BEAR HUG MY FRIEND AND BROTHER!REBEL YELL!!!!!

Trying to make a rebellious warrior cry? Well it's working...haha. Yes we do have a lot of similarities, pretty awesome!...I'm glad you don't have any afflictions that would interfere with your path for world peace!!! Insomnia and depression are my curses too so you're not alone in that. :-) Likewise you are an amazingly spirited human being, full of charisma and charm ;)

GRIZZLY hug back! REBELLLL!!!!!!!!!!!!!!!! :DDD

You ******' rule!

Spitbackattcha! (Had to do it LOL) =P


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We are the same....but you are better than me, because you can still be happy. You are so lucky. :')

No, no one is better than anyone. I just discovered my own means to be satisfied with my life.

Will you show me how? I'd like to be happy. :')

You can't see it, you have to find it.

Can you help me find it?

I can't it's something only you can do, find things that make you happy.

Alright. :)

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I'm sorry you have this condition. When we are different, society tends to look down on them and they are a target for bullies. When people begin to look inside, they find the real person regardless of how they look. I can tell from your story that inside you there is a wonderful person.

No. Don't be sorry. No reason to be...I can almost say I'm blessed for this condition, it taught me and gave me a lot of perspectives, without it I probably wouldnt've turned out the way I did. But all you say is true, thank you for reading. Everyone is wonderful if not on the outside, then on the inside, that's where it counts! :)

Lushiro, I just did a quick study on this on wikipedia... just a cursory look to see what it's about. I'm sorry that you have had unpleasant experiences because of your condition. I have, too. I have cerebral palsy in my legs, and was teased a lot when I was a kid. There were a few good friends that thought I was "cool", as I'm sure you might? Anyway, just wanted to give ya some recognition!

We never asked for these damn afflictions. But we trucked our stuff, I have made a few good friends I guess though they come and go. Have a story about that too. :) Thank you for reading and researching, much appreciated! God bless Jurg.

:) Awesome, you called me Jurg, not "thejurg"... that's what I go by on yahoo, in case ya wanted to know.

Lol cool! :)

You are one very wise young man,I am delighted to see that you have accepted your condition,in any case most men start going bald by 30.You don't sound depressed at all about this which is terrific,God was with you when you had those Blood transfusions.He will be by your side unseen all your life.I am so impressed with your mindset,cool,calm and collected.You can achieve anything you set your heart on.<br />
Good luck and best wishes.

Thank you for the post Garvan! I agree 100% but I still need to work on my confidence level...maybe then I can achieve my objectives. :)

your just b loody marvelous and one in a there, be proud of what and who you, cos i think your great<br />
<br />

Haha thanks, you too pal.

you know what................ him above def has a purpose for you! You are a gifted young man with a a great personality, deserving the best out of life and what it may bring forth for you!

my total respect to you as ever

I can only hope so Pete...

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I know your not on my circle... But i decided to check your page sorry to hear about this... Neither i was aware that there was such disease. But then again you always learn something new every day right . Im glad you're coping with it, i guess its nice to say you're a miracle baby... Best wishes. ;]

"Miracle baby" Hearing this brings back memories of when the doctors always referred to me as a miracle, they're right. I wasn't suppose to survive this...but turns out I did and now I'm still here. Thank you for memory trip and for reading! Yes we do, its fun to learn right haha. Have a good one! :)

I'm sorry to hear that I hope you are finding happiness now of days.

I try. Thanks for reading!

Didn't you sue the hospital or wherever the transfusion was given to you or anything like that?

No. I should be grateful for them because without those transfusions I would've died no doubt. And I can't blame them technology wasn't efficiently adept like what we have no so I do not reprimand them for it. I'm just thankful I survived.

I see. Ok then

This is the way "I" see u .....UNIQUE! €:-}

Aww...thanks. :)

U got it! €:-}

Lol thx for the add RockStarCrazeHouse =P

My pleasure Lush! €:-}

Should be interesting. ;-)

Very! €;-}

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You brave guy. Things happen for a reason. At least i tend to think so. And here's some info for ya- any person that values looks over personality isnt worth your time. Looks fade. You're a rare gem and thats the way it should be.

Couldn't agree more with your post Ediez :) I really appreciate it!

The small minded shallow idiots of this world will always treat you as something different, you need to not let this bother you, these people are not worth even thinking about, for me the 'different' people of this world are the interesting ones, lol i've always considered myself different, besides, there's nothin wrong with bein bald, i've been taking a razor to my head since i was 19, bein smooth is great.. :)..

Lol I guess it's cool, but then...there's complications when it comes to women. The majority only go for looks and money so.....

The 'majority' are not worth worrying about and your attidude will see you through, your a good guy, that won't go unnoticed by the ladies who arent in the shallow, money obsessed brigade..

Thank you Womble. :) I appreciate the posts!

My son has alopecia. It tears me apart.

Which version does he have? It's a devastating disease all together...I know...

there is totalis, areata, universalis...think that's the majority of them.

I don't know. His is auto-immune. It started when he was about 14. For ages he tried to spray to cover gaps. Then one day, aged fifteen, he got up in the morning and shaved it off and went to school. I was so incredibly proud of him. But it has affected his social confidence - he's 24 now, and such an amazing person. Everything girls look for, he has. He's sensitive, intelligent, nice, has values, witty.... but girls get less shallow as they get older. They start to see through the perfect looks and start looking for hearts. That's where you and he have an edge.

Me and him... are...alike. We accepted our conditions apparently. It affected our sociality with people. And everything else you described, wow! Yes I know females are beyond picky and judgmental when it comes to who they are attracted too. Looks mean crap it's about personality and character.

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your care and kindness shines through the monitor ... privilege to be your friend and fellow artist .... don't listen to the creeps

I am honored to be in your presence Hatter, you are a legend in the making. I return those same regards to you friend....I'll wear my anti-troll headphones for the creeps... :)

Yeah I know what it's like to have people look and point sorry to hear but it seem like you're doing okay I was bald for awhile cause of cancer but my hair grows back even faster now I should consider marrying someone who can cut hair

Yeah I'm much better off than I was before. You're a cancer survivor? Bless your soul Grayday you're one of a thousand miracles to come out alive, most don't get a chance to tell the tale. :) Lol you might do well with a salon girl then, so the fireworks can commence. ;)

fireworks? I'm still waiting for a sparkle

People that judge you by your lack of hair aren't worth worrying about. I've shaved my head voluntarily and plucked out all my eyebrows. I am different and people either accept that or do not and leave me alone! You are brave and seem like a wonderful person. You aren't defined by your disease. No one should be. physical or mental..

I'm guessing you despise your hair? So you feel better without it. More..."free" if that's the right term for it. I agree it's more of your personality, morals and good deeds you do that define you as a person than something internal. People aren't aware of this.

Well I guess I did at the time. It was damaged from bleach etc and I just wanted to start over. Believe me, I'd love to have waist length hair..I'm growing it out again. Yeah I feel better without body hair. Even my eyebrows. Its feels cleaner.

What? You can't be talking about HAIR, right? There are those of us "out there" who couldn't give a sh*t if you had hair or not. Hair does NOT define who you are! I understand if you feel self-conscious, but i am here to tell you that there is an entire population of people who care far more about your character than your looks! Be bald and be proud, because you are Lushiro ... AS IS!

I needed to hear that, thank you. :)

Glad to have you to sweetie!


Lush... I have gotten to know you..the personality..and you are fabulous.! Even if you throw tomatoes at me! <3

Aww thank you that made me smile :) You are a kind soul! Glad to have you on the boards! :D

I was diagnosed with it since I was five. I am 33 now. Now it is all over. I am a woman. It use to feel like a curse when I was younger. I was picked on by boys and girls. I wore a wig and kids would pull it off. The height of cruelty is when people just did it to do it. I learned thought that it has positives. I think it has made me a better person. I am non-judgmental about my world. I have lots of loving friends who accept me and I accept for their little things. I am welcoming to the world around me. What sucks is the limitations. I am afraid to go on rollercoasters and swim in the beach. I dont tell people all the time that I wear a wig and I wish I was brave where I didnt care...but I do. I can't handle stares and people whispering. It isn't the easiest life but it is my life, so I try to rock it hte best I can. Everyone has something, right? <br />
<br />
Well, thanks for sharing your story and letting me share mine. Best of luck to you.

We have both went through the many negatives of this, but we see positives too :) I am grateful for you sharing your story. Lets me know I'm not alone in this journey. I am not sure what life is meant for us AU victims but...we gotta make the most of what we have, though we still look back and see the hurt and pain. I thank you once again, my regards and respects to you. :)

People in general never have respect nor consideration for each other. Its very hard to find people that wouldnt comment on your condition negatively. Im sorry to hear that you have it because it gives you such a hard life yet you still have a life because of it. I could only imagine if i had a condition like that. But look on the bright side, from what ive seen, youre a very talented short story writer :) i enjoyed reading one part of your legend story!

So true. Thanks Datone! ;) You just made me smile. Think you'll keep reading it? lol

wow, i didnt know you were premature when i posted that answer to your ep question! at the risk of redundancy, i praise God that He blessed the earth with a man of your strength and character, no matter WHAT you look like. if God HIMSELF can say that He created you and that you are "fearfully and wonderfully made", wouldn't we be fools to not believe Him? He knows all!! You are GORGEOUS to Him. You are His child! i just picture God up in heaven sometimes with these precise little tools, tinkering away on us....It's unfathomable that He would sit in reverence and fear of US.

Thank you for your reply. It's very uplifting.

I think speaking out about yourself and telling about yourself and being here one xperience sharing .. means that you are coping and succeeding. You know sometimes your true personality comes out online better than in person..( I am shy) You deserve all these praises..for being honest and still be a good person.

Thank you for commenting Espalumna, I agree because we don't have to confront our fears in reality is why we can be more comfortable in expressing ourselves online :) I am...sort of shy myself...still cracking the egg shell bit by bit! It takes time and progressive confidence.

If I have a child I swear I want them out of public school by 6th grade, that's when kids turn freaking nasty.<br />
You have no hair...that could actually be quite striking... <br />
I had alopecia aureata at one point...<br />
It mysteriously went away when I lost some weight in the form of the naggy, controlling ex-boyfriend, whom I moved out on.<br />
<br /> You might find that interesting.

I am very happy to see there are actually others here with Alopecia...even if it's of a different type. This is certainly interesting! Thank you for sharing! :)

hello, lushiro,<br />
<br />
i read your story after you sent me a poke<br />
<br />
............... i assume that meant you wanted me to notice you.<br />
<br />
your story is interesting<br />
<br />
.................... you went through a difficult time from birth onwards<br />
<br />
i would be interested to share information on what it feels like to be outside<br />
<br />
................. different<br />
<br />
......................... ostracised<br />
<br />
but<br />
<br />
............ i will not pity you<br />
<br />
.................... nor sympathise with you<br />
<br />
i consider pity and sympathy to be disrespectful<br />
<br />
and we all deserve better than that.<br />
<br />
also, i believe the greatest difficulties come into our lives for a reason<br />
<br />
........ something that we can learn from<br />
<br />
............... develop from<br />
<br />
.................. never as punishments from a vengeful god<br />
<br />
i believe that life has a value, a purpose <br />
<br />
............. not necessarily what the main religions teach<br />
<br />
respect to you,<br />
<br />
from robbie

Thank you Robbie, I appreciate your comment. It is what I believe in as well, my regards. :)

If you get jack of all the questions you should just simply have a t-shirt made up "Yes it's Cancer now F--K off!"

Lmao awesome idea :D

Yeah and if they actually do come up to you and say...
"so you have cancer dood?" you say..."I see you read the first line (pointing to it) but you seem to have missed the second part.....

Hi Lushiro I enjoyed reading your story it was so well written and interesting. I went to school with a guy who has alopecia universalis and I think like you he was bullied. But like you he also had a strong personality and went on to do well for himself in life and now is a partner/executive director in a Larg Swiss company called Accenture. Last year he came over from Switzerland to be a guest speaker at the schools prizegiving and he also presented various prizes. His talk was amazing and I was struck by how charismatic and attractive he was as a person. Confident and self assured he has never let his illness hold him back so that was one in the eye for those bullies!

i Hello Egg. Thank you for the kind words.

It's so sad when I hear about another AU victim going through similar destruction...but evidently he was meant for great things still. Hearing this just gave me new motivation that nothing can hold you back so long as you step on it and keep a firm grip and never move that iron boot. Thank you for your contribution! :)

Hey You're welcome. Glad to have brought you motivation :0)

Anyone who cares isn't worth bothering about.<br />
It would never bother me and if people had been bullying you at my school they would have had to have had words with me. Just remember their idiots, your awesome and you should get on and do what makes you happy.

I know, how it feel to being socially different...& how it creates negativity...but u dont worry, there r lots of men who shave their heads..dont bother abt it so much..i know, even when we dont want to take into our heart, but people make us to do that...i think baldness 4 men is not such a big issue..even i like bald men :-)

Thank you all for the sentimental replies and feedback I appreciate every last one! You are all awesome people :) Makes writing that story all the more worthwhile!

I'm sorry about your disease, from your article i can see you're really strong and brave. Especially considering the bullying you had to go through. I didn't go to an American high school, but from what i've seen from movies, i imagine it's very hard to cope with. Your story's very moving, i like your honesty. Take care.<br />
<br />
P.S: The doctor's right ! We ,girls, find bald guys very hot ! LOL.

I I must be on the wrong side of the planet then =/

If where you are, the girls tan themslves orange, and it's considered attractive, you probably are on the wrong side ! GET OUT OF THERE NOW ! JK

paint yourself grey and get red contact lenses and walk up to policemen and say "Take me to your leader" :)<br />
<br />
Seriously, inspiring story.

I Lol they'll take me as an alien from outer space.