Alopecia Universalis - (Partial Salvation)I was born with my disease Alopecia Universalis a hairloss disease that removes every hair from the body, causing complete permanent baldness, through the grace of God himself I somehow survived my declining spiral to oblivion. The main reason for it was due to the fact that I was three to four months premature, as I've said without God I wouldn't be here especially after my family prayed and prayed desperately for my survival, their prayers were answered and the doctors were amazed of my survival beyond the medical capabilities available in the late 90s, the doctors even admit that it was a miracle beyond their power after giving up on me, having tried everything from fluids, incubators, injections, medications, and blood transfusions. My survival rate being born so early is statistically and critically very poor so it would've taken a miracle for me to be among the living.
I needed something to fight death and my disease boosts my immune system to fight off hair follicles so that explains why I was able to survive on a medical note, also the disease isn't genetically built in my family so, it was gift from the Almighty himself though soon I knew true pain and suffering for my journey to survive through my life. My hair initially fell out at the age of two when my mother went to brush my hair, it frittered away until nothing was left soon after.
Later on in life, this caused much pain and misunderstanding of the world around me and those who interacted with me negatively. I was scared of what had become of me, confused of why I was cursed with this disease and broken when I endured intense bullying and name calls which shattered how I viewed people for a very very long time. I prayed to God that whoever has this life altering rare disease copes with it better than I have.
After a while people began to ask me questions pertaining to my appearance, some have asked the typical questions. "Why are you bald?" "Do you have cancer?" "Did you shave your hair?" I refrained from giving them the name of the condition because it wouldn't matter, they wouldn't know what it was so I dumbed it down to a simple. "A major hair loss disease that's permanent." I wished someone had asked questions like how does it make you feel to be different from everyone else? Or does being bald affect you in the public? Questions like those that would open up doors for me to release how I've dealt with this or what I've been feeling for so long.
This carried on until the end of High School. I had so much grief when trying to grow accustomed to being different physically and socially, times of the dark brought me miserable tears and absolutely terrifying levels of depression, at times I wanted to surrender and just give up. I would've never guessed being so physically different could result in SO much negativity, really surprising. As a result of the pain and misinterpretations I closed off from people in general, shunned myself away into the blackness. I bottle up my emotions and my feelings about how I feel about things, and it's difficult at the same time when I want to vent and tell others how I feel, but I just can't bring myself to do it.
I don't damn those who harmed me verbally or physically in fact I silently forgave them, for I completely had no idea why they would attempt to demoralize despair, humiliation, torment, abuse, apathy, intolerance and prejudice upon another human being. I withstood all of it and tried to gain a higher understanding, never retaliated because I knew they were taunting and mocking me for a reason, just wasn't completely keen on the exact cause of the discrimination upon me, it was as if I were being hated for no reason at all. The best thing they received was a cold icy stare from my eyes, they were emotionless years ago, people had a difficult time reading my emotions, called me hollow. But there were few who saw pain, sadness and even tears though I never desired the need to cry. I was numb to the majority mistreatment so it blocked away what I was truly feeling which in terms...resulted in my emotion cap.
As to how I manage it? I don't, I refused wigs, ridiculous products for hair growth and anything like that. I just accept my appearance as it is.
I have no clue how to really sum up everything but for the latter. When I last visited the doctor's in regard to my condition which was three years ago. He asked me whether I accepted the condition as it was or not considering there's no known cure for it. I overtime began to accept the results of the condition and see it was it was. Nothing can be done about it, I'm cursed to live with it forever so I told him. "Yes I accepted it." He applauded me, gave me a compliment saying the bald look suits me lol. I didn't really believe that but maybe he's right? Who knows.
Though I wonder to this day why I was spared when so many have died premature. I was born into this cruel and hateful world on death's bed, even with the transfusions I wouldnt've survived. It was the grace and mercy of God that I was able to survive today. I wonder what purpose he had set for me. Perhaps show people my disease doesn't make me any different from any other human being, race included. I can still care for people even after being shunned and ridiculed, that love of philanthropy will always exist within me, that I can accept myself and have belief in God because of my survival and that the entire time he was bestowing me the graces to survive the human conditioning. I wasn't alone in my suffering, because someone was there telling me to wise up, resist temptation of self-destruction, keep pushing on, never give up and paths will be made straight in adversity. To this day my mother calls me her miracle child, and the doctors within the hospital I was born in call me a fighter.
I had an idea that someone was watching over me over recent reflections of my dreary days, also learning that anything is possible if you so have a grain of faith in yourself, God, or whatever you choose to believe which I absolutely respect. But I personally know God put me through this experience to learn and foster wisdom, be strengthened in character like you would with upgrading the quality of a sword with a blacksmith and teach others humility, perseverance, understanding and more. I know, he will use my acquired strength to provide hope and empowerment for those who are too weak. My condition could be far worser than it is and I am grateful for my life. I think today, without my condition or my experiences because of it. I would not be the person I am today.
This is my story. Thank you for taking a leap into my past. I hope those who read this learned something. I sure have and it's brought me great strength and perspective about my life and the path of others who couldn't see where I came from.
Respects and blessings to the cyber/real world. From Lushiro~
I would also like to share a few sc
(John 15:18-27) - "If the world hates you, just remember that it has hated me first. If you belonged to the world, then the world would love you as its own. But I chose you from this world, and you do not belong to it; that is why the world hates you. Remember what I told you: "Slaves are not greater than their master.' If people persecuted me, they will persecute you too; if they obeyed my teaching, they will obey yours too. But they will do all this to you because you are mine; for they do not know the one who sent me. They would not have been guilty of sin if I had not come and spoken to them; as it is, they no longer have any excuse for their sin. Whoever hates me hates my Father also. They would not have been guilty of sin if I had not done among them the things that no one else ever did; as it is, they have seen what I did, and they hate both me and my Father. This, however, was bound to happen so that what is written in their Law may come true: "They hated me for no reason at all."
(Luke 6:22-23) “People will hate you because you belong to the Son of Man. They will make you leave their group. They will insult you. They will think it is wrong even to say your name. When these things happen, know that great blessings belong to you. You can be happy then and jump for joy, because you have a great reward in heaven. The ancestors of those people did the same things to the prophets.”
(John 9:1-5) As he went along, he saw a man blind from birth. His disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind? “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the works of God might be displayed in him. As long as it is day, we must do the works of him who sent me. Night is coming, when no one can work. While I am in the world, I am the light of the world.”
(1 Samuel 16:7) But the Lord said to Samuel, “Do not look on his appearance or on the height of his stature, because I have rejected him. For the Lord sees not as man sees: man looks on the outward appearance, but the Lord looks on the heart.”