I Have An Undiagnosed Child

Constant Bumpy Road.

By: luckypickle

Written on July 19th, 2009

Things get better only to get worse again. My little man was starting to stool everyday until yesterday. His belly swelled up and he didn't eat or drink much at all. It was a struggle just to get him to take his meds. (please read other posts to know what I'm talking about) So about 5:30 I had to give him an enema. He never misses his dose of laxatives so I don't know what is making up get impacted. And I don't understand how he can get so backed up in just one day. His stool had a little blood in it. But since the doctors around here don't know what is wrong with him we had to call his GI. She told us to give him the enemas with the mira-lax just to keep him cleaned out, and to ask the geneticist when he goes at the end of the month.

Last night his cramps were so bad he ended up sleeping with me and I had to rub his belly most of the night. A warm bath didn't help any. Still he woke up throughout the night crying from the pain. Tylenol didn't do much either. So today he is sleepy.

I wouldn't wish this on anyone but I honestly think that if some young girls had to take care of a son like mine for a week they would think twice about having kids.

I don't see how anyone, especially a baby, can be so happy when they are so constipated. He must be miserable. But then he's been like this for so long that he doesn't know anything else. I hope we finally get some answers soon.

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By: luckypickle

Age: 26-30

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4 responses

Evania

I am so sorry lucky. Bless you and his heart. It humbles me to read your post. May you come across the right person to give you a correct diagnosis and treatment so he and you don't have to suffer anymore. {{HUGS}}

Jul 20, 2009
1 like
luckypickle

thank you so much both of you. he actually loves prunes and eats them daily. and berries. but he hates apples, applesauce and juice. weird little guy. never thought about yogurt. i'll give that a try.

Jul 19, 2009
2 likes
LKRK

He is so lucky to have you for his Mom. You are doing a wonderful job. The only suggestions I can make, which MIGHT help are:

1. Try some Yogurt. It has beneficial bacteria which will help his food digest.

2. Make sure you give him plenty of water. It's totally amazing to me how good this works.

3. Make sure you have him fruit, at least one serving per day, any kind he likes and will eat.

I'm not a doctor, I'm just a concerned friend and sincerely hope this helps both of you.

Good Luck & God Bless,

LKRK

Jul 19, 2009
2 likes
piscesgal

Awww Pickle, I'm sorry to hear about this(I read the other posts too). It really is the worst when it's a child that has to go through something like this. I hope that they can get this all figured out, or at least diagnosed soon. And I hope the little guy keeps the upbeat attitude, I'm sure he will, sucks that he's had to always deal with this, he is lucky to have a great mom like you, best wishes.

~Piscesgal~

Jul 19, 2009
1 like

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