I Struggle With Arachnoiditis But Maybe I Can Encourage Someone and Someone Can Encourage Me.
I am 20 years old my name is James Schwartz and was very active growing up as a kid playing so many sports. I would love to hang out with my friends every day and I would play sports constantly and when I wasn't playing sports I was watching them. I played baseball, ice hockey, roller hockey, soccer, football, basketball. I loved going to youth group church for younger kids with my friends. I was always a very healthy kid. I have only broken one bone playing basketball. It was the craziest thing one day out the blue in September 2005 I complained of back pain, no injury occurred or anything and the next thing I found out is that I had 3 herniated discs but one was pressing on a root and I couldn't walk anymore so they had to do surgery. The surgery was done on L5 S1. I had only 6 months of relief. Then the pain started gradually coming back and getting worse and into the legs again and then on Valentines Day of 2007 is when these strange symptoms started and when the pain in my back and legs got so severe. My mom asked me to help her to clean some glass windows in our leaving room. So when I was cleaning then the bottle of Windex dropped out of my hands I had know strength whats so ever in my hands, they were blue and also were freezing cold. So I was scared went up to my parents room and told them what was going on they gave me motrin and a hot wash cloth for my hands. Then my feet were become blue and cold. So they took me to the local hospital office over here and they were mentioning Guillain-Barre but I didn't have most of the symptoms so they released me that same night with no answer. Then other symptoms were occurring. I have tightness in my biceps, my entire face ,throat, neck. We went to UCLA, Cedars Senai, and at least 15 other doctors trying to get me diagnosed because I was getting worse and every doctor was getting stumped and then some have the nerve just because they can't figure it out say its in you're head. So my mom had a great idea and contact all the news stations and show them how much pain I am how no pain medicane works for me and how desperate we are for help and for a diagnose and and this time I was bed bound and it worked and abc 7 news came to our house in semptember of 2008, and in october of 2008 a doctor from John's Hopkins wanted too see me and we were so happy and when he saw took some test he diagnosed with arachnoiditis. I was so happy just to finally get diagnosed. When we first heard how devasting the disease is and could and being we were devastated but then I told my mom what for we have The Lord on our side and He is going to heal me and I don't when or how because it's all in his timing but I know He is going to. When you're feeling down just turn to Word or pray, or even worship. Today I am not bed ridden anymore. I walk around the house without my walker, slowly and still really painful but I am so thankful. I can take my own shower, dress my self. Feed my self without those special appliances. The thing is I do all of these things but I still have severe pain. This disease has made me a stronger person mentally, physically, and spiritually. It has made me appreciate life alot more and not take anything for granted. You have to be thankful for what you have not what you don't have. When my pain gets better I want to tell my story to others and I hopefully motivate them.