I was recently married and working at a full time job at a medical clinic. We were having our yearly wellness exam for our insurance. Not even 2 days later, I received my results through Overnight Fed-Ex. I knew that wasn't a good sign! My AST and ALT were both in the 400s. Not having any symptoms or noticeable problems at all, this shocked me! The normal levels are between 0 and 40, obviously there was some kind of problem...
I proceeded to go through the usual steps. I went to my primary care doctor, who then referred me to a GI specialist, while also drawing lots and lots of blood tests in the process. I was scheduled for a liver biopsy about 4 weeks out. Once they received my latest lab results, they had found that my numbers had jumped from the 400s to the 1100s! My biopsy was pushed to the following Friday...
After the biopsy, things became very frustrating. At this point, I was on 20 mg of prednisone, and discovering the terrible side effects that came with it. My biopsy results were sent to a national lab to get "conclusive" results. I was referred to a specialst in Oklahoma City,OK where the specialist was still unable to give me conclusive results, even a month after I had had the biopsy done. Finally, it was decided I had two liver diseases: Autoimmune hepatitis and Fatty Liver Disease (or NASH.) The big kicker with this news was that my husband and I had been talking about trying for a baby. As all of you know who have this disease, the medication regimine is prednisone and imuran (or azothiprine) which neither of these drugs are safe to get pregnant on...
It's been 3 years since I was diagnosed and my AST and ALT numbers are still all over the place. I am currently on 10 mg of prednisone and 75 mg of azothioprine. My numbers, which were getting close to normal, recently shot up to the 400s again. It's very discouraging, as if all those medications I have been on for 3 years have done absolutely nothing...
My husband and I have been married for 5 years now. Not sure when we will have our baby..or my dreaded thought, IF we will have our baby...adoption is always an option..but my heart's desire is to be pregnant and become a mom to my own child that grew in my womb. As silly as that sounds...it's one of my biggest dreams in life.
I know that God gives us the desires of our hearts and I trust in Him to keep His promise...I am a believer and sometimes it feels like all I can do is hold onto my faith in God. He is my rock and my refuge...and He has a plan for this whole thing! I have read some other blogs and a lot of people have been way worse off than me! I just feel the need to reach out for support and to talk with other people who have this disease. Hear stories of the highs and the lows of having this disease. I'd like to offer support as well as receive support...so that's me.
Thanks for taking the time to read this :)
Ilovetosing626 Ilovetosing626
26-30, F
Aug 22, 2014