Thinking I Have This

Looking to find a doctor that can test for this. The allergist is calling me back, they stated none of my insignificant food allergies etc should have created the reactions I am having. Haven't called the dermatologist yet but that would be my next option I guess if the allergist and my obgyn dont' respond back with a positive about doing the test to confirm or rule out. I will tell you this, I can't figure out what it is if this isn't it. The symptoms are just way to similiar.
4Bailey 4Bailey
46-50, F
6 Responses Jul 20, 2010

I've received over 50 emails since posting here but for some reason they all keep coming thru blank at the address I left, not sure what's up with that. Here is my personal email to contact me:<br />
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loricody1@comcast.net<br />
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My facebook account devoted to APD/AIPA sufferers with all of my links, website, story, research, treatment is:<br />
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http://www.facebook.com/home.php#!/profile.php?id=100001460848651<br />
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or you can do a search for me: Lori Cody (Springfield, IL)<br />
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Hope I don't miss anyone!

Hello! I have AIPA, autoimmune progesterone anaphylaxis! It is the life threatening form of the progesterone allergy and I survived 24yrs without diagnosis or treatment. I ended up having to do all of my own research, natural treatments to survive, and demand testing and diagnosis of this rare condition. Actually not as rare as doctors think and they seriously need to educate themselves. My treatment options offered by the docs were extremely limited with possibly more severe complications. I developed my own natural treatment that is currently patent pending and has maintained remission for me for a little over a year. No ER visits, multiple organ failure, massive hives or swelling, breathing distress, etc. I still have some very minor glitches simply from being autoimmune but my treatments have enabled me to have quality of life and health for the first time since puberty. I am now 35 yrs old! Other women with the milder form, APD, have also been using my treatments with great success and complete remission of hives and swelling. Here is my full story about my battle with AIPA and the treatments that I developed.<br />
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http://hubpages.com/_4forums/hub/Im-Allergic-to-My-Hormones-Awareness-for-Progesterone-Induced-Anaphylaxis-Autoimmune-Progesterone-Anaphylaxis-Part-1<br />
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I published my story to spread awareness for this "rare" medical condition. I hope this helps and Please feel free to contact me at: info@awarenessforaipa.com

I see Dr. Baptist at U of M. He is very knowledgeable, and can give you an allergy test for this.

I see Dr. Baptist at U of M. He is very knowledgeable, and can give you an allergy test for this.

Hi 4Baileys, <br />
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I would recommend you to document very exactly your cyclus and your symptoms, when they occur and when they dissapear. So you can make it clearer to your doctors. And don`t worry so much, there is a chance for treatment. We have good experience with tamoxifen. Search in www this article and bring it to your doctors! Good luck!<br />
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Baptist, A.P., Baldwin, J.L. (2004): Autoimmune progesterone dermatitis in patient with endometriosis: Case report and review of the literature, in: Clinical and Molecular Allergy, 2 (1), 10

I was diagnosed with APD 2 days ago. I had to go to Brigham and Womens Hospital located near the Boston MA area..