I'm 16 years old & I was born with BE. I was also unfortunately born with hip dysplasia. The hip thing left me with some surgery scars on my stomach & I'm extremely insecure about it. The BE doesn't help my insecurity. None of my friends know about the BE, I'm too embarassed to tell anyone. I hide it pretty well. My life is pretty amazing, I don't let the BE or the hip dysplasia bring me down. I go to shows, parties, sleepovers, pretty much everything a normal teenager would be doing - minus having boyfriends. I'm too scared to try any of that right now because of the BE. But I'm starting to wonder if I'll ever meet someone who'll accept me. I want to get married & have kids one day, the thought of that never happening scares me. Anyways, the reason I decided to write on here was to maybe get some advice from other women that were born with BE. I've never talked to anyone with BE & would love someone to respond.
LucyQuitLollygagging LucyQuitLollygagging
18-21, F
4 Responses Aug 2, 2010

hello there,you can message me if you like. im nearly 25 and have been living with my boyfriend for the last 3 years,were together 5 years!so boys shouldnt be a problem!! message me if you like!!

i have BE and hip dysplasia..im 15 from Ohio,USA. i dont keep my BE from anyone and i have had plenty of boyfriends and my last one was for 2 years and he did not care at all about it. he loved my scars

Hi! I am 24 years old, and a girl, so I know EXACTLY what you are talking about in your story. There have been times where I was embarassed of my b.e. and was so scared to tell friends, especially guys. but, as i got older I realized that having B.E. is a part of who I am and the obsticles I faced with it have made me the person that I am today. It has given me confidence that I never thought I could have. You WILL find someone who will accept you for you, and who will support you every step of the way. I only share the general details with most of my friends, and they are totally cool with it. My two best friends are the only ones (outside of family) that know my whole history, and I feel comfortable talking to them about anything. Even though sometimes it is kind of embarrassing, my friends are very accepting of me and my b.e., and I'm sure yours will be too. I try not to take myself too seriously, and i often make jokes about having to use the bathroom so much. It kind of takes the edge of for anyone else that im sharing my history with too. I have a very large scar down the center of my stomach and about a dozen other small ones. When I was younger I was more embarrassed of them, than i am now, but i tried not to be afraid to show them. Now, I love them and wouldn't trade them for the whole. for me, they give my body character :). Having B.E. is very very hard to deal with, so you just have to try and stay positive about the whole situation. if you would like to talk more, you can inbox me, I would love to hear from u! Take care!

Hello My name is Caleb I am 17and I was born with BE and I am very private about it too. I wish I wasnt but I am and I never have a girl friend because I am afraid that they will not except me... You and I are in the same boat :( You should check out YouthRally!!! It is a great camp for kids with all types of birth defects!!! I met so many freinds from there!!!!! rally4youth.org next year it will be in San Diego California!! I graduated last year from it but I hope to go back next year as a CIT a counselor in training!!!! Check it out it is a lot of fun!!!!