I was diagnosed with Blount's at the age of 5. I have mild bowing of the right leg and had severe bowing of the left. I had 5 surgeries ay the age of 6, 9 and 12 with osteotomy, casting, crutches and physical therapy. These surgeries did not help when I started walking again. I had an ilizarov frame placed in 1991 and my leg is now straight. I have nerve damage in the left leg and am unable to lift my toes and also have low back and hip pain but otherwise I do well. None of my 5 children have blounts. For so many years I felt like I was the only person with this disease. So good to know I am not alone. I am now in my early 50s and have never met another person with blounts.
barlow18 barlow18
46-50, F
1 Response Dec 10, 2012

I, too, have Blount's, and have never met another with it. Neither of my natural daughters have it, and my adopted daughter doesn't, either. I'm watching my grandchildren for signs of it. I just turned fortynine.