Jonovan Angel's Blue Rubber Bleb

My son is a happy 3 and a half year old little boy with a mild case of Blue Rubber Bleb. He was diagnosed at around a year and a half by the specials at the University of Miami hospital. He is seeing a gastroenterologist and a dermatologist and I am currently seeking more specialists to try to keep his sickness under control. The growths on his feet seem to bother him most as they bleed regularly and the blood scares him. As time moves on he has devolped more blebs (all over) but nothing too extreme. (The smallest are the size of a small seed and the largest the size of a golfball.) Recently his sickness is progressing and he is developing more all over. I worry daily and hope someone can offer suggestions to help him fight this.

Good luck to all... if anyone wants to speak directly, please send me a message with your email.
Best,

Stephanie, Angel's Mommy
AngelsMommy121 AngelsMommy121
22-25, F
Sep 14, 2012