I Am Living With My Nightmare Late Diagnosis For Cauda Equina Syndrome
Hello to all users of this site! I am a 42 year old male who has undergone surgery for full blown CES just four weeks ago, after the NHS Accident and Emergency Hospital failed to diagnose slow onset CES some 8 months ago, when my chiropractor referred me after picking up red flag symptoms! I have been in pain and had many of the symptoms for months but was told that if I wasn't totally incontinent for both urine and stools, I definitely didn't have CES! I thought I was going mad!! It wasn't until I finally lost control of my waterworks in January this year, that I was rushed in to hospital for an MRI scan. The evidence was horrific! I underwent surgery for L5/S1 the next morning by which point my spinal fluid sac had been pierced and I believe that i was a millimetre away from full paralysis! I was discharged from hospital 2 days later and rushed back in for a blood clot in my leg the next day, and sent home the same night after treatment! My symptoms since my operation have been alarming, as I have got full saddle numbness still and this has now spread down the back of my left leg. I get spasms in my back and the pain is awful. Thankfully I can walk, but only for a few minutes at a time, before feeling totally exhausted. Climbing the stairs is like a full blown London Marathon! I have to self-catheterise 4 times daily and use enemas, as my bladder and bowels have been acutely affected. As a self employed heavy outdoor worker, this has really hit me hard, as I have always lived for my work. I would really welcome some advice and comments from fellow users around medication that will really help with the pain, whether physio really will help, and any other hints or tips that could make things at all easier. The physical symptoms and emotional turmoil are really straining at the moment, but I know it's early days. Thanks so much!