Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

Mild, But Still There..

Hi everyone. I've thought about how to write my story for ages. I'll just say what I know.

I have cerebral palsy. I was born 2 months early and there were several complications with the birth. I spent another 2 months in the hospital after that. I was diagnosed as a baby because I wasn't crawling. I was "daddy's little worm". I went to a neuromuscular disabilities preschool. I received physical therapy at least once a week until high school. Then I was told it wasn't helping anymore. When I was 6 I had surgery heel cord lengthening because I was walking on my toes, which helped a lot! I remember having to wear leg braces on both legs until I was 11 or so. 

My mind is very fuzzy on my condition. No one pays attention to their doctors appointments when they're a kid... and I can't ask my parents about anything regarding my cp. My mom died a couple years ago, and my dad refuses to admit I have or have had any problems because it is a bad reflection on him. Therefore I don't know what KIND of cp I have. Here's what I do know. My cp is very mild, it was more of a problem when I was a kid. It mainly affects my balance and coordination and fine motor skills. So don't ask me to climb a ladder, carry heavy boxes, go roller skating, climb the stairs without a rail,  or write out an important document. LOL.. I fall a lot, but I do walk unaided with a limp which gets worse some days, and not others. I was spared any lasting intellectual problems. I did have special tutoring in grade school though. I couldn't seem to grasp some things.  Overall I'm very very lucky. I don't see myself as disabled but wonder if some things are "normal". Hardly anyone notices or says anything, except they do sometimes ask if I hurt my legs. 

I'm going to ramble....

In school I was known as "brain damage". Not quite "disabled enough" to leave alone or feel too guilty to pick on, just enough to torture. I grew up in a snowy place. Ice isn't my friend, so my mom put me on the "special bus" to go to school. I would be picked up at my door, and not have to walk the 6 blocks to the bus stop.  Didn't help matters. Why is it when you're disabled people assume that you're incapable of thinking for or doing anything yourself,? I wasn't allowed off the bus until a parent came to get me, or even buckle my seatbelt by myself. I was trapped! I came home everyday in tears from being called "retarded" among other things and having things thrown at me from being on that bus. Kids are mean. Eventually I was able to convince my parents that I was ok to walk to the regular bus stop with the help of a friend. The friend didn't hold up his end of the bargain, but I never told my parents that. I just got lots of battle scars! lol.. I didn't care if it took me 45 mins to walk those 6 blocks in the snow, I was going to do it! And I did, eventhough I did fall sometimes and got stuck in the snow until someone walked by... lol

I remember... after my surgery I came back to school using a walker and in casts. The kids would steal my walker and push me down at recess. Instead of getting upset, I would laugh, and attempt to pick myself up in any means I could because I refused to accept help. I was a strange child. lol...

Now adays I'm good, but put up with a lot of pain. I'm looking for a job and have a mostly normal life.Anyway... that's enough rambling. This is embarassing, but...I have so many questions that I don't know who to ask.  
  • My balance and coordination seem to be getting worse in the past 2 years. Is this normal? 
  • Does anyone else experience PAIN, a lot? Like severe hip pain when walking.. and..  It feels like my muscles are constantly tense to the point of pain and nothing I do can release them, also my joints ache, like what I imagine arthritis to be like, but I'm only 22.  
  • Does anyone have any vision problems because of their cp? or is that a seperate thing entirely?
  • I feel stupid asking questions like this, but who else do I ask?
  • What does everyone else do to excercise?
  • Do you admit your disability in job interviews? Should I? 

Thanks for listening!
ambience ambience 22-25, F 54 Responses Jun 15, 2010

Your Response

Cancel

I've had the same experiences, never got bullied that much though, and I was also a stubborn child when it came to others helping me. I go through the same pains as well and exercise really is all I know will help it. As for the job, I believe it should be mentioned in case something legal ever happens and they want to blame your cp. If you exactly lay out how it effects you and they hire you, if something goes wrong they knew and hired you, so they can't penalize you for going to the hospital if you need to. Just saying.

It sounds like we had similar experiences, except I was adopted. I can definitely relate to the feelings of inadequacy, but also the guilt over not being disabled enough or as much as people whom cp truly afflicts - embarrassment being a constant gnawing feeling. Thank you for sharing.

In terms of your pain/ stiffness, I found doing knee pushups to be surprisingly helpful. That and arm supination exercises.

Hi ambience.
I too have mild cp. I had a difficult birth - very quick, at home, my father had to help deliver me. It affects my left side. Had two operations on left tendon when a child, and had to wear a weighted bracelet on my left arm, for a couple of years, to stop me from holding it up. I think it has always affected my confidence. I say that 'I don't have a problem with my cp, other people do' - but actually that isn't true. My mother had huge problems accepting my cp and said some revolting things to me as a child, teenager and even during my twenties. Nowadays I try to keep a distance. It is her shame, not mine. I didn't choose to be born with cp!
Fortunately, it didn't affect my academic ability - I did well at school, got a degree, a post grad teaching certificate and have been a teacher errr, forever (it feels like).
My cp is a pain. Right now literally. But I know that I have significantly decreased my activity levels in the last 3 years and WHAT A MISTAKE!! I sprained my left ankle (yes, my weak one) very badly a few years ago, and my inactivity has made it much much worse. So now I need to get to this new gym where I live.

The biggest thing that has helped me is being quite an active, fidgety kind of person. I have never been sporty (PE teachers were awful, never understood what was wrong with me, was a just wimpy, or was there something WRONG with me???) ~BUT I am active. My greatest advice to
anyone with cp is 'get moving, stay active, and don't change that'.
Yoga. Swimming. Oh and massage.
My inactivity has literally made my body seize up gradually and with that I have had increasing problems with tension, balance, gait. Anyhow - that's my story. Been to see a physio today and I think she has put me back on the right track. Good luck everyone!

Add a response...

Sounds familiar I only had surgery on right tendon I'm 52 I've done some form of martial arts for the last 30 years,the only stretching I've found to get around tension is resistance stretching or pnf stretching.i was born 3 months early with stillborn twin. Parents never wanted to admit issues.but consider myself lucky,no major pain just stiffness and a weird thing called mirror imaging where if I'm doing something with one hand the other will copy it sometimes.

Hi just turned my n turnedame is Julie, boy does your story sound familiar.
I was also born with mild CP
I also had pt and went to schools for the disabled until Jr. High. I was also mainstreamed throughout school.
I also had the same surgery u did.
I also have some balance prob. And coordination. But i do work 1/2 time. I just turned 50 and im doing pretty Good
Yes i do have vision prob. I had 2 surgeries do to be crossed eyed. I cant flex my ankles or squat and walk with a slight limp . I dont know what type of CP i have either, but i count myself lucky that i can walk without aid.
If u want to chat let me know.

I have the exact same thing was born primature but with spastic depligia, im 24 had the exact same life, sorry to hear about your mum passing way my dad passed away but my mum was my career.

I could not walk till the age of 3 and even then was wheelchair bound till the ge of 11. Was not accepted in school by teachers and other pupils, was beaten up by the school on several occasions because I was not normal and could not participate in activities like them. At the age of 12 I had an operaton on my achilles tendon and front toe to change my way of walking and somewhat try and improve it as I was said to have had the Charcot-Marie-Tooth disease which affects my way of walking but the operation made it worse. Growing up I had alot of nose bleeds from the cerebral palsy and epileptic fits in my right foot especially when sleeping or stretching. I remember being given a splint for my foot which i wore to correct my foot, but rearly wore it as i wanted to fit in with other kids. Growing up I walked unaided, sometimes had crutches incase as I used to walk with a limp also and tend to trip alot but not fall. At the age of 16 i started going to the gym to try and build strength all over my body but it still affects my right foot so the calf muscle is very small and ankles are very thin. I do not work out on that leg anymore as it gets painful after a session. Till now I still gym but still walk with a limp. At the age of 19- 22 I went to university but failed as my brain could not take in information for exams and course and I tend to forget things or make mistakes. Alot of people see me and think i'm a fit guy and when this happens they do not understand. Till now they don't understand and sometimes forget. I did not complete university but got a job with General Electrics as a Project manager Intern and I am currently working at Brighton and Sussex as a PACS administrator. I do not have any friends as growing up made me scared and made me distant from the rest of the world. But I am happy I have been able to push myself with the encouragement of my mother. I currently live in Brighton alone whilst my mum lives in London.In relation to your question i am 24 now and get alot of pain in my hips and knee's. My foot I still get pain and can not walk long distances or run. I do wear glasses but I do not think this is because of the cp then again i'll do more research and let you know. I do get nose bleeds and epileptic fits in my right foot. In terms of job its advisable to go to the place you would like to work and let them see you in person thats how I got my job in GE and when you go for the interview do not say you have a diability as it prevents you getting the job, once you have it you can but in honesty your employee wont understand unless its visable.

To answer the original post:
1. Dunno about vision; CP is such a broad diagnosis. If the brain damage also affected your optical processing regions, then sure, could be cp related. For me, I have worn glasses since I was 12 but I am fairly sure that it's due to good ole genetics since it's issues with the optics rather than the motor skills of eye movement/tracking.

2. Exercise -yoga or some variation there-of. See below. I have done gym memberships, private trainers, regular swimming routines, lots of PT. Yoga is the most effective regular exercise I have yet to find.

3. My cp affects my speech, so I do disclose prior to an interview, asking for patience and understanding. If my speech was normal I would not disclose in advance.

This is a monster or a thread now, geez (posting 8/2014). I have mild/moderate spastice/athetoid CP. I grew up in a US state with great child services and my folks are awesome, but I have still experienced a period of detachment from being seen and evaluated on a regular basis (age 18/19-32). My mobility began to decline around age 26. Demoralizing and depressing, but my childhood experiences led me to believe that PT was misrible and failed to deliver improvements, surgery sucks, and doctors don't have a good understanding of CP anyway. However, declining mobility sucks balls. I finally bit the bullet and scheduled a yoga session. Best thing ever. It hurts a lot, like traditional PT, but the focus on holistic balance and doing the same excersize to opposing muscle groups. I am training my mind to be more in control of my body and the results are so Awesome; I went from falling weekly to not falling in over 3 months. And that confidence boosts so many other aspects of daily life. Bottom line: don't give up, fight for mobility and increased independence. There is no cure for cp. We all gotta trudge through it and keep doing the work to allow us to be mobile functional members of society.

Hi I am 15 and have cp. It only slightly affects my right side. I have some muscle loss on my arm and leg, but I can do almost anything others can do. I was born two weeks late and have had cp since I was born, however, It wasn't diagnosed until I was two (stupid doctor just told my mom I was lazy). The only surgury I have had was getting my tenden lengthened when I was 4,adn I only went to theropy until 6. I have always succeeded academically. In fact I often go beyond what I should to prove I can do anything anyone else could. I am going to get my license soon and I am doing good. Recently I have noticed that my muscles seem to be getting more and more tight I am getting scared that my cp is getting worse (if that is even possible). My parents are great. Since I was young they have always told me I could do anything and never let me take the easy way, but they don't really know enough about cp to answer my questions. Along with my muscles tightening I have been getting more sore as well. Because my parents never treated me like I had cp I never treated myself that way which means that I never exercised my muscles properly. It would be my worst nightmare if cp caused me to not do things. I guess I just need some sort of reassurance that I am not the only one going through this. It is really amazing that there are so many people out there that deal with what I deal with. I honestly never knew how lucky I was to not have been bullied or made fun of due to my cp. To be hoest my cp scares the crap out of me and I don't know what to do about it. I don't want to go to my parents about it because they don't know what it is like to have cp and I feel like I would just worry them. I don't know if this is a place where I could get advice on any of this, but if I could it would be amazing.

Hi krysta1217... I read your story and honestly thought you were talking about me. I also have a mild case of spastic CP that only affects my right side. The doctors said I was lazy too. I was diagnosed and treated at Shriner's Hospital in Lexington until I was 17. I am now 22. My family sounds just like yours! They never let me think I wasn't able to do anything anyone else did. Just like you I am an over achiever and have done great in school. I got my license at 16 and had my dad who was a great teacher. I have minimal adjustments and have done just fine with driving. I'm sure you will do great! CP does not worsen over time but from my experience it does cause other issues to arise. I have began to experience joint pain and get tired very quickly. My best advice is to just stay active and keep your muscles moving! If you ever want to talk feel free to ask me anything. I don't know how much help I would be but I can at least relate! I have all your same fears and just like you hate to bother my parents. I am currently dealing with some sharp pain in my foot that I think may be in relation to my CP. After a couple weeks of fighting it, I finally mentioned it to my mom and she went into panic mom mode and kept saying that she hates that I have to deal with this and be worried about my future with CP. I know it worries her and I hate putting that on either of my parents. Needless to say, she has taken off work and got me into the doctor already for tomorrow. Lol! She insists on coming along! Even when your scared to talk about it with them, it sounds like you have a great support system in them and I'm sure they would be more than willing to listen.

I'll be 18 in just a few days. And I actually think I'm extremely lucky. I got it when I was born. They said it was only in my right leg. But now I can tell it's my whole right side. I ocasionally do have pain. But other than that it's noticeable. But not that noticeable. My right leg is much smaller than my left, but I have a job. Go to school. Tons of friends. I don't consider myself disabled. Because I can do everything everyone else can run. Jump. Climb. All that. And I do hope that it always stays like that for me. I'm sorry for those of you that had it rough or are still having it rough. But I'm glad to know I found some people with a similar condition. Were all lucky to be alive. Some of us can move around easily. Some cannot. But were alive. :)

Hi Im researching information about mild cp as Im a swimming teacher from Ireland and i have a little baby boy student whose mum only just told me that this is that he has. I knew there was something because of muscle weakness in his neck and body but wanted to allow his mum to get to know me enough to tell me.

I wanted to just let you know I've also specially trained in teaching swimming to people with disabilities and one of the key factors in swimming helping people with cp is water temp. It must be at least 30 degrees to allow muscles to relax and not tighten. If you could find a hydrotherapy pool you should be able to find some relief from pain due to muscle cramps and the natural buoyancy of the water with different floatation devices should allow you to exercise.

It seems that eyesight problems and epilepsy are very common with cp along with balance and depth perception.

I probably haven't helped much but i was worried about my little pupil and wanted to do the very best i could for him so wanted to do as much research not only about facts but from people living with cp.

Take care and thank you so much for sharing, children can be cruel at the best of times and i was bullied all my school life for just being quiet so i think your one tough cookie. I hope you find some answers from your readers.

Debbie

me also i have cp but i don't know what kind of cp i have. A lot of pain. i ll never enjoy my childhood I can't play. I hate bullying . My never ending journey full of mercy and full of misery. I feel stupid 24 years of my life the pain still remain..

You are a writer! I am seriously impressed with your story, but truly, it's the telling of the story that is incredible. And yes, I do have physical pain and limitations. I don't have cp, but another neurological issue, and an autoimmune disease. Actually I have many of the same symptoms that you mention. I think the vision issue, along with everything else is truly an issue of muscle weakness, so yes, it's r/t to the cp. I'm sorry that your dad is too emotionally damaged and ego driven to be a real father and friend to you. He wouldn't be the first man on earth with those traits, but I know it hurts. I do suggest that you are upfront about any physical limitations that you might have, but I also suggest you consider the fact that if someone won't hire you because of them, it's not where you need to be. If they discriminate against you before they have you on payroll..not a good sign. Furthermore, you are entitled the right and "benefits" of having a disability. Don't let pride circumvent your success. I can't stress enough that you have a gift. Your grasp of language and communication in general, with a natural inclination towards writing? Priceless. That is your road I believe. With regards to exercise, I suggest functional exercise and strength training. Also, look into natural supplements that will enhance stamina, strength, and decrease fatigue. If you search online for such, you will find Ubiquinol, Creatine, and a whole food multivitamin among the suggestions. I am an RN, Holistic Nutrition educator. I certainly have some ideas about what other people "should" do, for better or worse. Take care, and best of luck. I can't wait to buy your first book. Already you have am amazing life story worth reading.

Hello everyone! I actually haven't got the condition myself but my twin sister has a mild case and has had operation and I've been by her side through school and adult life. We are now 22 and she has recently started to express to me how she wants a friend who won't bully or hurt her! And it's heart breaking because I don't know how! And she has been bullied which is awful as we are all the same! So I was wondering If anyone would be happy to email me please on here and drop me a mail or support messages or like to speak to her herself it would be much appreciated! As she just needs to know it's not her fault and needs to know she's not on her own! Thankyou you all so much!!!

I'm sorry that kids are mean to you, and I know what you're going through. Some parents are like that too. Your father should learn to take a One or two kids have been mean to me about me waddling, but generally no one in my school teases me about my disability. In the rare instance that someone does, I become very defensive. I don't like to be considered disabled, either. I act like a perfectly normal teenage girl. In fact, most people tell me that they wouldn't notice it if I didn't tell them. I have mild hemiplegic cerebral palsy that was the result of a prenatal stroke (before I was born I had a stroke). My parents found out when I was about a year old and had issues walking. I did learn a bit late, but physical therapy made it happen. When I was very young, I used to have seizures. I haven't had one since I was six years old. Physically, my CP affects my right arm and leg. I used to wear a brace on my right arm and leg when I was five and six, but I stopped when I was around seven. I walked on my tippy toes until I was nine years old, and had surgery on my right tendon. I still limp sometimes when I am really tired, but I no longer walk on my tippy toes. I walk flat-footed. I tend to limp more when shoes don't have support or coverage, like heels and shoes without straps. As for my right hand-I can move it, but I use it as a prop. The fingers on my right hand are hyper-extended, so I sometimes wear clear, plastic nude finger splints to make them easier to work with. I can't write with my right hand, and I can't turn my wrist very far around. I'm a high school senior now, and I have already been accepted to four colleges. I am eighteen, and I still haven't learned to drive yet, though I plan to get my permit, and driver's license by the end of the summer before college.I have dyscalculia(a learning disability in math), and issues with visual/spatial concepts. However, I have always excelled in language arts and singing. I have taken vocal lessons for three years now. I currently take Honors English, and I have an A- in the class. I really want to teach English to high school students as a career.This doesn't mean that peripheral vision is weak, and in fact, I've never had any major issues with vision as far as I have noticed.<br />
I have never been an athletic girl, and I have always been small and thin. Then again, my mother is 4'10. I don't think my petite stature has to do with CP. There was time when my right leg was slightly shorter than my left, but the tendon release corrected that.

I am a 36 year old chick with mild hemiplegia on my left side. I have severe pain in my back, hips and knees and ankles. I also got hit by a car at 13 right in the knees. I have had many braces that just made pain and my limp worse. Doctors are a joke; I had one tell me that I was too pretty to have CP. Wow..... All I want is to have some kind of relief! Baclofen is a joke and I have medicaid so a decent doc is hard to find. Even if you find a decent one they think you're crazy or a pill seeker. I have tried to work, but the pain is too much, so I get a ssi check for a whopping 700 a month. I have three degrees in healthcare that I'll never get to use. My dating life is a joke and I cannot have kids. I have a chihuahua though. I wish the medical community would start taking our issues with pain seriously and give us the treatment we need and deserve. I'm in the St Louis area ifanyone knows a good doc. Good luck all...

Hi! I hear you!!! I too have three degrees that are collecting dust. I'm 33 years old with CP that affects my right side with vision and tummy problems. After years of braces, treatments, 12 painfully surgeries, and being constantly drugged up I feel it's time to give up on a career. Do you mind me asking if you had trouble getting ssi? Did you need a lawyer? I've heard so many horror stories.
On another note, the hospital I've had my last five surgeries at has a pain management center. Perhaps you could try something like that (if you haven't already)?

I do hope you find some relief, sweetheart.

XO
Bethany

This is amazing! I thought I was the only one. I'm a 36 year old female with mild CP basically affecting my left side, back, hips and now knees. It doesn't help that I was hit by a car at 13 basically hitting me in my knees. Doctors are a joke and act like mild CP is nothing. I live with so much pain that I don't sleep. I cannot find a decent physician, because I have medicaid. All I want is a little relief! I do not want another brace that just makes my limp and pain worse. One doc told me that I was too pretty to have CP....really!? I have tried working, but it is too hard so I have 3 degrees in healthcare that I'll never use. I wish the medical field would at least acknowledge us and give us the treatment we deserve. Good luck all....

Thank you for writing your story. Oh my goodness, you could be me or I, you!

The first thing that struck me is your dad's unwillingness to admit that something might be wrong with his child. MY DAD DID THIS TOO and pushed me so much to the point of being cruel. I am 51 years old now and thankfully, with the help of me taking an assertiveness training class, we've hashed that out and he truly is sorry he treated me the way he did. On the other hand, he and Mom insisted that I be independent and to get along the best way I could. I am happy to say that despite my mild CP, I have worked most of my life and I've been married for over 32 years to the same man. We chose not to have children but do have a cranky, elderly dachshund named Bonnie

You asked if vision can be an issue? It was with me. I was born one month premature with the cord wrapped around my neck and in an incubator for some time. I am not legally blind but I do have optic nerve damage that prevents me from getting a driver's license. Thankfully, up until now, I have walked almost everywhere unless I'm with hubby and he can drive us.

I have just started looking at people with CP and their stories because I have been experiencing diminished balance and have stiffening in my legs and back. My right foot is turning in weird and I just can't seem to get loose in any slight way. I've been fighting the cane but am warming up to the idea for use in going up and down steps and walking in areas where I don't know the "terrain". Why are there so many step ways and stairs without rails? I don't get it...LOL. I've done too many face plants lately and know that one or two more are going to be the end of me. So I'm cane shopping. If I have to use the dang thing, I want it to be pretty.

Oh! Doctors have been a joke in my neck of the woods. I have had this spasm thing in my back off and on for about 10 years along with more balance issues. The back thing stays for about 10 weeks and then mysteriously goes into hiding. When I'm in the throes, it's horrible and I walk like Frankenstein and am in #7-8 pain scale territory. I've seen about a 1/2 dozen doctors in the area and they tell me it's all in my head. Maybe I didn't mention the CP thing convincingly enough. They just think I'm being silly and send me home with worthless feel good drugs that don't even touch the pain. I'm off to see yet another doc and was wondering, now that I'm going to emphasize the CP factor, would it be worth it for me to check in with a Neurologist? I've never seen one.

Thanks again for your encouragement. Your helped me greatly just knowing there are other "me's" out there.

Take care!
Sandi

God bless the profession and the good ones, but doctors really can be jerks! Just wanted to let you know, I'm 33 and finally gave into the cane 3 years ago, after my 12th surgery. Two things, they are utterly worthless on ice, so tread wisely! -and- To my surprise, CVS has some really cute canes and quite affordable, so you can get a few to coordinate with different outfits!

Hope you find some relief or at the very least a straight answer.

XO
Bethany

Wow, it's hard to find somebody (let alone a whole group of people) who know precisely how I feel! In the past few years or so, I've been more open about my battles with mild CP. While teaching, I often find myself explaining to students why I walk into things a lot or why my walk is different.

My CP effects both of my legs and my left side, and like many of you, I find the wet cold to be almost unbearable. Even as a small child ( I'm currently 23) I would be able to tell the weather almost 2 days in advance...

My question to you guys is: Has anyone else been additionally diagnosed with Pervasive Developmental Delay? And what type of exercises help with muscle tightness? I try to exercise on a normal basis (and played pick up softball during the season), but I cannot swim well and would love any suggestions to help with flexibility and tightness.

Hi There!
My PT has been doing some table work with me to helps with tightness and flexibility. I'll ask her if there is some info online that I might pass on to you, if you'd like. I'm post-op right now (number 12), but when I'm a bit stronger and in a little less pain, I do light, modified yoga with a friend who owns a studio and use the Pilates reformer machine (which I feel really helps a lot).

That's so wonderful that you're a teacher! Such a noble, important, yet shamefully undervalued profession.

Warmest Regards,
Bethany

I am 46 and have mild cerebral palsy I don't know where to go to find info on it like is my body goings To get worse a couple of years ago I found out about Botox for my spasms it's a miracle drug for anyone going through spasms when reading about other people all I hear about is the pain we deal with its true I also feel like people to get it I have some People that dont even notice I walk with a limp I know and still till this day I have a hard time with it

Test

I have cp

Hi

I have a 20yr daughter who exactly has everything you just mentioned. I am so happy to find someone with the same dissability as her I would wish you to be a friend so you guys could share stories.

Sorry to post again but not everything I wrote my not have made 100% sense unless u read other posts. I'm not a blogger or like even using community sites. I looked up mild cp and pain in knees and found this and am literally in shocked. Sense most of you had put a lot more effort in your post I figure sense I'm up at 2am this is a good way to not concentrate on the pain And maybe help others. Born 2 pounds 6 onces like two months early. Had a few other minor complications. Was the last of five kids. First to walk says my parents lol. Did physical training till 10 wore braces but they just made my feet hurt. Played sports, have good friends. Got bullied like a few of u. Kids are cruel. Teachers wouldn't do much so my mom told me to hit him. Cause he liked to kick the back of my feet. So I did. It worked. I've lived a normal life. Worked since 15 in between jobs now but o well. I learned faster then most so that's a plus never had teacher aids or nothing. But not everything's a charm in my life. My mom was my glue. She passed away 2 years ago and the stress is killing plus social security are A holes. And she knew how to get stuff done with doctors and such. So now that's pains gotten worse im terrified and no one can help so this site was like a light bulb in my head flashing big and bright. So again thanks you all, best wishes and hope my story helped like yours.

Hi I I'm 20, I've read a lot of these post and find that I'm not alone. I was also born with a real mild case of cp. it's not noticeable i just walk on my toes. My left sides abit worse but I've always preformed any task as a normal person would. Recently my knees have been killing me. My feet feel a little numb at the toes and more tightness in legs. I'm mostly worried about my knees. I haven't been to a doctor for it in 10 years. In fact doctors freak me out. I never did surgery. I did wear braces but I felt they made matters worse. Bullies tried to pick on me but I have a fighter side. I wanted all of you to know I'm thankful for your stories and seeing where all about the same age I'm growing more freaked out. Any advice on the knee thing? Thanks again

Hi! I'm a 20 year student. I was was born 3 months early and suffer from cerebal palsy. My weakness is just in my right side. Two years ago I got a "tend and release" on my right leg. Before the operation my leg used to have muscle and I could go around day to day activities as normal, but the only downside was I walked on my tip toes. Now after the operation my walking has improved but for me I am in so much pain, my leg is so weak and has literally NO muscle...just writing for advice is there anyway at all I could build the muscle and strengthen my right leg??

A stationary bike is the only thing I can do to build a little muscle tone in my legs, post surgery.

Good luck!

XO
Bethany

I have the exact same thing as you. I would just force yourself to walk on it a little more and more day by day. You know what they say, "No pain, no gain." Once you feel comfortable walking again, you can try running on the treadmill or stair-master, and doing calf muscle exercises and stretches. Lunges help, too. I haven't exercised my right arm and leg recently, even though I know that I should. I suppose that school and winter have made me lazy.

my knees are killing me right now. apparently my old therapist told me that my knee caps are crooked instead of aligned correctly. i just googled this and found all of you. if anyone sees this - not sure if this post is still alive, please feel free to contact me as it's always nice to have friends who understand. i'm 21 years old. and things seem to be getting worst.

I'm also 22, and notice my balance has gotten noticeably worse the past year. I was born 3 months early resulting in diplegia cp, so i had heal cord surgery when I was 6 years old allowing me to walk flat footed. I was pretty good at walking on casts given their was carpet. My eye site is terrible, I have needed glasses since I can rember. Physical tharopy lasted until middle school. I fell a lot as a kid, but was able to do thing like play football and participate in other physical activities. I'm a lot more conscious of my disability as an adult, so I'm not to overly active when it comes to things like running. Do you think parenting would be difficult with this disability? I do. I work at a desk all day result in I frequent hip pain. I have been thinking about heal cord surgery to see if it would improve anything,but the entire presses is to long. What is your opinion.

I have mild cp, I\'m 20. I had heel cord surgery but for me that has made things worse. To be honest I don\'t think you should let your disability even enter your mind when it comes to things like parenting....surely everyday tasks are slightly more difficult for people who suffer from cp, but you should definitely not let it get to you.People like us just have to put a bit more effort into certain things we do. So don\'t worry

Aside from the two childhood surgeries I had, having another surgery as an adult was the biggest mistake of my life. It resulted in worse pain and 9 more surgeries just to try and fix the damage. Every day I wish I could go back and not do it.

As far as kids go...I've got two beautiful children who are the lights of my life. Sure there are things that are harder for me than other parents, but that small extra effort can't touch the love and joy they bring.

Warmest Regards

XO
Bethany

Im 16 and experienced the same i think i had therapy from age 2- 8/10 years old.and i was born 2 months early so i stayed in hospital for 2-4 months.i didnt even start walking at 2 years of age i was crawling a bit but not even that well.i dp experience pains when out and about i enjoy running but i dont let my cp stop me.i cant stand up for long periods of time and i can barely hold my hands above my head for about 30 seconds to a minute if i have to sort out my hair and such without it hurting to the point i have to put them back down to rest.

And i did always walk on my tip toes i always have and sonetimes even seem to do it now.i used to waddle as my feet pointed diagonally out but therapy corrected it.i dunno im used to not doing things most can like stretching my legs out upwards i physically cant get straight .cant touch my toes .bad hearing and poor eyesight so i wear glasses .lets not start on my balance. I have none im always seen falling while standing on flat ground tripping up and down stairs knocking into things and i cannot stand straight up without staggering and dropping and leaning so i hve to hold onto something....

I dont know if its just me or do ure joints pop in and out of their sockets.like its my wrists it pops out backwards touches my arm then pops back in

I am 18 and am in pain a lot I see an Osteopathy which helps for like 48 hours. I do have visual and hearing problems too. I just think it part of the way the brain works. I workout in a gym for exercise it can be very painful and tiring. I am so tense that I have to ask one of the trainers to help length my muscles.

Im a 16 years old boy, i have mild cp and i swim 3 times a week. but i feel that i have lost interest in it. i know it has helped me alot with my development as of body muscle.I´m not very muscular but i have a good tone. I feel like i should quit and find something else.

Don't give up because of your disability. Besides, male swimmers are generally not beefy guys, anyway. If you enjoy swimming, continue to do it. Who cares what other ignorant people think or say? Prove them wrong, and keep practicing. Who knows? You could end up being the best swimmer on your team if you work really hard at it.

i am a mother of a child who is not a child anymore but a grown man of 20 who has experienced a lot of the same things that you did. He also has mild cp was born 2 and a half months early and delt with a lot of other medical problems on top of that he got spinal meningitis witch damaged 3 parts of his brain he has 2 shunts that are permanent and has a tendancy and always has to drag his right foot. he also went to physical therapy for several years and had some learning disabilities. His father and i always pushed him telling him that although he was different from other children and it took him a little longer to learn than other kids that nothing was impossible for him he just had to learn to go about it a different way. people look at him and dont even see or realize the obsticals that he has over come or even the fact that he has these disabilities. he suffers from much pain in his back and hip area as well as his legs. the eye sight thing i believe is a different issue. we have found over the years that the best thing to do for this pain is yoga he is not very flexible but he has to stretch out a lot because cp basicly causes you to have shorter muscles than people that dont have cp. my son has done boxing which they kicked him out of after they found out about his disabilities he now does brazillian jui jitsu which he loves he says it helps him a lot to stay stretched out they dont know about his problems we told him dont tell them and he does just as good as the others do even though it sometimes takes him a little longer to learn the moves than others. He lifts weights and has for years he started out light and worked his way up over time. cp is not something that gets worse with age i think what it is is that as you get older you start to realize it more than you use to there are ways to make life more bareable as i explained earlier with yoga and clearing your thoughts breathing in deeply and learning to let yourself free of your own thoughts. i wish i had more answers for you but you just have to believe in yourself know that you can do anything that anyone eles can it just may take a little longer which is ok. I found your post today while looking for something eles to help my son with some of the pain he has i see that you wrote this in 2010 and it is now 2013 i hope this finds its way to you and that you realize that there are others just like you asking the same questions. i hope that this has been some help and comfort to you just remember God made you the way you are for a reason learn to embrase it to love yourself and know that nothing is out of your reach if you want it bad enough. you may have to go about it on a different road than others but you can do it dont ever forget that. our family will be praying for you and remember God loves you and God dosent make mistakes. In Christ, C.C.

Hi Im 22 I full time college student. I often do yoga and swim for strength it helps me I Was born at 2 pounds 6 ounces

Hi I was reading your story about your cp and I must said everything u said fit the same way I was born. My mom give birth to 2 twin girls premature and I was the one who developed CP, went through the same thing wit surgery ect..... wit kids making fun in school. To losing my mother year ago too. Same exact story to make a long story short. I have something to said is it possible that because of my cp it make it hard to wear high heels. Lol

Hi I wanted to thank you for writing this, i have been going through this hip pain to the point where i have been in bed for days and even to the er 3 times now all i get is it is the muscles take motrin and rest. Since it is so mild i never thought that the cp could be causing this, i have not seen a dr since i was in 6th grade for the cp. I started to research on my own and now see it is common. The pain is so bad that it seems like i forget to walk since it hurts so bad. Question for all of you what do you do to help ease the pain? do you all work? I am a mom of a 4 year old and i feel so bad for her since I am unable to function after working a long day or even now on a day to day basis.

im 33 yrs old and i found out that i have cp about 8 yrs ago while i was work my co-workers noticed my left foot turned in when i walk or stand at register so i went and seen the dr. i also was 2 and half months earlier i only weighted 2pd 6 oz and was 15 inch long but anyway im leally blinded out of my left eye and i walk with a limp as a toddiler i also walk on my tip toes on myleft foot and i had 2 wear a brace but no one knew it was cp but now at my age and after 3 kids my hips, back, shoulders,and knees and ankles hurt all the time can anyone tell me whaat i can do 2 help with the pain

Wow... i just want to say thank you to who wrote this. Ive been looking for a site with people who have cp like me. It almost brought me to tears (in a good way) to see im not alone. Im almost 22 i have mild cp in my legs. Mostly my right side in my ankle. My right foot i walked on my tippy toes. Til i had surgery before my freshman yr. Wearing a brace. And braces on both legs at night. U can still tell i limp but for the most part i dont let cp overcome me :) none of us should. But it does get hard. The pain, i cant wear high heels, balance is bad. YEA dating can be difficult, but dont give up. There are people out there who will love u for you and overlook ur disability. Well hearing that as we get older cp gets worse and more painful... saddens me. But hey, if we all have made it this far. Its just another stepping stone right. Well if anyone with cp wants to talk to me feel free.

I have cp and am 33 years old, this is the cold truth of the matter, Having CP is a M&!her F!#ker, everything this guy says is true. I pretty much have had the exact say experiences and worse. I’m not bitter about it, as I may sound, The truth is what is bitter. Many people especially parents refuse to accept or believe the truth. Most cannot people simply cannot handle the truth. (As the saying goes).

The pain does not get better, it gets worse, sorry kids just the facts. Our bodies were simply not designed to be used the way we use them. Talking to the parents mostly here. Your children probably already know this. I have what this guy what this guy refer to mild CP but sounds like I have it better than he does, my knee are killing me.

Social Neglect, Quiet neglect, these hardest coldest truths you or your child will have to accept. When you have CP this is what happens. It doesn't matter, how charming you are, good sense humor (although this is essential if you’re going to be happy), good looking, intelligent, witty, tough, or vicious. The last two only work when you’re a teenager, beating the crap out of some kid, can go long way high school, (simple truth). Most High School kids are chicken sh*ts. Most Adults are high school kids just bigger and older maybe a little wiser, they have just learned hide the Bu#!sh*t.<---(This is the Wise part) so called men and women, never grow out the ******* contest thing (AKA High School). I know right now, you’re thinking jesus this guy must be a total as#@ole. But I'm not, for most people it all boils down to a single word "SHAME". Parents and Society are ashamed of people with CP, or Disabilities. Unfortunately this "is systemic it affects every other part your life from girlfriends in my case, to finding job, to making money and everything in between. Most people will call it something else (the guy above says it like this: "my dad refuses to admit I have or have had any problems because it is a bad reflection on him".)
Let me clarify in a more logical way, Jobs, relationship, invites speaking of people in a general way. The way they think on an emotional level. Employers aren’t going to want to hire some they pity or fill sorry for and most employees are uncomfortable working with retards (sorry mean disabled.) You say wait a minute this isn't true people aren't like that, people aren't that shallow, If you have cp or are a parent with child that has cp you see it every day you are out in public. People look away, cross the street, quickly choose a different isle to shop in or say I'd kill myself if I had to walk like that!! True enough these people are ignorant as&h*les, but then again they are also something else aren't they, (besides a dime a dozen) these people are also somebodies bosses and co-workers. (The Truth hurts!!)

As if this isn't bad enough, here is something else to consider, which makes it difficult to get invited anywhere or get a job for that matter, this can also be summed up in one terrify word. What’s’ the word you ask LAWSUIT. Now let me state that I have never ever suited anybody and never will even if it warranted because it just makes the problem worse.
In my opinion there are two types of disabled people in this world, the truly disabled and the normal disabled---(******). Of the Truly disabled most will never suit anybody over their disability issues or anything related to it. (The idea somehow just seems absurd because it has always been like this). The second types are the ones that have been injured and are pissed off at the world. (I am not pissed off at the world, even though it may sound like it.) These people are looking to make quick buck dole out misery so other can feel their pain. But the ones they hurt the most are the truly disabled because when employers look at us all the see is lawsuits, but we just want a chance to make an honest living and get paid fairly for our work.( The most I have ever made it 10.50 an hour at a job I worked at for 3 years.) I'm no slouch either. The current economy is nothing to do with this letter, my personal economy has always been depressed, I have very little compassion for people that hem and ha about the economy ***** about being broke, I just say welcome to my life.(yes, it's hypocritical I know.)
I know it seems hopeless but it’s not, I have some good advice to give on how to cope with the emotional struggle that is CP. Although you can’t tell it from this dark letter, let me just say that that when dealing with your CP you have to learn to accept it(way hard to do) took me 31 years. 2nd if you are going to be happy you have really not care about what people think about you, this probably the most important because the first one to angry losses, anger is your worst enemy. (I’m still working on this one.)

My daughter has a similar situation. Mild but still there. She experiences the pains and aches that you do. She is 18. We lost her mother when she was 6 years old. It was difficult on all of us, I can only imagine what it has been like for her.
It's difficult having been a single father for so many years (she does not get along with my girlfriend too well) and not doing as much as I wish I could have. Running a business and trying to make ends meet takes a lot out of a person.
We have heard so many different stories about things that can be done, from Achilles lengthening to Botox injections, but no one has assured of us anything. I am trying to get her a car, but very very worried of sending her out on her own in the massive traffic and horrible a drivers. Her response time is not that great.
Another problem if ours is insurance. We have not been able to get insurance for 12 years, because of pre-existing conditions. It's difficult to pay all doctor bills from pocket, to say the least.
I make too much (I am told) to give govt assistance, but not enough to cover any major surgeries, although I would find a way if we knew of anything that could help. Maybe if we miraculously become minorities, we would get govt assistance. It's very frustrating.
I love my daughter more than anything.

Can anyone provide any insight on a few questions?
1. Anyone had any positive experiences with the possible remedies I mentioned? Or any others I did not mention?
2. Has anyone found a way to get insurance with pre-existing conditions?
3. Any tricks on driving with cp? Exercises?

You all do have very insightful things to say. Better than most stuff we have read.

Hi! I was also born with a mild form of CP, I'm 21 years old and I had the lenghtening surgery when I was three to correct my excessive walking on my tip toes. It sincerely helped me, as did my leg braces.

But as far as the driving issue goes, CAN SOMEONE PLEASE HELP WITH THAT????? I'M 21 AND CAN'T DRIVE AND IT'S MAKING ME GO INSANE.

what side is your limp on? Most likely you have hemigaplesis. A form of Hemiplegia which is a form of cp only affecting one side of the body or more specifically your legs. The pain could possibly be managed using boxot injections to the spastic muscles. If your were a two month premie the most likely cause of impaired vision is use of pure oxygen. What I recomend is that you schedule an apoinment with a doctor to see if you can get treatment for your cp and specifisc diagnosis of what you have.

Ok, i've seen lots of people saying ice is the devil/evil, and i whole heartedly agree(which is strange cause i work in a hockey rink) as for school and special transportation needs, well i rode the handi bus for a few years, but like you i got sick of the crap so i bit the bullet and started to take a normal bus, i just had to leave a little earlier, as for sports.... well i pretty much stayed away from anything remotely group orientated, i do however ride dirt bikes(as well as a normal bike), and i am inclined towards the odd game of golf, because the only competition there is between me and that blasted little ball. and yes i have had to adjust my stance, i can not swivel my feet to fget the full swing like lots of people but i enjoy it, although i dont swim well(or at all really) work can/will be a little more challenging but once you find an employer that is open and supportive it will be ok, Arthritis is also a fact of life for many of us. I've had some form of arthritis since 10 or 11, and yes it may get worse but remember painkillers, and muscle rubs, and hot baths are your friends, and if you can afford it either a gym membership somewhere with a hot tub or buy one, it's a great investment for the muscles. Good luck

WOW! This is a great group, you should start a support group. My daughter is 15, and she s having such "mean girl" issues, my heart breaks for her.<br />
She has very similar stories that are mentioned above. She has had 7 surgeries. Now she is developing chronic heel pain. Next year she starts high school, I am a nervous wreck, I am hoping she can at least find one friend!<br />
Thank you so much for sharing your stories and if you start a group, let me know.<br />
Kathy<br />
Mom to Colleen

Your story echoes my own almost completely. Though it's my mum in denial because she blames herself for my premature birth and I'm lucky enough to still have both parents. I'm so sorry for that loss and the fact it means there's so much about your condition you don't know.<br />
<br />
I'd like to help if I can, even just answering questions...<br />
<br />
I'm female, 22 and happen to have Cerebral Palsy spastic diaplegia.<br />
<br />
According to the doctors this officially means it affects my legs only. I am always stiff, in some level of pain due to the pressure this stiffness put on me joints and then as a further result my back.<br />
<br />
I can't wear heels, climb a ladder or stand on a chair as I have no natural sense of balance. <br />
<br />
My hips and knees hurt a lot, arthritis is something I'm told I my get later in life, again due to stressed joints. I use hot and cold techniques (i.e. hot bath then cold compress on my joints or during the winter I put hot water bottles on them when I get in from the cold) to help most days instead of resorting to medication. It does help. I also find simple things like sitting when I'm tired really make a difference to how any day progresses.<br />
<br />
Like you, my balance and co ordination got worse a couple of years ago. So I went swimming more often and started up all my old exercises again. Eventually it helped. But my doctor thinks the worsening of symptoms is due to the effects of having stopped growing. I'll try to explain...<br />
<br />
In my case, my type of CP means that my lack of balence and co-ordination are due to the lower half of my body not sending or recieving the correct (at times none) signals from my brain. So they are not natural things for me to have and so must be taught or trained in.<br />
<br />
Once my brain learnt to balence and co-ordinate to the best of my ability I had to maintain them whilst growing. This is easier than it sounds as the human body is most resilient during times of rapid growth.<br />
<br />
When that stopped I had to maintain my balence and co-ordination without a natural sense of hyper awareness we all have as teens. Couple that more difficult task with the fact our bodies don't repair as quickly as adults, and so doesn't compensate for muscle stiffness and things so well, my balance and co ordination had to be re-worked on and maintained with a bit more effort.<br />
<br />
I also started wearing glasses (for a few things, only occasionally) at age 18. Though my vision is not directly related to my form of CP, the disability does affect some people's senses. I find that I rely more on my eyes and ears because I can't get out of harms way as fast once I'm in it. So I strained my eyes as a child, hit adulthood and needed a bit more help when I got tired.<br />
<br />
Hope that helps.<br />
Look into Spastic Diaplegia. I'd be happy to answer any more questions if I can :)

I have mild cerebral palsy as well and same thing put i was 3 months premature.In fact my knees hurt right now from it.

I think we should form a club. Story is the same here too. I'm married with one child. I thought I was developing MS or something fr the past 3 years. Docs would say I'm fine and show me the door.<br />
<br />
Recently, to my surprise, a Psyciatrist said all my complaints and problems are related to my CP. This was the first I heard of this. . . .. . I was in shock.<br />
<br />
All my problems that were unexplained and untreated now have a name. CP.<br />
<br />
Wow. I wish someone would have told me and not let me get so far seeing so many doctors and complaining they were all blind and stupid. It was me that was blind. I had no ability for self-awareness. I never thought about myself until I was an adult and saw some strange symptoms.<br />
<br />
What a terrible past 4 years. I thought I was slowly dying and even engaged in drug abuse to help cope. - All cleared now. Now, everyone is honest with me because they know I know now. Strange days indeed.<br />
<br />
Be strong. Stay active.

Wow can i relate especially to your first paragraph and about your dad my dad is in denial too. We never talked about it I don't think my folks truly understood what CP meant when I was growing up.I am married and have 2 children and my dad still wont talk about it.I am very open with my children about my limitations CP and how it affects my daily life.<br />
About pain I experience and deal with it every day too and some days the pain and my balance and coordination do seem to be worse I have better and worse days i am always looking for the silver lining........

I am 19 and have mild cp! lol I had a lot of simillar experiences that you described including the heel cord surgury and walking on my toes, but they over did it now i have problems picking up my feet. Life is funny that way. It is too bad about your parents. I am a triplet and we all have cp and I have am the "best off" I spent my whole life helping care for my brothers so i have never seen my cp as much of a disability but now i'm in college it is becoming painfully apparent. Maybe there should be a class with disabiliy sensetivity training. =) As far as a job i suggest the night shift I worked the 3rd shift in a home for people with severe disabilities and because i was by myself I was able to go my own pace and take breaks when i needed. My question is anyone else having trouble with dating or am I just a weirdo?

I have CP and dating is tough get turned down just cuz of the cp bummer

oh my god I have so many similar situations/symptoms to you. i have mild hemi-plegia CP (affects only my left side)<br />
- i trip & fall so easily, even on flat surfaces but especially ice!<br />
- my balance and coordination have been and still are terrible. I can't stand on my left foot for more than like 3 seconds. <br />
- i had a surgery done when i was really little to my left hamstring and maybe heel cord (not sure), also because i walk on my toes & because my hamstrings are tight. (had to re-learn how to walk wearing a full-length leg cast right after I had just finished learning how to walk, period. <br />
<br />
I am so sorry your dad refuses to talk about it. He is probably still devastated and is in denial about it. I hope eventually you two can learn to talk about it, but if not, It's good you're on here meeting others :)<br />
<br />
i am 19 and I would really like to know people around my age with mild CP, as I have no friends or I don't think even acquaintances with it.

Hi! I really liked your story :)<br />
<br />
1) Medically, there is no indication that CP can get worse over time. A lot of neurologists tell me this too. However, your body is constantly changing so the strain could be getting heavier, and you know, it doesn't help that our muscles are constantly stiff and our joints ache. ^^;;;<br />
<br />
2) Pain is a given and I think it happens to everyone with CP. My muscles are always stiff and my ankles always hurt because I had the heel extension surgery twice because I walked on my toes. (It felt better that way to me, haha)<br />
<br />
3) Yes, I do. I have what's called strabismus (or alternating esotropia) where you cannot control both eyes at once. I can look out of one eye at a time, but never together.. --;; As such, it is said this is one of those vision problems that more or less comes with CP. On the other hand, I have several different disabilities when it comes to my eyes..<br />
<br />
4) Ask anyone you know who has CP :) It's good to have familiarity. I always ask my neurologists a lot of questions too though. ^^<br />
<br />
5) I mostly do a lot of leg muscle exercises and I wear ankle supports to try to give some help to my ankles because they ache more if I don't wear them.<br />
<br />
6) I put my disabilities on paper. It's ..not safe for me to dismiss them. I wear a medical bracelet, but I still want to make sure people who need to know, do know, incase anything ever happened at work. ^^;;

:)<br />
wow, this is a good story!<br />
I am sorry about your momma and the trouble in school. That is very sad :(<br />
<br />
I have one-sided CP. It's kinda obvious to people because I can walk-- with a brace--- , but my right arm loves to go up.<br />
<br />
I am in pain too, a lot. I have a "crooked foot" as I call it. My foot doesn't go flat like normal feet; it turns to the side. So I hurt on a daily basis. I'm on my feet all day, working with kids, and with the pressure that I feel from the brace is not very nice! And then when I take off my brace my foot naturally goes to the side. <br />
<br />
:P<br />
<br />
Gracious, I know how you feel about people thinking that way because you're disabled!! Sometimes I get the line, "how can you live like that?" Um, wow. I'm stubborn, I try my darndest to find a way to do things when people intervene and do it for me without even asking! P<br />
<br />
Good luck with finding a job!!! <br />
--:)<br />
<br />
Good luck on the

2) The more involved one was terrible. It was seven incisions (right heelcord, both hamstrings, both quads, and both abductors). I was in full-length leg casts for three weeks, and the casts had a plaster bar between them so that my legs were at a fixed width apart... basically they were immobile on all axes.<br />
<br />
Because it was a leg surgery, I don't really have to explain my scars. The quad and hamstring scars aren't really visible and the heelcord scars are now completely white. Even if I did have to explain them, I think if I said "I had my legs cut up in 7 places at once... it sucked" people would be very understanding ("ooh ouch ok...").<br />
<br />
7) I'm a grad student in computer science (we get paid, just not much...). It's ok. It's fun some days and sucked some days. Before that I was a computer programmer. I probably should have stuck with that rather than going back to school. I basically quit because I was bored, but it's a pretty optimal job for cerebral palsy because you just sit at a desk all day. I would never want to work in retail, because that would be unbelievably exhausting. I've only ever had one job where I was on my feet a significant amount. That was the summer after my senior year in high school and I came home exhausted every day.<br />
<br />
I wish I had better advice for you about what jobs to try for. I would think that reception jobs probably would be good. You might check around at local colleges and universities because in my experience the receptionists who work there are generally very transient. They're doing temporary stuff while their husbands/wives/boyfriends/girlfriends are getting degrees. The result of that is that they have people leaving all the time, which means they are looking for people all the time. They might say that the job requires a masters degree, but I guarantee you that it doesn't. That's just their way of scaring people off so they don't get three million applicants. The government is also always hiring, although I really don't know anything about what they need because it's probably a bit of everything. usajobs.gov might be a good website to check out.<br />
<br />
Cheers.

Traeder - Thank you so much for replying to my story!!! Your thoughts mean a lot to me. <br />
<br />
1) Ice is the devil incarnate! I certainly know what you mean about the awful feeling of your balance being compromised. I'm leery of anywhere I don't have stable footing. When I was kid I still attempted everything though! Note to self: Skateboarding is mean. (and I'm a girl! lol)<br />
<br />
2) Thank you. All aspects of life have changed since my mom died in 2007.<br />
<br />
3) I'm wondering how the more involved one was? How do you explain your scars? I wish mine was done over summer, that makes a lot more sense. I'm guessing my parents got whatever day was given to them by the Shriner's hospital. <br />
<br />
4) You could be right. It could be that because we're in control of bigger bodies with the same/worse musicle tightness that things are a big more... complicated? Sports are very frustrating. I tend to avoid them, unless I'm among good friends who understand.<br />
<br />
5) Ugh. Arthritis. I hope you don't get it anytime soon.<br />
<br />
6) Swimming is great. It's admirable you're pushing yourself to do other types of exercise, even if we can't do them quite as simply or as well as "normal" people.<br />
<br />
7) That's good advice, thank you. Right now, I'm hoping for ANY type of job. Right now, I dont hold any degrees so I'm limited to entry level positions. I've done telemarketing (horrible, mentally) and retail. The retail was fine, but I found that it wrecked hell on my body. Being on your feet for that long for that long is not going to be fun for anyone though. I'd love to try to get a receptionist job right now, but I'll take anything. The economy sucks. What sort of work do you do? Do you like it?<br />
<br />
----------------------------<br />
<br />
<br />
Courtney - Thank you for your reply, as well! I'm glad I changed your perspective. As long as you know who you are, and what your limitations are, and strive to be the best you can despite them. I think that's all that matters. Thank you for the best wishes. Same to you!

D**m I hate heel cord surgery. My sister had it and she almost died on the table. I had it and it helped me a little bit. But Uhhhhh. I hate it!

I agree with 'traeder'. Reading your story helped me to think about and analyze my own story. I had always figured that if an adult has CP than they really ought to know what type but your story has certainly changed my perspective. <br />
<br />
I wish you all the best in whatever it is you may do. Hold tight to whatever it is that you believe in and you really can't go wrong.<br />
<br />
--Courtney.

I really love this story, both because it is heartfelt and it is similar to my own in spots. Unfortunately, I don't have time to write quite as much as I want. Some thoughts:<br />
<br />
1) I haaaaaaaate ice. That's one of the most uncomfortable things for me still is to be in situations where I feel like my balance is threatened. It's tremendously disconcerting. I also hate roller skating for the same reason.<br />
<br />
2) I'm sorry about your parents. That is sad... in both cases.<br />
<br />
3) I had the heelcord surgery when I was 6 as well, and another much more involved one when I wa s 15. We did it over the summer in both cases so that I never had to go back to school in a walker.<br />
<br />
4) I'm not sure what you mean about balance and coordination getting worse, but I think I can relate. There are certain things that are definitely more difficult for me when they were when I was a little child. I think it's just because my body is bigger now, but my muscles are just as tight or tighter. As a result, actually moving and coordinating those muscles is much more difficult. Where I really notice it is that I can't play any sport that requires fast stops or starts. It's just awful.<br />
<br />
5) Arthritis is one of the most common side effects of CP. I don't have it yet but I know that eventually I will. Sorry. It's not unheard-of for young people even without CP to have arthritis. My roommate had it from the time he was a teenager.<br />
<br />
6) For exercise, swimming is the best because it's something I can do non-competitively, and there is absolutely no impact so there's very little chance of hurting yourself. I also like lifting, but there are some caveats I've run into along the way. It is really uncomfortable for me to lift legs and even though my primary spasticity is in my legs, I can affect range-of-motion in my biceps if I'm not careful. Other than that, though, I can do just about everything anyone else does (not quite as well), so I consider that a positive. Running has caused me some problems, but I love it. I have to be veryvery careful though.<br />
<br />
7) The job interview question seems to be a popular one. If you apply for a job with the US Government or some other employers there will be a spot on the application for disability condition. I think it's fine to check that box if you think it might help. I shy away from mentioning it in the interview itself because I don't want people to think it will affect my ability to do the job. I'd welcome any feedback from anyone else on this. What kind of job are you hoping for?<br />
<br />
Hope this helps. Any thoughts?

D**m I hate heel cord surgery. My sister had it and she almost died on the table. I had it and it helped me a little bit. But Uhhhhh. I hate it!

My god I'm 46 and I deal with the same things I have mild cp In my legs but my hands now are a mess but I wouldn't think it would be because of cp I'm starting to wonder. There seems you can't go anywhere for a answer