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I Have Cp

Hi I have mild cp that affects my feet, legs and pelvis.  I also have balance problems.  I was born in 1975, was 10 weeks early and weighed 3 pounds 10 onces.  I went to a 'normal' school, but couldn't always do the sports activities other kids were doing.  I had physiotherapy up until the age of 16, however it stopped when i reached that age.  Since then my feet, legs and pelvis have become a lot stiffer and this has caused postural imbalances throughout my body.  I also suffer from clenching my teeth at night which the doctors don't want to know about.  The tension in my head, neck and jaw from the clenching makes me have really bad headaches, nausea and dizziness.  This is quite debilitating as I already have balance problems with the cp, so find it difficult to cope sometimes.  i got married last year and have a very understanding and supportive husband, so in lots of ways I am very lucky.  

I just wonder if anyone knows of any therapies etc that would help with my cp and if anyone has cp who is reading this I would love to hear from you.
tashie26 tashie26 36-40 1 Response Mar 25, 2012

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Hi!<br />
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I have CP (Spastic diaplegia) in my legs. I grind my teeth and have jaw tension issues too. <br />
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My doctor has confirmed that the grinding and tension in my sleep is something to do with transferring my emotional tension, rather than my CP itself. Where 'Joe Normal' would have a tense back or neck due to stress, my jaw tenses because My back, Legs and neck are already occupied. Perhaps your doctors have assumed a similar thing about your condition and so have dismissed this as normal for you? I don't know, it's just a suggestion.<br />
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I combat both my CP and associated body stresses in a few ways;<br />
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Hot and cold therapies on my tense muscles (e.g) a hot bath followed by cold compress on my joints) They are effective if done regularly as your body begins to associate them with rest and recuperation<br />
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I wear a specialist gum sheild at night, that is molded to my teeth and therefore is vacuum suctioned onto them. It is plastic hard enough to protect my teeth and stop the jaw ache but soft enough not to cause headaches. This is something I had made by a specialist hospital.<br />
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I have regular physio, tailored to how I feel that day/week/month.<br />
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I go swimming in a warm pool which helps those muscles that despite not being affected by my condition are as far as the fact that they compensate. This helps me loosen up when I get to physio.<br />
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I have that lie in every week! And I go to bed early when I need to. I hate saying it but my mother was always right!<br />
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It might all sound obvious but read my story, I've never had surgery, never had to use a chair and I was born at 25 weeks weighing only 2lbs. Point is... it does all work.