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Proud Cp Woman Here

Yes I do. The medical term for my type is 'Spastic Ataxic Quadriplegic'. This means I have tight muscles, lack balance and all four limbs are affected. I use a motorized six wheeled black beast of a chair for mobility. It is in stark contrast to my thin, small frame and makes me look imposing. I can't help but get a sense of joy from that.

I was born at 22 weeks and was 12 inches and 960 grams, a tiny bundle. I spent months in the special care nursery before I was allowed home in 1978. I don't consider myself to be disabled, except socially. People just need to stop being "scared' of people with different abilities. Dig me or get out of my darn way. Cheers!

I am cool and happy just as I am, thanks. I rock. I am single and not fussed about my "relationship status" anymore. If someone witty and charming who is true enters my life, I will be blessed...if not, I will still prevail.

 

TheRealWoman TheRealWoman 31-35, F 67 Responses Jul 15, 2008

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Please see my baby girls video on u tube called " Kaylee". We are in need of help..please..I'm reaching hear..I'm a mother who is about to lose all hope and a dear friend made this video for her..Kaylee huff.

I am a doctor. I always used to see kids with CP in their weakest time, its my fisrt time to see someone with CP who is strong and positive as you are.
You are AWSOME !
You are an inspiration !

wow inspiration i have right side hemiplegia n still find it hard to explain to new people coz they dont get it

I do

What you have is "AWESOMENESS"

I loved your story I'm going through a similar experience awesome!<br />
Evan Post is where you post your comment

i have CP also we need more women like us in the world to inspire others

Awesome. I've got Spastic Diplegia. Though I ambulate around using wallls sometimes, I don't have the balance I used to, so now sue my forearm crutches in my apartment as well as for short distances indoors and out. I use a 3 wheel scooter for long distances, such as around campus. I was born 10 wks early, 3lbs 2 oz. Neonatologist was amazed when we went to see her when I was like 6, cuz I wanted to meet her, Turns out I had a small bleed on my brain, but she would never have dreamed I'd end up with CP. We do not know if that caused it, although I have my suspicions. I got a virus and had to spend 100 days in the NICU. I'm studying Special Education.

You, my friend, are a very strong person. So many people are bitter about their situations but it's wonderful to know that there are people like you who don't sweat it and just try to be happy and productive DESPITE their situation. Personally I would probably fallen into a depression if I was in your state so keep being all smily and happy! :)

I am reading stories about CP from :By: chloeltear in under EP : I Have Cerebral Palsy. <br />
Hope you too connect. I do not have CP, but my old flame really gave me something to live for.

Being premature certainly has its problems. I was 2 Months prem but that was in 1948 a long time ago! I spent 3 Months in an Oxygen tent and my Mother said you could put me in a pint milk jug!<br />
I believe I was less than two pounds, have had many problems but unlike you I am mostly fit and able, except that only last Month I learned of problems I have with my blader and bowell are congenital. Only taken 63 years to find out what caused my problems. I am otherwise very happy but have problems with my children. You must keep fighting for what you need and don't let the bastards get you down. Good luck to you and best wishes.

I am full admiration for you!

how did you get so positive i need to be like you.. help

You are indeed an inspiration. If you hadn't told us about the CP and just mentioned some of the problems, I would ever have thought of something this severe. Your inspiration is that you go about your life as if everything is normal, which is better than most of us do. You mentioned you type pretty fast with three fingers on one hand an one on the other, I'm glad you can type and express yourself so clearly. You are a very prolific writer. I'm looking forward to reading more of your stories and adventures, I'm glad I've found you on EP.

Sweet says it all, my kindred. You don't set yourself up as an example, but you are the epitome of everything that is pure (even when you're thinking impure thoughts;-), pure love, pure humanity and pure honesty and integrity in everything you say and do. xxx

I have a thirteen year old teenage son, and only this year found out he is alive and fine, being raised by an adoptive family. He also has cerebral palsy, under the same medical terms, and I can only dream he will one day be such a beautiful person as you are. It is sad indeed not being with him to make sure he has the love and support I could provide, but for now, just seeing your example reassures me everything will be fine in the end. Perhaps you do not consciously raise yourself as an "example" and walk around talking about what a good person you are, but the ones who stand by and see like myself and all your friends see it otherwise.

Thank you so much, sugarfooties! I don't hold myself up as an example, but I am always glad when I help others. I hope she grows into a magnificently strong woman! xx

Wow, what a spirit! In my years as a nanny, raising other people's children, I was privileged to talk care of a small girl who had Spastic Triplegia. I started with her at the age of three months. She had a spirit comparable to yours--I was trained by her physical therapist and her occupational therapist in all the things I needed to help her--from stretching her muscles several times a day to eventually patterning her, over and over again, to be able to get herself into a sitting position by herself. This child worked SO hard!! Unfortunately, her parents didn't want anything short of perfection--her father said it wouldn't be good enough for him if she were eventually able to walk with the aid of a walker (which she now does!), he wouldn't be satisfied with anything less than her playing soccer. What an idiot! I've been in awe of this child for years, even thouugh I no longer work with her, because of her spirit and determination that whatever it was, SHE COULD DO IT! Reading your stories and your profile, I feel that I'm seeing into an adult version of this little girl, and I bow to your spirit.<br />
<br />
Her family was moving, so the last day I worked with her she got herself into a sitting position TWICE in full view of myself and her parents. Her parents shrugged it off; I had tears of wonder at this tiny child who KNEW she could do it. Watching her that day was one of the most profoundly moving experiences I've ever had--watching her spirit triumph over her body's limitations.<br />
<br />
Thank you for giving me a glimpse into who I believe she will be one day!

Thank you for all of your comments.<br />
<br />
I will try and keep up, but Notifications have been not working as swiftly as they should.<br />
<br />
No pain on a regular basis, Kindal, just a constant tightness. In winter, it gets uncomfortable....and since botched surgery on my toes I can just stand in my lifting hoist, not walk. I used to use a walking fr<x>ame at times.

I couldn't help but smile thinking of you as that tiny beautiful baby :)

Hi babe, I didn't know but know you have a lot of courage, my disability is Bipolar, manic depression, have been in and out of hospital 4 times, but I keep going and remain hopeful, keep up the fight girl, your a winner!<br />
<br />
Love ya babe, and your a wonderful friend you have been rock for me!

very, very nice!!!

TheRealWoman...we have a special bond.<br />
<br />
You are one of a very few who understand my love for the Dark Goddess. She is the Dark aspect of Mother Earth. Her gift is pain. She is the aspect of nature that brings polio, <br />
Cerebral Palsy, flu etc… She creates Earth quakes, hurricanes, tsunami etc. <br />
<br />
Only the very wise understand that life on Earth depends on these and other natural challenges. <br />
<br />
You and I understand Friedrich Nietzsche’s quote “That which does not kill us makes us stronger.” We live the pain that is part of that quote and understand our pain is a gift from our Dark Mother…DD

I cant imagine what it would be like to be CP , the idea of surveying everything from an imposing throne is a very positive thought though. What the top speed have you sent any articles to motor magazines to review your throne, Best wishes

Very cool :)

What an inspiration!<br />
<br />
I was diagnosed with MS several years ago and I still have a hard time accepting it to be perfectly honest. I hope that I can come to a place of peace like you have about it. I know CP and MS are different but I just thought I'd add this to your awesome post.

Cheers geetar39. :)

Your pride and confidence are inspiring TRW.

I am only a freak when I say I am UT...watch yourself.

We continue, mewold...I admire you. I just meant to deny it, cast it aside or strive to cure it would not make me, Me. :)

My friend, I don't see the disability, only you. It is your fault. Your intellegence and wit and good nature causes me to forget it. So if you want me to see your CP as part of you, where do we go from here.

UncleTeo, I know your people and they tend not to see the person and -only- the disability. Your story illustrates this. I don't think anyone would like to be known as your crippled hottie. If I am wrong, my apologies.

Louise,<br />
Thank you for your comment. I want people to embrace my CP as an awesome trait, rather than look past it. If that makes me abnormal, so be it. It's lovely to know you!

I worked as a carer very recently for a man with CP and he is a very unique, special individual with a really fantastic sense of humour. He is quite severely affected by CP, with his mobility and speech and when I first met him I was shocked by this. However as I got to know him his personality shone through and I didnt see his condition any more, just the interesting person that he is. I am so glad that I met him as it really helped to open my eyes and I learned never to judge someone based on their ability or disability.

You are definitely someone that truly inspires me on a daily basis. I love your outlook on life. Keep on keepin' on! =)

*smiles broadly*<br />
Awwww...

Hugs kisses and if only you were local we could go for a drink together!

You have it all in perspective.....Like PhyWrk said, you rock!!

Sometimes for me, yes...but only if I forget to stretch and shift positions in my chair and bed. It aches when I am left flat all day. Not much different in my case to anyone else. I get more spasticity when stressed and anxious.

I just loved the imagery here ..<br />
<br />
"I use a motorized six wheeled black beast of a chair" ... "Dig me or get out of my darn way"<br />
<br />
ok, I know they weren't in the same paragraph.

I can relate, at least I have a clue. In 1950-51 a 1/3 0f my class were struck with polio. I was paralyzed in the legs. My best friend died in the bed next to me. I remember the children in iron lungs...I recovered the use of my legs and am the stronger for it.<br />
<br />
The greatest gift I got from polio was my love for the Dark Goddess. NO religion makes any senses to me if it can't begin to answer WHY our Creator would do this to the children. The “devil did it” is lame! The Dark Goddess takes the credit! OMGoddess!!!... DD

People are scared because of misunderatanding. A person is a person first and than a person with a disability.<br />
<br />
Carry on.

you have a great outlook with this. ill be praying for you!

It's great that you just 'get on with it' and enjoy life to the full. The wheelchair sounds cool. Is it pretty much the Ferrari of wheelchairs? I'm almost wondering if you have a turbo on it too. ;)

Thank you, but I'm just being me. :)

You are an inspiration to to others - both individuals with and without disabilities.

True. You are.

I can do a lot on my own, the daily care is the toughest to get quality help with.

I think it's pretty cool that you type well on your own. I am most impressed by your strength of Spirit.<br />
<br />
Joseph

Wow, you're really inspiring. Are you married? I've never known anyone with CP in a relationship. You are too cool!

I knew you before I knew you were disabled. I thought you rocked then and I think you rock even more now. You are an inspiration to me. Rock on, baby!

You are amazing.

Rock on Soul Sister!

You're a real star!<br />
<br />
When I was a child, in the 'sixties, peolpe with disabilities were'n really given a chance in life. Their parents often had to struugle on with no help. All-too often, when those parents became old and unable to cope, the children then adults - were put into homes and left to the care of the State.<br />
<br />
I'm glad that this no longer seems to be the case.<br />
<br />
A pal of mine was born with Spina Bifida and has been all his life in a wheelchair. He's never considered himself disabled and lives a full and active life. He's a talented (self-taught) fiddle pla<x>yer and never allows the fact that he can't walk prevent him doing anything. He has an army of friends who will carry him and his chair into any building that has no ramps or such<br />
<br />
He was the fiddle pla<x>yer in the band that provided the music for the ceilidh my husband & I had on the evening of our wedding day in 1995.<br />
<br />
Boy, did he NEED caryying by the end of the night, after claiming his Fiddlers dram at the end of every dance set!<br />
<br />
God bless you! You're an inspiration!

There are 200+ stories up about me. Enjoy them and more to come soon...but:<br />
<br />
As of right now...<br />
I am 30<br />
Single (with hope for new lovers soon)<br />
My cat is my "baby"<br />
I love music and am a pro groupie.<br />
Dark Chocolate is my sex substitute...<br />
<br />
Read on, dear EPers...the more the merrier.

You Rock! Tell us more about you. CP is not you!

My wife has CP, alfhough she does walk O.K., she does have a uniqueness to her stride. She had several surgical procedures before age 7, that allow her to walk today. One thing that stands out about my wife is her determination, she wont be stopped from doing anything she wants to do. I think thats one of the things that first attracted me to her, that attitude of confidence. Throught our years together, she's always gotten wierd stares and odd comments (the uneducated masses can be cruel!) but she handles it with humor and sarcasm, and never let's it get her down. The thing worth mentioning here, is that we're nudists. Over the past 10 years as members of our club, we've been to parties, cookouts, weddings, and several different resorts. Even with her scars from surguries past, she's perfectly comfortable being naked in our outings, and strangely enough, that's the one place where people are more respectful. No one stares, or comments, and some will politely offer assistance, though she seldom requires it. I think it odd, that the group with the "alternative lifestyle" were the ones who could actually look past the disability, and see what a great personallity that my wife has to offer. So keep up the positive attitude, there are those who see more than just a physical limitation, you just have to weed through the afore mentioned "uneducated masses" to find them. Stay cool, stay happy and rock on... feel sorry for those that don't understand, they're the ones with issues...

*smiles*<br />
I do the best I can.<br />
<br />
Thanks Nan, honeypie! You like indulging my penchant for the Georgia boy, don't you?

To use a southern American cheer: "YeeeeEEEEEE- HAW!

Yes Baby Doll.....<br />
<br />
You most DEFINITELY ROCK!!!!!<br />
<br />
:)P*<br />
<br />
HS!

cool. sounds like an awesome chair actually...your own throne from which to rule. one of my friends has CP...so far a chair hasn't been needed. but he has been told it is in the future. so far he uses a walker. gets a chuckle out of saying he has his sea legs, and follows the roll of the ocean when he walks. I don't know what specific kind his is. But his was from oxygen deprivation during birth. <br />
keep rollin' and screw any body who gives you crap.

Read my stories, more to come.

Besides having CP, who are you? What are you passionate about in life? Who are your heroes?

I have a friend at work, John, who also has CP. We work in a cubicle farm, commonly known as a call center. He's always joking about how he tries to keep his CP in a jar on his desk, but it manages to get out and follow him around, LOL !!!

I like people that have a positive outlook on life, regardless of their situation. A friend of mine has a lot of medical issues. I can't remember the name of one, it's really long. Anyway, her eyes can't focus, she's blind in one eye and almost in the other. She can see like 3 feet in front of her and not very well. A lot of people would be bitter and angry about that but she's not. She laughs about it, is very positive and pleasant... She's amazing. You remind me of her.

Thanks mother and winnebago, much love!<br />
<br />
Weretree, no I don't, I can actually type quite fast with three fingers on my right and one on my left hand that aren't bent too badly. It's all good!

power to you

Believe me, I went through a lot to get this outlook. Tell him to keep rockin' and with family members like you, he'll find his comfort and place. Stay awesome, mate!