My Husband Has Chronic Pancreatitus

Dear All,
I am not a pancreas patient, I am a wife to a person with chronic pancreatitus and hypertension. I live in Texarkana, Texas, but I am from Sweden, my husband is from Texas, and my kids are Swedish/American. We've lived here for about 6 years now. My husband got the diagnosis of CP 3 years ago. It did not started out to be chronic, but It became that way. It's been a roller coaster, and many doctors just simply saying that there is nothing you can do, you need to learn to live with it and take all your medications, like hydrocodone, finnegan, pancreas enzymes, and all his other blood pressure medications. It is draining and hard, tiresome, most for my husband, cause he's the one in pain, but also for the people he lives with, us. I am often sad and frustrated with many doctors who just says " THERE IS NOTHING YOU CAN DO"! I don't know where to turn to get some help. Our friends, the few we have, I don't want to overburdened because maybe I will need them when I really will need them. I am a Swedish citizen(with permanent work and residence permit)., and I don't even sometimes know what they all say and what it means? We all, the whole family feel very lonely, burned out, and don't know where to turn and get some emotionell, and spiritual support, and medical advice.
Our Church has been wonderful and very supportive, flexible, patient and understanding, (my husband is a minister within the United Methodist Church), and you don't want them to worry too much. My husband is not getting any better, and I am scared for my kids, and for me what's gonna happen if he passes away, I mean I have read that this will only lead to death? Not very uplifting. I am tired and worn out, and don't want to see anybody, especially from the church, because we're supposed to be the ones who help other people, but how can we, when we are suffering, and we are the ones who need help. His boss has mentioned that maybe he will go on disability, but I have no idea how that is going to work out, except I'm thinking that when that happens I want to move back home, because we will not be able to support ourselves. I am going to college right now, because I haven't been able to get a job. So,......... Is there a support group you can turn to, because we desperately need it.
I am sorry about my English, but I wanted to write down what I was thinking and feeling. I would appreciate a response from somebody out there with some encouragement. The wife.
EvaGarrett EvaGarrett
41-45, F
2 Responses May 18, 2012

I third the opinion of trying to get to U of MN. I just came back from there. I live in NY and have had CP for 10 yrs. I have been told as well that there is nothing that can be done and I have to deal with it. That is until the U of MN angels. If you can try to be seen there. They have been doing pancreatectomies since 1977 and are very well educated on this disease. They also want to help, you know, you are not just another number. They actually care. I would look into if it is at all possible, get your husband there. I will be praying for you and your family.

I wish I knew what to say! I'm sorry for your troubles right now. You and your husband (of course the kids too) are in my prayers! I would definately listen to Jessacara, she is well versed with the University of Minnisota. I have heard wonderful things about them and they are the leading research center for Pancreatitis right now. There is also a company called "Angel Flights" that will provide you transportation there if you can not afford it yourself. Good Luck.