New Experience

I realize that Christmas shopping can be exhausting, along with working full time and going to college. However, this was beyond exhaustion. The upper abdominal pain would get worse with every step I took. So exhausted and in pain, I couldn't attend my family Christmas reunion.

I had finally reached the morning that I thought I was going to die from the pain. I called my PCP on Christmas Eve morning. Luckily, she was open. She immediately sent me to the hospital along with her hand written instructions to test me for Pancreatitis. Unfortunately, the hospital doctors ignored her request. I was happy to have some pain medication, but the rest of the treatment sucked. They sent me home after 4 hours with a diagnoses of stomach craps.

Christmas Day was awful! And by the time I went to lie down in bed, the pain increased x10! All I could do was scream. My husband called an ambulance. Back into the same ER. As soon as my blood work came back, I was bewildered. My pancreatic levels were 9600. I thought death was next.

I was told I have Pancreatic Duct Divisum. A congenital disorder. Great! What is that? My gastroenterologist came into the hospital to see me and recommended a specialist.

I have suffered with IBS and Acid Reflux for years. But this was beyond anything I could have imagined.

I was in the hospital for 4 days. Came home and made an appointment with the specialist. I had to wait 3 weeks! At least I thought I did until I had another "attack". Then it was off to the hospital the specialist was at. My levels were over 5000 this time. I had an ERCP done and had a temporary stent put in (7 days). This time I was in the hospital for 8 days due to another "attack" prior to the ERCP. I was sent home with the diagnoses of Chronic Pancreatitis.

Since being home, I have had 1 minor "attack". The specialist told me to try to ride them out at home with pain meds. I have lost over 25 lbs since December. I am on enzymes and trying to eat right. But my upper abdomen is still bloated and I don't feel like eating.

Can anyone give me any advice on the road to healthiness? I read a lot about a shortened life span, but I have hope.
Mochalas Mochalas
41-45, F
1 Response Feb 10, 2013

I think for everyone it's different. I can definately relate to your story. In the last year I've been hospitalized numerous times and am in here now. I follow a low fat diet. I eat many small meals throughout the day. Just since november I dropped over 20 pounds. I stick with lots of grilled chicken. Fresh veggies. Green veggies especially. Chicken broth is a staple. All low fat dairy products. I snack on almonds a lot during the day. Google different types of diets specifically and experiment. I never feel like eating especially after an attack but I start to introduce things back slowly. Drink lots of water. Avoid carbonated beverages. Although I do occasionally sip ginger ale on ice.
In my experiences with this awful disease I am learning by trial and error. Small tastes here and there. Salmon is very good. There's a lot of foods out there. You just have to experiment and see what works for you.
One woman on here said she has her son drink tomato juice everyday and it helps. I do that as well. I like the mini cans of v8. Start small. Maybe get a nutritionist.
Hang in there. You will see what works for you and what doesn't.
I'm in the same boat. It's not fun but these are the cards we got dealt.