Mother Of JuliaJulia is perfect just the way she is, but we want to be sure and help her be the BEST Julia she can be! That's what we've said for nearly 7 full years now.
We noticed she wasn't hitting all her major benchmarks as early as 9 months old. Ever since we've been looking for answers. She is now 7.5 years old and thanks to a brand new testing, we have answers!
Coffin-Sirris Syndrome was found! Interesting that she doesn't have the 5th digit portion but many other symptoms are right on... We're anxious now to see what works to help people with this, perform at their BEST!
I wish all who have this well and will continue to pray for more answers for us all!!
tchavira 31-35, F 3 Responses 0 Jul 21, 2012