I Had A Colloid Cyst Of Third Ventricle , Luckily Removed By Operation.

I am 34 years old, I always had frequent headaches which I believed was a migraine. I hated sound and light , it may well be migraine symptoms and I might be a migraine sufferer but my experience changed one evening when I had a headache and I felt a loss of vision in my right eye. I consulted my GP the next morning, I told her that I feel pain as soon as I change my position for example as I stand up from sat down position or get up from lying down. The GP checked my BP and prescribed me with some pain killers.
I went home and I could feel a constant headache as well as a spark as soon as I get up. It was gradually becoming unbearable, I was vomiting and no food or medicine was staying inside my stomach. My wife phoned NHS out of hours line and a mobile doctor came to visit me at home, I can not remember what happened then but I was told he gave some different pain killers and sickness tablets. Nothing seemed to work. We waited few hours and later in the evening my wife called an ambulance and they took me to A+E in our local hospital in Greater Manchester Area in the UK. They assessed me and a nurse asked me to go home in a rude way. I tried to get up but I felt a sudden spark in my head and I lied down again and I refused to get up again.
They called a doctor and he suggested them to admit me in the investigation ward. Overnight I had a fit and then they realized that it is something serious than a migraine. I was sent for a CT scan which revealed a colloid cyst in the third ventricle and due to the headache and vomiting for about a day and half my brain had been under a lot of pressure and swelling. I was unconscious almost all night.
In the morning they shifted me to Salford royal Hospital neurosurgical unit for an operation. when I gained consciousness I had undergone a three hour long surgery to remove the pressure by inserting a shunt, I could not believe what happened but I was able to recognise everyone. The doctors told me that I would need another operation in two days to remove the cyst from my brain. And they did it after two days. the operation was successful. I recovered quickly enough.
My short term memory had been affected severely but it improved with the time. my family supported me to fill the gaps in my memory.Now its six months after the surgery and my memory has improved up to 90% in my opinion. I do not have the frequent headaches or migraines any more.
I was diagnosed at a later stage because all the doctors failed to look into my eyes during their examinations. It could have given an early indication of the illness, I was told this by another doctor after the operation.
My driving licence was revoked by the DVLA which I am hoping to get back in the near future as I have demonstrated a six months non driving period. I feel fit to go back to work and am looking for a job. Thanks for taking time to read my story. For everyone who is suffering from this illness or have been operated, always stay hopeful.
I am very much thankful to the neurosurgeons and their support staff at Salford Royal Hospital, who operated on me and saved my life.
Humble34 Humble34
31-35, M
2 Responses May 10, 2012

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I TOO HAD A COLLOID CYST OF THE THIRD VENTRICLE REMOVED IN 2007. I TOO LOST MY MEMORY FOR ALMOST A YEAR BUT REGAINED IT AND WAS ABLE TO RESUME MY JOB AS A DR. PEOPLE TOLD ME THAT I WOULD NEVER WORK AGAIN AND THEY WERE PROVED WRONG. CURIOUSLY I SUFFERED FROM MANY YEARS OF CHRONIC DEPRESSION AND TOOK MANY MEDICINES FOR THE PROBLEM. AFTER THE TUMOR WAS RESECTED I HAVE NOT HAD A DAY OF DEPRESSION AND FEEL GREAT. I OWE MY RECOVERY TO THE SUPERB SKILL OF MY NEUROSURGEON, MY WIFE WHO NEVER ABANDONED ME AND MADE SURE MY COGNITIVE FUNCTIONS WERE ADEQUATE AND THAT I WAS WELL CARED FOR AND PROTECTED AT ALL TIMES. MY THERAPIST ALSO DESERVE A THANK YOU FROM ME. MY STORY IS VERY REAL AND 3 YEARS LATER I AM WELL AND FUNCTIONING AT A HIGH LEVEL. FOR ALL THOSE PEOPLE OUT THERE WHO ARE CHRONICALLY DEPRESSED AND DON'T EXPERIENCE IMPROVEMENT FROM THEIR PSYCH CARE HAVE YOUR DR PERFORM AT LEAST ONE CAT SCAN OF YOUR BRAIN AS IT MIGHT SAVE YOU LOTS OF MISERY JIM

Its nice to hear that your have recovered from this painful condition. I can surely understand what you have gone through. All the Best.

Its so strange as I have just had a colloid cyst removed by the amazing Neurosurgery Dept at Cardiff University Hospital South Wales. It was pure chance that we found it - following an intense year of heavy duty exercise and I came home to visit family - did an exercise called GRIT and it felt like someone had knbifed me in the head - I waited 6 days with the most hideous headache I have ever had (I could not even lift up my head) and whilst visiting my friend in Cardiff she took me to the A&E Department. It was there that the A%E Dr sent me for a CT scan and they found it!

I was recalled to see the DR the following Monday where she told me that the cyst was in my third ventricle just like you Jim! I had the operation on the Friday and I was terrified but I knew I was in safe hands - every single person who works in the Neuro Ward at Cardiff is just wonderful, from the bottom right up to the top - they are a machine that operates perfectly together and I can never thank them enough!