My Daughter's ExperienceIn April of 2010, my 11year old daughter bumped her head on the wooden bannister at home. She didn't say anything to me about it but later on, while out shopping, she began to complain of severe headaches, sensitvity to light and a soreness around her head. It wasn't until June that she was diagnosed with Complex Regional Pain Syndrome. She has had a lot of time off school with this as the pain can be unbearable. She recently fell and hurt her shoulder. When we took her to A & E, the doctor saw the words Complex Regional Pain Syndrome and just dismissed her without even an X ray.
Last week, a boy at Emma's school grabbed hold of Emma's knee and twisted it. She was in a lot of pain and was sent home. It took two days for the pain to subside.
I have just come from a meeting with my daughter's head of year who basically told me he believed that Emma was faking her illness to get attention as she was crying so much and "making a fuss". I am so sick and tired of having to defend my daugher agaiinst such idiotic claims. I have lost my job as a result of this curse and she has gone through almost 11 months of misery and pain.
Are we alone in this?
Why do people know so little about this? Are there any similar stories to my daughter's story? We feel so isolated as we only get to see the Paediatric Neurolgist once every four months. She is showing improvement but now she just feels like everybody believes she's lying.