First Day Of The Rest Of My Life With Crps.

I was never so thankful as I was today sitting at the Dr.s office and having him tell me that the pain in my arm had a name, it was real, I'm not crazy. CRPS it sounded ok I could deal with this, Im a fighter, I'm going to beat this, I'm going to heal from this and be able to get back to my life..... At least thats what I thought till I got home and started reading about my wonderful syndrome...Now Im just afraid. I have had my arm swell to the point it looks like it belongs to a body builder, I have so much pain I can not tell you when I last slept all night. i am afraid to go out of my house because someone might touch me and ill be in so much pain im vomiting. I have mood swings from happy to sad to just wanting to have my arm removed to make the pain stop, I cry alot and have for months. I morn the life I had before my surgery when I could draw and paint, or even write a letter without burning pain... And on top of all this I have no medical insurance so treatment for most of my symptoms will go untreated. Can anyone tell me of any programs that help pay for medical care?
i am finding it harder and harder to open my hand, my fingers dont hurt as much when they are curled in. And Im glad its winter because hoodie front pockets take pressure off my joints.
On a side note I have never wanted a hug so much but been afraid to get one because it means moving my arm and it means having someone touch me.
It feel wrong to say this but Im glad I found this site to be able to read that others are in the same place I am. Good luck to all of us.
An Ep User An EP User
1 Response Jan 16, 2013

I know exactly where you are coming from. I have CRPS type 2. I went undiagnosed for 5 years, and as a result there is almost nothing that can be done besides pain management. If yours was caught early, there is a great chance that you could be treated and go into remission. As far as medical help, I know in my state there is low income medicaid. You could also apply for SSDI. That would give you insurance if approved. You might also try calling United Way. They may have programs that can help you. As far as immediate help. Try taking NSAIDS (ibuprofen or naproxen) to help with the swelling. These medicine aren't strong enough to really help with pain, but should help with swelling. Try heat or cold compacts. Attempt to exercise the arm. I know that is easy to say, but it will help. Do not let the joint become stiff, as this can progress the disease. Also, try to get help for the anxiety and depression you feel. This can cause the pain to be worse. Hope this helps. Feel free to contact me if you have any questions. Good luck!