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I Have Complex Regional Pain Syndrome, Type I

I Was Just Diagnosed With Crps 1 Following A 2nd Back Surgery

By: LLgirlsmommy
Written on February 23rd, 2010

I was just diagnosed and I am not sure of anything yet.  I know it hurts, it's more the constant numbness, pins & needle feelings, exhaustion, and cold/heat flashes.  The dr.s first suspected it after the skin on the bottoms of my feet started cracking and drying and now it's happening to my hands.  I just had my first round of spinal nerve injections and they are repeating it in 2 weeks.  At first my dr.s were so wishy-washy about diagnosing me and it was driving me nuts because it was so obvious by the symptoms.  And now we are working on getting my pain managed.  I have 2 little babies and am still recovering from my 2nd spinal fusion.  I've found more info about the condition on the internet than from my dr.s.  It's so frustrating.  At least I finally have a diagnosis and they are starting to treat it.  :)

By: LLgirlsmommy
Age: 26-30 , Female
1,336 people have read this story

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    easyloper
    easyloper

    Glad you got diagnosed and you are on the path to the right meds for you as these are so different for everyone. I always enjoy hearing about people who are able to move forward (we all have our bad days) and live life! I hope you find some comfort. I didn't even know epsom salts and warm water would help until I read it here! I have learned so much since finding this site and I've had it over 3 years....I don't know what took me so long to look for information/support.....nice to meet you, hope you are successful in treatment.

    Jan 2, 2011
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    actressjewelrsd
    actressjewelrsd

    The most important thing is to do exactly what you have done research and get to know RSD and how to cope with it. I had the epidural nerve block 4 times and the first one was the most effective. I almost felt like it was gone for 2-3 weeks. The rest kept diminishing in their effectiveness and the last one left my back really sore and I actually feared it may have made it a litlle worse. I now am on Lyrica and Nortriptylene at night for breakthrough pain and to help with sleep. I am glad that they are starting to treat it, it takes trial and error for what works best with each individual. I did physio and aquafit that helped alot - exercise is key! Warm baths with epsom salts help with pain and improve circulation. Warm/ moist heat pads are your best friend. Mindful meditation, pain groups, support groups are wonderful.

    Take care,

    Dec 30, 2010
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