Conversion Disorder With Seizures

I am now 16 and have had CD for a little over 1 year. It all started when I jerked in one of my classes and it was fast but even now I remember it like it was yesterday. After it me and friends that I was with just shrugged it off. Then there was more I would more and I was getting scared. It was hard when people made comment like it looks like I'm dancing or something like that. For a time it looked like full out seizures. On episode happened when I was in a doctors office and she looked scared. I am going through therapy but it happens when I'm by fireworks. I found that out when we went to a theme park with fireworks at the end and all the problems just came right back. I want to know if any one else had dealt with seizures if so please comment I would love to talk to someone who knows that fear of the your body moving with out you.

-Deanne
TheBlueAuthor TheBlueAuthor
18-21, F
11 Responses Jul 14, 2010

i have siezures too! im 16. right now they seem to rule my life and i feel very lonely sometimes. would you mind swapping advice with me?

i have siezures too! im 16. right now they seem to rule my life and i feel very lonely sometimes. would you mind swapping advice with me?

Find out why sets off your seizures and find ways to keep you self calm like I had a calming crystal that I would hold onto when I was feeling like a seizure would come. Feel free to message me if you want to talk more privately or more about your own life.

HI <br />
I Feel for you ladies, My daughter was recently diagnoised with CD last sept after a 2 week stay in the hospital. She is 27 and has two children and finding it very difficult to cope. wanting the seizures to stop.<br />
She takes her meds and see's the doctor regular. She just wants her life back with kids, I am open to any suggestions, we are doing therpy, counsleing,everything we were told to do when she was first diagnoiesed. We've to ever doctor under the sun I cant help but think they are missing something.

The most important thing to do is to stop thinking that is something else if she has all the proper tests and they have come up clean then. You really want it to be something that you can point out on a scan, but that is not the way with CD. You have keep working at it. Also find what kind of things set it off, like for me if I am around loud noise it sets it off, and try to keep away from those things. So keep supporting her and as much as you can, it can feel like you are all alone in the seizures.

I am 40 and just found out that I have conversion disorder. I understand the fear you have had. It took a year to diagnose me and I thought I was dying. I had seizure after seizure. It took fourteen hospital, several tests and a brain scan before I was finally diagnosed. Now I have some relief but I have alot of questions. How did I get this? I was perfectly healthy until this year. I don't get it. I am constinently having little tremors and still have no control over the seizures. Maybe you can answer how to deal with this disorder.

I started on some anti anxiety medication and that really helped me at first, but from then I just try to breath and think about some thing else. I know it can be really hard, but you just can't let it get the best of you. Also find some who you trust and you can talk to about what is going on.

Also make sure to keep track of times that your seizures get worst and avoid them.

I am 40 and just found out that I have conversion disorder. I understand the fear you have had. It took a year to diagnose me and I thought I was dying. I had seizure after seizure. It took fourteen hospital, several tests and a brain scan before I was finally diagnosed. Now I have some relief but I have alot of questions. How did I get this? I was perfectly healthy until this year. I don't get it. I am constinently having little tremors and still have no control over the seizures. Maybe you can answer how to deal with this disorder.

have any of you tried the boston medical center? I've read online they have the specialist there. I just feel like they are missing something medically, nothing seems to be helping my child at this point, its very frightening and i wish for all of us they could find out what is causing this, as I'm not really buying into the nothing physically wrong answers we've heard. abnormal eeg's, seizures, paralysis, memory loss,,,,,it is baffling but so many lack of answers or success of treatment just makes me feel like they are missing something.

I know it can be hard that you don't think anything is wrong, but just keeping going with testing can make some feel like some thing should have shown up and it is their fault that both that and thee seizures are happening.

I too am getting fustrated , and wondering if there is something the doctors are missing. My daughter does her therpy, counsling , takes her meds everything they told her. she will be fine for a few weeks maybe a month and then the seizures start all over and she loses her speech and the use of her left side arm and leg. It just seems more and more things are setting her off.

Hi, i have had severe issues with CD for over 3 years and cause of it i had to file early SS Disability. I have had friends, family seperate themsevles from me cause they couldnt deal with all the seizures and other issues i have had. I know have permament right side weakness and have to take 8 pills a day to get thru it without severe issues and i was just recently told by my neurologist and shrink that i will never be able to get ride of it and that i will always be like this. They said that im one of the few rare cases of having severe probs with the CD and what makes it worse is that after 3 years of seeing a shrink they told me that they cant figure out what is causing the Conversion Disorder. It has affected my life to the point where i have lost my license and i was medically discharged from the military where it first started. Im a single father and have had to move back in with family just so i can take care of her and that has even been a struggle. So there are people out there who know your pain and are there for support.

I'm 17 years old and developed conversion disorder on christmas eve in 2006, when I was thirteen years old. It destroyed my life. I lost friends, I was mad fun of and people treated me like a crazy idiot. but I fought back. I fought for three and a half years, until this very day. I used to have pseudoseizures every two minutes, now i have on every six weeks about. I know that this is a very crippling disorder, and honestly, I'm glad to know I can walk and talk (talking is sometimes difficult, but i'll deal), because after reading some other stories on this site, and knowing that it has changed their abilities to walk and talk, i'm thankful I can. <br />
But like I was saying, three and a half years later of being diagnosed, I am back to being popular at school, loving my life and leading a mostly normal life. I'm in musicals, I dance in classes, I've lived in a different country, everything. The most important thing I learned (and this experience I feel has made me wise), is that you can't let it define who you are, just treat it as something that u have to deal with, and don't make a big deal out of it (not saying you guys are, because it is a big deal, trust me) but if you just ignore it, which i found was really hard to do, it kinda just stopped being as bad. <br />
thank you for letting me share my story, i wish you all the best in recovery, and hope i can help someone with this.<br />
love,<br />
Kevin

i have a dear friend that has been diagnosed with this. she has speech ,shaking,full blown spasms and vomits and can hardly walk afterwards. she has been going through this 6 years now she is 42 she is very enbarrased by this and thinks she is the only one like this i am going to share your story with her in hopes to show her she is not alone in this.she is not willing to accept this and i so want to help her to get well do you have any ideas how i can convince her to seek cyciatry help. thank you and may god bless you deedeegirl66@yahoo.com

I think she needs to do it on her own. I recently been diagnosed and it is very hard for me to deal with it. She will eventually go to get help. just be there as a friend.

Hi Deanne,<br />
I'm 17 and I have had CD for a little over a year as well. My episodes look very much like full blown seizures and I know exactly how you feel. Please read my story :] Maybe we can e-mail sometime RADchild080392@gmail.com ^___^<br />
<3 Heather

Hey Deanne,<br />
I'm 21 and i've had CD for about 7 months now. I don't have full body seizures but my left side will spasam out of control. looks something like parkinsons when you watch it. it is really scary and for me extremly painful. Have you been having physical symptoms still after a year? Everything i looked up on it made that seem unusual. but the longer i've gone like this the more i kinda feel like i'll be dealing with it forever you know?