I Have Cvs...

I just recently got diagnosed with cyclic vomiting syndrome after 3 years of constantly being in the emergency room with symptoms of vomiting & nausea. They have done every test they could do. I have been on too many different prescriptions to count and still haven't been cured (or any symptom relief) It started when i was about 16 or 17 years old and had made problematic for school and in later years for work. The episodes usually start in the mornings when i wake up with symptoms of soreness in neck and back and stomach pain that leads to vomiting. Episodes usually last from 1 day to a week with possible small windows of time that i feel well enough to drink some water then shortly followed by more nausea and vomiting. Other times i have gone over 2 months with no signs or symptoms of cyclic vomiting. Sometimes certain foods seem to trigger episodes, other times the same food will not bother me at all. Sometimes stress seems directly related to episodes (family gatherings and holidays) (social situations). Although adrenaline has seemed to make or keep me feeling well on some occasions. I still haven't found a medicine to help and was wondering if anyone could suggest something that helped them??
abbielilyseth abbielilyseth
3 Responses Nov 30, 2012

I have suffered CVS for the last 5 yrs now, it has devastated and emaciated me tooo many times! With 2 Autistic sons to care for and a 13yro daughter, my life is nothing like it used to be, but I'm making the most of it, and I'm well on my way to a long remission I hope! I just hit 118 lbs and I will be using my new healthy body to enjoy all I can! Hang in there! (>‿◠)✌

My daughter takes Propranolol (generic for Inderal). I also give her ibuprofen when her stomach/head starts to hurt. Hope this helps :)

Hi I was diagnosed with CVS when I was 16 now I'm 32.

I was in and out hospital no docs understood the illness until i got in touch with CVSA when I was 22 it got to the point I really needed help and support with this illness.

I got in touch and they gave me details of a doctor that specialised in CVS. I thought great someone who understands! He did various tests and tried medications which are Amitriptyline 25mg a night and when an attack started of CVS, Zofran which is an anti sickness and Lorazepam which made me sleep during an attack and this would stop within a couple of hours. I started this treatment and as the months went within that year of when I was 22 the CVS was less frequent compared to before. I was having an attack every 2 weeks which lasted 5 days each time (was always on an occasion etc) before this treatment and did not need the Zofran and lorazepam so much. When I was 23 that was the last time I had a CVS attack and did not need the Zofran and Lorazepam anymore. I still take today 25mg Amitriptyline every night but this drug has stopped it, and I now for nearly 10 years have a normal life.

I hope this information helps.