I Have Lived A Life Free Of Doctor Visits Except My Annual Check-ups.

I am 31 years old and learned about my condition when I was 16 because they found a lump in my breast and had to do a chest x-ray. The news was you do not have cancer, but you have situs inverse and dextrocardia. I had all the question of what, how,and how will my life be effected. My mom was present and said “that’s right they did tell me about that when you were a baby”.
I had really bad chest pain and shortness of breath a few years back and was rushed to the ER, and BOY DID I FEEL LIKE A SPECIMEN. Every time I see a new doctor I always have to be the one to explain my condition as if I am the doctor. Just once I would like to visit a doctor and they know about my condition and can answer my question and me not leave the visit feeling like this was a waste of my time.
I continue to have chest pain, and I have this consist pain on my left side which two years ago I had surgery to remove a two tumors but I still have the pain. Also I have constant tingling in my legs and arms. Does anyone else experience symptoms like this 
I mostly am on this site to connect with people who have like experiences and know where to find specialize doctors in the area of Situs inverse and Dextrocardia.
jpurple347 jpurple347
31-35, F
1 Response Apr 12, 2012

I think that the condition is just too rare to have any doctors specialize in it, but if you do find them I'd love to know about them too!!