My 8 Year Old Son

8 years ago my son was born and it was found that he has dextrocardia situs inversus and kartagener's syndrome. The doctors didn't think he would make it through the night, but we have gotten 8 years so far! He has had 5 sets of tubes, and his tonsils and adenoids removed. He has now had 2 bronchial scopes done and has just been diagnosed with atypical tuberculosis...I'm not sure why he hasn't had more scopes done to suck out mucus, but he hasn't. This is something I am going to ask the lung doctor about, especially since we have been seeing him for 8 years...he also has asperger's autism, ADHD, and oppositional defiant disorder...but just looking at him, you can't tell that anything is wrong with him! I am very thankful for that! The hospital where he was born sent him home with pneumonia and didn't bother to tell us...so that wasn't much fun...when he was 2 he had strep throat and when he was 5 he had mono....it's been a weird journey for all of us, but we just take it one day at a time....
Chrisie30 Chrisie30
31-35, F
4 Responses May 20, 2012

hey i also have kartenegers syndrome and possibly adhd as i find it very hard to focus all the time. A friend of mine reccommened i try adderral but after reading some reviews it is said that it can be potentially fatal for people with heart problems. Im not sure this applies to me because situs inversus is not exactly a heart problem more so its is just positioned differently. Has anyone else with kartenegers syndrome ever taken adderrall or any other medication to help with their adhd?

As of right now he is on 3 different medications for behaviors, risperdal helps with the asperger's, tegretol, helps with his aggression, and concerta, which helps with the ADHD.....we also try to not eat processed foods....currently don't own a microwave for that reason.....and he is also getting help through Helen Ross McNabb.....he was moved down from their IDD( intellectual development delay) group to their IST(integrated services team) and he has an IEP at school to help him stay focused and on task.....so far with everything combined it seems to help.....

Chrisie30,
We are in the SAME boat. My youngest son is 8, situs inversus, aspergers, ADHD. I would like to know more about how you help your son, and would like to share all that we do. PLEASE get in touch so we can start an e-mail discussion. Our kids are one of a kind and we need to stick together.

hi im 66 yr old ive had the same problem with the fluid in the lungs near all my life ive got in the habit of layin down on my side and coughin to get it out it may help the little fellow take care and bless him