When I was 17 I started having weird medical problems, I was going to the washroom ALOT and was having weird anxiety, my heart would palpitate really weirdly, blurred vision, weakness, fatigue, feeling faint disoriented. I went to my doctor and i had tons of tests done and they came up with nothing, possibly just overactive bladder and anxiety disorder but i wasnt convinced. Then they found out that I had Reactive Hypoglycemia. I went off sugar and caffiene completely and things did improve but not completely.
Then it got a lot worse in the past year i started having horrible gastro problems. I couldnt eat anything without diarrhea and then boats of constipation. Eventaully it got to the point where i couldnt tolerate any wheat, gluten anything fatty. But test after horrible test they couldnt tell me why. My doctor eventually just said it must be IBS. Still I couldnt understand why a 20 year old girl who doesnt drink, smoke, do drugs, or eat any kind of sugar or junk food could be so sick all the time it was one diagnosis after another that just seemed to be a guess by my doctor nothing definative. It got so bad I couldnt go to university and had to drop out a semester because I was nearly passing out every day on the train. I had to scale back work to maybe 2 shifts a week and even then that was hard. Finally a week ago after 8 days straight of horrible vertigo i went to my doctor and he diagnosed me with benign positional vertigo. I had had enough, i started searching myself, medical journals, websites, text books anything and many things looked had some symptoms but not all. Then i found an article on POTS that would explain all the diagnosis i had had so far plus the rapid heart rate a dropping blood pressure upon standing, the intolerance to heat the pooling of blood in my legs, seeing black dots with weird blurred vision.
I havent been formally diagnosed, but for the first time in 5 years i feel that I have the answer to why my life has been so thrown upside down. I have a tilt test next week and as weird as it sounds i hope im right and i'll put an end to this horrible feeling of not knowing whats wrong. Feeling like im dieing and having the doctors brush it off as stress or anxiety, or as my doctor like to put it "Some people just get things and we never know why".