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I Have Endometriosis. My Story

I got my first period at the age of 10, about 6 months before turning 11.
From that day on, my cycles and female organs have been a roller coaster of pain and torment that has never stopped, and I'm now 35 years old.

Along with the horrible cycles, I started getting horrific migraines, cysts, frequent bladder infections, yeast infections, and Bacterial Vaginosis...

My parents had me in and out of emergency rooms, and from one Doctor to the next, trying to find out what was "wrong" with me... No one could ever give an answer...

Then at the age of 21, I met my husband and moved out of state with him because he was Airforce... All those same issue's still plauged me, and on top of those came painful sex, and even more pains that seemed to be getting worse as months went on.

So again, here in a new state thousands of miles away from all the other Doctor's I had seen in my home state, I began to see Doctor's here. Playing the Doctor yo yo game. None of them could give me an answer, some looked at me as though It was all in my head, while others accused me of seeking drugs ( even though I refused narcotic pain pills from previous doctors)...

I was at the end of my rope, I wanted off of this roller coaster, I felt alone, and just wanted to feel "normal"... I started charting down every single thing that would happen with me and the pains, kept a journal so to speak.

Then I went to the one last Doctor in this state, and handed him the journal that I had been keeping. I was blunt and firm, I looked him right in the eye, and said " I'am not drug seeking, I don't want pain killers, I've been from Doctor to Doctor, from er to er in 2 different states, I just want a Doctor who will HEAR me, and LISTEN to what I'am saying, this is MY body and I KNOW something isn't right, you will be the LAST Doctor I turn to, please tell me you can help:...

I was quickly amazed, that he was actually listening to me, he didn't interrupt me, he held eye contact, and then shocking of all, he read my entire journal right there in front of me!

When he was done reading, he paused, and looked at me, and said "have you heard of endometriosis"... I said, no I haven't...

He took me into a small room, that had a chair , tv and vcr, he put a tape in and told me to watch it, and when it was over he would come back in and talk to me.... I sat there watching the video, and everything the video talked about was ME! For the FIRST time in so many years, I felt a little relief, thinking "im going to be normal soon"!

When he came back in the room, he told me the only sure fire way to diagnose it was through a laporoscopy, but that he was positive that endo was the case... So we scheduled the surgery, and sure enough, came back in the recovery room and told me I have endometriosis....

After the surgery and healing time, I had to go back and see the Doctor again, he wanted to see how things were and start me on drug therapies..
In his office, he told me of a few choices, birth control, lupron, and hysterectomy....

I said no to all 3 options for various reasons. I was 30 years old, and I didn't have any kids, my whole life I have wanted to be a mother... The lupron puts you in early menopause, and there's no coming back from it, so that was a definate NO for me. I told him I wanted to give myself a chance at having a baby, even though he didn't think it would happen...

So he agreed, and put me on clomid, to regulate my cycles so I would ovulate... It took 7 months of that, and I finally got pregnant...

Everything seemed to be going VERY well. After having my son in 2010 I breastfed for 13 months, soon after I stopped breastfeeding, the horrible roller coaster was once again back, with a vengence!

I'am blessed to have my son, and I thank god for him, he's my reasons for trying at everything I do in life, even fighting endo.

I can't say that I want more kids, but at the same time I don't want a hysterectomy, I don't want hormones or birth controls. I don't want pain killers, I've thought about another surgery, but that cost sooo much, and didn't last all that long.

Endometriosis, is killing my sex life ( in my marriage). My husband say's he understands, but I can see he doesn't clearly get it.

My goal is to find something to help ease the pain, and allow me to be "close" to my husband...

I started searching the internet to reach out and try to grasp on to something, someone? For answers, direction, advice... Maybe I have to high of goals, maybe what I'm looking for doesn't exist, maybe I'm spinning my wheels? But I've got to try...

I need to know what is out there, that can help this horrible thing called endometriosis......



sickofendo35 sickofendo35 31-35, F Jul 9, 2012

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