My Story

Hello all, I have had Endometriosis now for three years.  Through out these three years I have had at least 3 days of every month bed-bound in pain.  I am 21 years old and a Student however because of my age, and the cost of surgery, the British National Health Service are reluctant to help other then constantly giving me new medication (which never works), and i can not afford private health care.  I am a fun loving very active person but this disease has made my life hell and separated me from others as not only do they not understand the extent of the pain i feel they find it hard to accept that they can not help when they see me in such a way meaning that i have to isolate myself from people

I truly feel for everyone with Endometriosis as i know how much it can ruin ones live

Vixinpain Vixinpain
22-25, F
4 Responses May 5, 2007

hi i am also fairly new to this i have had symptoms for many yrs but the big flair up was last yr in aug after having my period and being in pain for 2 wks. i had just started on yaz pill 3mths prior to try contol bleeding and pain. but it made it worse was had my period thru the pill for nearly a month straight, so i stopped. The gini team sent me home with bad period pain and told me to go on the pill again. however saw a local gini in oct. my doc had already suggested trying a diff pill.. ed levlin, without taking sugar pill, to stop me from getting a period. but, i had breakthrough's when i saw my gyni he said if i have any more stop and start again.. and he diagnosed me with it. i am on his list to get laproscopy and surgery, which can take up to 12 months wait. i too cant afford to pay for the surgery or private and if i was to go on private it would take 12 mths to come thru anyway! maybe you could see if you could do that? its through public doesnt cost anything. but my gyni is doin the surgery, which is a relief. there has been so many probs with my pain relief and nothing seems to work. i havent had a period for months but im in more pain now continuously everyday.. just varies in pain level. life just isnt the same.. im not the same person anymore either. always been very happy fun bubbly outgoing.. now im depressed, moody worried stressed.. its a horrible thing to go through and noone understands unless they are goin through it!

lucky is right.<br />
<br />
i also did the BCs for months at a time with no break for periods. it helped!! mind you though, the pain when i finally had one was omg thru the roof bad...<br />
<br />
it was the only alternative after lupron depot shots totally screwed me over and i was a full time college student and single mom - hubby was deployed sigh... and i also worked full time. life was crazy then - no clue how i did it. <br />
<br />
regardless, the 24/7/365 BCs helped me get thru my semester until i had the time off from classes to have surgery.<br />
<br />
i literally went from my 9:15 class to the hospital to have my hyst. and after chrismas break, i returned for winter semester and went back to work<br />
<br />
give the BCs a chance and just dont stop taking them - skip the sugar pills/placebos<br />
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and if your doc wont prescribe - get a 2nd and 3rd opinion<br />
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also = if anyone in the southwest michigan area reads this, i know a great doc who is awesome and straight forward and will give honest answers.

dear - read my posts - i am GoblesBee. you need to stay off the drugs and break down and get the hyst. it is the best answer.<br />
<br />
and never fall for the old wives tail that getting pregnant will cure it - that is the biggest lie out there.<br />
<br />
hugs and warm regards, Bee

What about having laproscopic surgery to laser out the endometriosis? Will NHS consent to this? I can testify from personal experience that the procedure helps. Also, being on birth control pills with no break for periods helps. I went a couple of years with no periods, because after my surgery I took bc pills 365 days/year.