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Terrified!! Have Seizures Then Sleepwalk!

I started having seizures in my sleep more than 15 years ago. This past year after a seizure I'm assuming, I sleptwalk out the front door, in nothing but my underwear and a tank top 15 blocks before I woke up. Thankfully I was extremely close to police/fire station so they called my parents. I also have awoken from seizures and felt the need to go to church and that I was a bad person or something and have had overwhelming feelings of absolute terror and dread. Does anyone else experience this? I would do anything to never experience again. Added Vimpat in September to my Lamictal, and Zonegran and it has made my seizures substantially better as far as frequency. Went from having them sometimes several times a week to now anywhere from 1-10x a month give or take which is good. I feel I mostly have them only when I miss a pill (rarely) or take them a little off schedule. Although they are substantially better as far as frequency when I have them they still are just as bad as the very first or last one. One other thing that has also helped substantially as far as frequency that has been mind-blowing is that I gave up drinking Diet 7-Up. I drank almost 10 a day but then gave up all artificial sweetener/aspartame and switched to club soda and seizures dropped dramatically. Had a few seizures the past 2 weeks and feeling a little tired, spacy,sad and confused. :( Wish I knew more people with epilepsy. :)
anitapillow anitapillow 36-40, F 3 Responses Mar 30, 2012

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I slept walked my last episode too (this past Saturday). I got up out of bed and fell on the floor in front of my lover. I had a seizure right in front of him buck naked. I only have seizures in my sleep. He was cool about it considering that I didn't tell him I had epilepsy. He told me that he was going to try to pick me up, but figured he should let it pass. He is first aide trained, so thank goodness he understood what was going on. I have controlled seizures and actually wouldn't have them at all if I didn't forget to take my Carbatrol. It was embarassing, but I was surprised that he didn't just leave me. He told me that I should be careful to take my meds so I didn't get hurt. I hope I didn't scare him away, but at the same time it was a lesson for me. I know I am all over the place, but I feel tired, spacy and sad from my seizures. I can sleep for hours afterwards. I wish I could talk to more people with epilepsy because it feels lonely sometimes. No one ever talk about it.

i meant once a day sorry

dont be ashamed of your epilepsy but embrase it i know this a weird comment but its true if you have sezuries easy keep away from pre packaged or fast food cook yourdelf give it about 4 weeks keep your wait in check and you will notice the difrence but keep taking your medication ask your doctor combine Epilim 1000mg and 200mg of lamogine in the morning once a week it works and if you like a drink the make sure too keep th h2o up !