I Have Episodic Ataxia Syndrome
Hi every1 my name is leighton,im 28.
I would like to share my story. I started with episodic ataxia when I were 11 years old but no doctors or specialist could find what were wrong with me.
SORRY FOR MY BAD GRAMMA AND SPELLIN
Now I will start my story. When I were 11 years old I start to have bouts of dizzyness and sickness, I were so scared as I felt horrible and unable to walk I also am usually sick too, I have had this for 17 years now but I dont know how I have coped so long with soch a horrible condition that I wouldnt wish on my worst enemy.
One of the many bad problems is trying to explain hat is wrong with me, after all I didnt know or understand and neither did the doctorsso how can I explain to some1? I have cope with this condition for way too long and often had moments were I think I would be better off dead. This condition has controlled my life and stopped me from doing most things I am extremely frustrated with this horrible condition as it can start on its own or if im stressed,anxious or nervous (i suffer with anxiety too) whitch doesn't help!
On a possitive note after 17 long years 100's of doctors appointments later I finally have a name to my condition and now my only wish is 2 at least lower my attacks to a number were I can cope with life , as im having anuwere from 2-3 a day to 1 a week . I am glad I found this site as I have thought that im the only 1 out there ,i have also thought for years im weird and even started doubting myself as though I were putting it on like its all in my head or something.
I would like to end on saying I hope my story helps some1 out there cos I know how alone you can feel
I would like to share my story. I started with episodic ataxia when I were 11 years old but no doctors or specialist could find what were wrong with me.
SORRY FOR MY BAD GRAMMA AND SPELLIN
Now I will start my story. When I were 11 years old I start to have bouts of dizzyness and sickness, I were so scared as I felt horrible and unable to walk I also am usually sick too, I have had this for 17 years now but I dont know how I have coped so long with soch a horrible condition that I wouldnt wish on my worst enemy.
One of the many bad problems is trying to explain hat is wrong with me, after all I didnt know or understand and neither did the doctorsso how can I explain to some1? I have cope with this condition for way too long and often had moments were I think I would be better off dead. This condition has controlled my life and stopped me from doing most things I am extremely frustrated with this horrible condition as it can start on its own or if im stressed,anxious or nervous (i suffer with anxiety too) whitch doesn't help!
On a possitive note after 17 long years 100's of doctors appointments later I finally have a name to my condition and now my only wish is 2 at least lower my attacks to a number were I can cope with life , as im having anuwere from 2-3 a day to 1 a week . I am glad I found this site as I have thought that im the only 1 out there ,i have also thought for years im weird and even started doubting myself as though I were putting it on like its all in my head or something.
I would like to end on saying I hope my story helps some1 out there cos I know how alone you can feel
By:
lwilky83
Age:
26-30
