Finally, A Diagnosis

My soon to be 11 year old son was recently diagnosed with FMF. He has been sick for a little over a year and has seen 4 specialists, made copious ER visits, missed 14 days of school in 1 month, has had gallons of blood drawn, finally got used to not participating in sports and watching his friends play outside through the window when we finally got an answer. Since being on colcrys he has had 3 low grade fevers over the last 2 months which is down from a fever, headache and stomach pain every other day. We are optimistic about the future!
jennsky1 jennsky1
26-30, F
1 Response Dec 4, 2012

My daughter who is 18 used to play softball and was very active until diagonised with FMF. She is on Colcrys but when in attacks it is horrible. I have had a hard time trying to find a support group have you had any luck?