My Family Has Fibromyalgia And Cfs

Hi.  My name is Rebecca.  I was diagnosed with Fibromyalgia and CFS about 7 years ago, but have been sick for longer.  My son was diagnosed with Fibromyalgia after I was. He is 15 and was diagnosed at 13.   Thankfully, he only has mild flare ups after recovering from an illness such as the flu.  My husband was diagnosed with Fibromyalgia and CFS a little over two years ago.  He has two brothers with Fibromyalgia and possibly CFS and a sister with CFS.  Hmmm, I wonder if some cases of CFS or FMS are contagious or heriditary?wink  I have a 19 year old daughter who is symptom free.   (By the way, my son and I were diagnosed by two different rhuematologists who have no association with each other and my husband was diagnosed by a family physician whose interest is Fibromyalgia.  None of the doctors who diagnosed us are the same as those who diagnosed my husband's relatives).

We have learned how to function allright.  My husband and I both work.  He works full time and I work part time. Occaisonally, I take a class.  I have been working on a degree for 10 years now.  Maybe in 10 more, I will have it done.   We keep a shared chore schedule that my son actually came up with.  It works well.  We, however, are lacking a social life because after we are done with responsibilities, we usually don't have any energy to socialize or for extracuricular activities.  We do try to do something we like once a month.  Last month we went and saw Young Frankenstein.  Today we were suppossed to go to a concert (Rockstar Mayhem); however, there was record breaking heat today and it was an outdoor concert.  We decided to skip it.

That's it.  That is my story.  If anybody else with CFS or FMS wants to talk, feel free to contact me.



tiggerkenwood tiggerkenwood
36-40, F
3 Responses Jul 19, 2010

Hello, how are you and your family doing today? Any links found? I was diagnosed in 2008, my 12yr old will be diagnosed very shortly, and I believe that my husband and 15yr old son may have it too. We all did have a virus that his me, and my youngest the hardest, and we have the worst all around issues with FM, my husband and older son, have more of the CFS symptoms, but pain is starting to trickly in too, they had the same virus, but very mild in comparison. I believe that this is nuts - a family of 4 that used to thrive - and our lives are a mess now. My real struggle is that my kids are so young - I grew up with a very traumatic childhood - but still did not suffer from FM or CFS in anyway, and my husband grew up in a great family life - and did not have any of this either. Seeing my 2 intelligent, and energetic boys suffer from this at their age is the real torture for me, worse than my own unmanaged pain. I would like to connect with others that are in the same situation, and try to find what other similarities are going on. I hope you all are doing well at the moment. stacey

hollynadine, there are now a total of 7 people in my family who have been diagnosed with Fibromyalgia and CFIDS. There was a connection found a year ago between a virus called XMRV and CFIDS and there is a laboratory called VIPdx that will have an antibody serology test available at the end of this month to test those with CFIDS for XMRV. You can find information about XMRV at the Whittmore Peterson website and at a CFIDS/ME website called Phoenix Rising. As far as those diagnosed with Fibro and not CFIDS, they have not found a connection to XMRV as of yet. (All the persons in my family diagnosed with these diseases were diagnosed by separate physicians. Most of us by Rhuematologists and one by an infectious disease doctor)

I think you should also check out the extreme possibility that fibro may be fungal, u can find this at also may be able to shed light on herbal remedies also. Did you know there is an herbal cure for cancer? It is called essiac, named after the woman who discovered it. Google it I know 4 people who beat cancer by using essiac.