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Overcoming Fibromyalgia

It took my doctor several years to finally diagnose me with fibromyalgia, but that's not all that uncommon.  I'll spare the details of my suffering, if you know what fibromyalgia is, you already have some idea. What I do want to write about is how I got over it (mostly).

First, I was fortunate to be sensitive to the low level anti-depressants the doctor had me try -- otherwise I might still be following my doctor's orders and still not be over my fibromyalgia.

Second, I didn't accept my doctor's statement, "The sooner you accept that this how the rest of your life will be, the better off you'll be."

Thirdly, while I cannot recommend that YOU do so -- all that legal stuff you know -- so I'll say here now, check with your doctor, always follow what he or she says, blah, blah, blah -- I'm sure you can read between the lines -- What I did was to ignore my doctor regarding supplements and instead I did my own research and experimented on myself one supplement at a time.

I do want to take a moment and give my doctor credit for recommending exercising by the minute rather than by the distance. Every visit she'd tell me how important exercise was for a person with fibromyalgia -- she didn't seem to get that it was too painful and on top of that, exercising one day meant being unable to move for the next two or three. Finally she heard me and suggested that I do what I could do without sending myself backwards -- if that was only a three minute walk at a slow speed, so be it. I was to continue to exercise at that level each day for a month and then add only one minute. I added one minute each month for several months and finally was able to add two minutes at a time. When I had worked up walking thirty minutes at a time for a month, I added five minutes each subsequent month, until I was able to walk for forty-five minutes at a time without spending days in bed to make up for it.

About the same time, I found a book written by Dr. Jacobs of Oregon Health Sciences University that touted the benefits of high doses of MSM (methylsulfonyl-methane).  It was the one supplement my doctor had specifically told me to stay away from. I had already tried it in small doses and thought it was worthless, but after reading Dr. Jacobs' book, I decided to try it in mega doses.  I will offer a caution here.  You will need to discover what dosage is right for you, it is not a one size fits all supplement.  For me, the right dose was 24 grams a day -- yes, that's GRAMS.  I started taking it in late November and by December was able to have a small Christmas gathering at my house. I stayed awake for five straight hours that day, which for me was a miracle. In January I returned to work.

I still had some pain and I had to reduce my hours to part time after a few months, but the things that other people take for granted, like being able to sit down for longer than five or ten minutes at a time, being able to go to the grocery store and actually buy everything on my grocery list before I was too tired to drive home, being able to stay awake long enough to complete a six hour work shift, these are amazing things that I can now do.

As time went on, I added other supplements and eventually my pain diminished to where often, I don't even notice it. My sleep is iffy, as you might discern from my EP moniker, Insomniac Seven, but one of these days I'm going to find the answer for that, too!

I cannot guarantee that what has worked for me, will work for you, but my hope is that at the very least, my story will encourage someone out there.
Classicality7 Classicality7 56-60, F 18 Responses Sep 12, 2010

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I know how you feel, I suffer from it too, you are not alone. XXX

Classicality7,
After I was diagnosed with FMS, I was totally disabled. Now, I have been out of pain and off meds for 13 years. I did it by balancing my hormones, initially balancing brain chemistry, cleaning up my diet, and clearing some toxins, which is likely something you won't hear in your doctor’s offices.

I have been studying and working the past 13 years to help others in their recoveries. I want people to get well.

Out of a passion to help others get well, I have written Reversing Chronic Disease: A Journey Back to Health, which is endorsed by Dr. Jacob Teitelbaum and 2 other MDs.

Don’t accept the word "incurable." Keep fighting for restored health. If I can get well, why can't others. I believe something better is out there with your name on it.
I want to encourage each of you with fibromyalgia. I understand what you are going through. I have been there.

After being totally disabled with fibromyalgia many years ago, I have been without pain and off medications for over 13 years. I didn't happen over night, but it did happen.

Here is what I have done to get well.
1. Identify and correct hormonal imbalances using plant-based replacement.
2. Initially corrected brain chemical imbalances, particularly improving a naturally occurring brain chemical called dopamine.
3. Cleaned up my diet and eliminated milk, a food that was causing trouble for me.
4. Cleaned up some toxins.

Rheumatologists and patients typically don't understand the symptoms of hormonal imbalance. I want to help change that. The technology is in the here and now to identify and correct hormonal imbalance.

Do a little research to see if you have symptoms of hormonal imbalance. If you have many of these symptoms, study to find out how to identify and correct imbalances.
Here is a hug to each of you. I want you to feel well again.

Patricia Stephens, Certified Nutritional Consultant

That is great! You encouraged me. I've found my situation to be similar... doctors usually have no clue to the reality of this condition, and are very unrealistic and very judgmental. I've found doing my own thing and figuring out what works for me is the answer, because no one else knows or cares how bad I feel or felt.

bravo! bravo to you! i think i can cure my parkinsons too i just dont have the right situation right now.

Dear fibromyalgia sufferers: the best thing for sleep out there is a supplement called (fibro pm) from the company 4life! I've tried alot of stuff and that is the best yet. i hope that helps.

Thanks for the advice on MSM. I find Magnesium helpful, it relaxes muscles, helps in energy production etc. This helps my fibro and sleep quality. At one point I couldn't even brush my own hair and like you I was super senstive to all prescribed pain/anti depressant meds. Good advice thanks

Fibro is a very hard thing to deal with at first, but with the help of family and friends you can achieve anything. Ive been helping you by saying nice things and encouraging you to keep your chin up. Bring your aches and pains to Gods attention and he'll help you too.









~STRETCH20~

Your story touched me, please let me know what you think of the private message i sent to you. Have a blessed day

Fibromyalgia wasn't a recognized sickness for a long, long time. In the early days of actually finding a name for it, the biggest and most troublesome indication was that of lethargy. I do know that in the USA it was a problem to get welfare because it wasn't an 'acceptable' sickness and took some time to become established as such. In research, here in the UK, it was found that it wasn't just about feeling lethargic, there were other issues and where pain rather than lethargy was the most disabling portion of the diagnosis.



Generally seaking, Fibromyalgia 'levels out' for many and they have what they have, but, for some, it doesn't and Fibromyalgia can be a degenerative sickness. There are those who are affected in other ways too. Fibromyalgia and Osteoarthritis Arthritis often go hand-in-hand, and so this makes any movement difficult.



There are those who have gone for Physiotherapy and many of those don't get very far; not because they give in, but because the Physiotherapy Department tell them they cannot help them.



I think it's wonderful what you have done! Well done you. I think where this diagnosis of Fibromyalgia and how to treat it falls through is when it is linked to some other cause Attach this diagnosis to Osteoarthritis and no amount of exercise will help; when the spine begins to collapse; at that point there is little in the form of exercise.



I am so happy that you have levelled out with this and you have claimed back a lot of your well-being. Well done you!



~F~

Glad you found Dr.Jacobs. I found him about 5 years ago and researched him and his methods.



I have a 5lb jar of the stuff in my cabinet.I need to get back to using.

Diet,lifestyle and exercize are what saved me.

Sleep still evades me though,please let me know if you ever find the cure for loss of sleep from fibro.

I turn over in bed and the pain wakes me.



All the best to you!

Hi! I don't know if this will help in spite of pain, my pain has (mostly) disappeared since I started taking the mega doses of MSM, but I have finally found something that helps me sleep and that is drinking something with real vanilla bean in it before bed. Right now I'm cycling between Virgil's diet vanilla cream soda and vanilla flavored pure green proteins, but the common denominator is real vanilla bean and when I googled vanilla bean, I did find that it is indeed listed as an aid for insomnia. If you try this, too, please let me know if it was helpful for you as well. Thanks and all the best to you.

I don't know if this will help in spite of pain, my pain has (mostly) disappeared since I started taking the mega doses of MSM.

Well done,you have achieved so much and that is a tribute to your character.Your story is remarkable and may well inspire others to persevere in finding the answer and cure to some ailments.

I have pain in my knees. I had taken Glucosamine with MSM and it was amazing. I went from barely able to descend stairs to no pain at all. Those pills are huge, like the size of my thumb and had always wondered if I just took MSM alone would it be as beneficial. Good to know it is available by itself.



I can completely understand about the exercising. I have that. If I follow the regimen that is required to build my strength, I'm in so much pain for the next week, I could barely move. So I just do some of the reps not all that is asked of me. I get those disapproving looks from the PTs, too bad, they aren't the ones suffering (those 20 year olds LOL). I like walking on a treadmill. Its a completely different experience that walking along a road. More boring yes, though seems to be less stressful on my joints.



I like when you said ... blah blah blah ... right, must add the disclaimer LOL :~)

for sure, finding the answer to sleep is a key part of the puzzle. You should consult a sleep specialist who is also quite familiar with Fibromyalgia. Good luck and God Bless!

Thanks for the information. Glad you're feeling better.

Thank you for sharing. Wish you all success in your daily peronal struggle with fibromyalgia !

Love n Hugs

Third.



Thanks for the inspiring post.

Hi! I don't know if it will help you or not, but I have finally found something that helps me sleep and that is drinking something with real vanilla bean in it before bed. Right now I'm cycling between Virgil's diet vanilla cream soda and vanilla flavored pure green proteins, but the common denominator is real vanilla bean and when I googled vanilla bean, I did find that it is indeed listed as an aid for insomnia. If you try this, too, please let me know if it was helpful for you as well. Thanks and all the best to you.

im second on the list!

Hi! I don't know if it will help you or not, but I have finally found something that helps me sleep and that is drinking something with real vanilla bean in it before bed. Right now I'm cycling between Virgil's diet vanilla cream soda and vanilla flavored pure green proteins, but the common denominator is real vanilla bean and when I googled vanilla bean, I did find that it is indeed listed as an aid for insomnia. If you try this, too, please let me know if it was helpful for you as well. Thanks and all the best to you.

Good for you for persisting and finding something that works....if you find a quick working cure for insomnia...left me know..i am first on the list!

Hi! I don't know if it will help you or not, but I have finally found something that helps me sleep and that is drinking something with real vanilla bean in it before bed. Right now I'm cycling between Virgil's diet vanilla cream soda and vanilla flavored pure green proteins, but the common denominator is real vanilla bean and when I googled vanilla bean, I did find that it is indeed listed as an aid for insomnia. If you try this, too, please let me know if it was helpful for you as well. Thanks and all the best to you.