Going From Bad To Worse....

I am a 45 year old woman who is living with fibro. I was given the official label of ``Fibromyalgia`` 2 years ago although I have battled with it for well over 14 years. I believe a car accident may of triggered the illness. But who knows? I went to a Rheumatologist who gave me the label, told me to do yoga, and to continue with the lyrica my reg. doc had put me on. That was it. It took me almost 6 months to adapt to the lyrica well enough to function ``normally``. Before the lyrica my pain was so bad I couldn`t sleep and was taking extra strength Tylenol and Advil migraine piggy backed every 2 hours. The Lyrica has helped with the pain and I can sleep now.

I have IBS, GERD, extreme fatigue, headaches, muscle spasms &pain, tingling in my fingers and many more of the Fibro symptoms.

About 3 months ago I started a fibro flare that had all my lymph nodes swollen, tonsillitis with lumps under my tongue, and fatigue so extreme that I was certain that I must be dying of lymphoma. I am having tests done but I am pretty sure it is " just fibro". Especially after checking the extensive list of fibro symptoms on this site that validated these symptoms.
One of the worst things is when on a bad day a family member turns to you and says ``what are you stressing about now?" As although I have tried to educate them about this wonderful illness I have, most of the time they think it is just me being stressed out rather than stress being a trigger as I explained to them.
I now try not to mention my aches and pains.
I just say whether I am having a ``good`` ``bad`` or ``ugly`` fibro day.
Though I have discovered that if I sound very croaky it is a ``bad or ugly`` fibro day. Has anyone else noticed this tell?
I would like to talk to others with this illness. It's nice to have someone understand.
arkofwpg arkofwpg
1 Response May 3, 2012

Hi I was told I have fibro after they told me that I had hypothyroid problems. It is very hard to explain to someone who doesn't have this and have them understand what you are going thru. My family has suffered for the last couple of years and they still dont get it. The best way to deal with a flare up is to try and find a quiet place to regroup and try to meditate every day any time of day. It can be stressful and irritating and nerves get shot so easily. try to reduce stress as much as possible.